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149 total results
Comments (137)
I have read these stories with much interest, as my journey overlaps with many of yours....
https://connect.mayoclinic.org/comment/646769/
many of you talk about skin biopsies, plasmapheresis
Hi Marita my name is Darlene, I live in Tampa, FL and I was diagnosed with...
https://connect.mayoclinic.org/comment/49565/
that would help me and she came up to Plasmapheresis
Hey @rwinney! I’ll be saying this 100 times but that’s okay. I truly appreciate your kind...
https://connect.mayoclinic.org/comment/300486/
these tests, I did five treatments of plasmapheresis
Dear wolfbauer, I did not realize that the problems I experienced prior to my diagnosis (2010)...
https://connect.mayoclinic.org/comment/156982/
I haven't tried plasmapheresis.
I am on IVIG right now. Started at a dose of 150 g every 4 weeks....
https://connect.mayoclinic.org/comment/210968/
My doctor is now talking about plasmapheresis
@ericvnelson @elained I'm sorry to hear you both are having such a hard time and are...
https://connect.mayoclinic.org/comment/156979/
Have either of you tried IVIG, plasmapheresis
Hi @johnbishop , I've worked in pharmacy since I was 16 (31 now) and studied to...
https://connect.mayoclinic.org/comment/201229/
dehydrated, I'm going to start plasmapheresis ... #39;m curious to what extent IVIG, plasmapheresis
Hi @gonefishinmt, I'm new to this site & first must say how good it feels to...
https://connect.mayoclinic.org/comment/82973/
Therapeutic Plasma Exchange (TPE) or plasmapheresis
Hi Emo, my fellow FGFR3-er, makes me feel better that I am not alone suffering from...
https://connect.mayoclinic.org/comment/1032548/
Plasmapherisis - done that, no effect ... neuropathy with all of these IVIGs and Plasmapherisis
Just want to know pros and cons of the us of cytoxin as next step of...
https://connect.mayoclinic.org/comment/1024830/
as next step of therapy being i ig plasmapharesis
Can you explain plasmaphoresis to me, as my Neuro doc has suggested I do it for...
https://connect.mayoclinic.org/comment/948534/
Can you explain plasmaphoresis to me
I also am in same situation as you. I have many of same symptoms as you...
https://connect.mayoclinic.org/comment/937467/
I’m waiting to hear about having plasmaphoresis
Hi and welcome! Interesting about the IVIG. Too much of anything can cause damage but there...
https://connect.mayoclinic.org/comment/158116/
My Neurologist has plasmapherisis and
It looks most like 'mixed cryogobulinemia' with non-hepititis SLE and APS. The cure is plasmapharesis. Where...
https://connect.mayoclinic.org/comment/212946/
The cure is plasmapharesis.
I’m sorry this is happening to you. I thought I’d share my experience with FGFR3 if...
https://connect.mayoclinic.org/comment/1093844/
FGFR3+ small fiber neuropathy are plasmapherisis
Would like info for help with cost of this med. It’s very expensive and my insurance...
https://connect.mayoclinic.org/comment/1024291/
insurance won’t cover unless I get plasmaphoresis
I too had a protein level 4x higher than normal range. Got no answers as to...
https://connect.mayoclinic.org/comment/939896/
Right now my doc is offering me plasmaphoresis
Hello! How's everyone doing?? I'm so happy to have found this group as I've really been...
https://connect.mayoclinic.org/comment/720738/
decided to wean them off & try plasmaphoresis ... And after 7 weekly plasmaphoresis treatments
@betoma I never received plasmapherisis, but researched it as a possible assist to pain. My conclusion...
https://connect.mayoclinic.org/comment/651525/
@betoma I never received plasmapherisis
In light of this post and a few others of mine, heres my update: Went to...
https://connect.mayoclinic.org/comment/280436/
additional relief options and questioned plasmapherisis ... I asked, how about plasmapherisis then ... Have you received plasmapherisis and
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