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274 total results
Comments (260)
I tried much later daily doses of prednisone years ago for my pains which they have...
the last 5 months of IvIG infusion treatments ... for CIDP and small cell neuropathy ... It is weird though the treatments which
Support Group: Neuropathy
Posted: Feb 18, 2024
Please add me to your CIDP group discussion. I have been diagnoised with CIDP and small...
Please add me to your CIDP group discussion ... I have been diagnoised with CIDP and ... Neuropathy and have received two 5 day IVIG treatments
Support Group: Autoimmune Diseases
Posted: Dec 19, 2023
My diagnosis is CIDP basically. Numbness and tingling in my feet, unable to balance without a...
My diagnosis is CIDP basically. ... I’ve done and had all the meds and treatments ... that’s done for CIDP and nothing has
Support Group: Neuropathy
Posted: Dec 12, 2023
Welcome @idahoj, I know it has to be frustrating not having a treatment that helps and...
has to be frustrating not having a treatment ... While you wait for members that have CIDP ... information that may be helpful. --- Treatment ... Approaches for Atypical CIDP: https
Support Group: Neuropathy
Posted: Oct 11, 2023
@ronoejello1, @SusanEllen66 - I would be interested to hear how your appointment went with Dr. David...
show_locs=Y#locn • CIDP – The Gripper ... Study: IVIG Treatment Related Fluctuations ... in CIDP https://trialbulletin.com/
Support Group: Neuropathy
Posted: Aug 31, 2023
Hello @goldacharna, I would like to add my welcome to Connect along with @dwyermw and others....
Hoping your upcoming treatments will ... provide some relief for your CIDP symptoms ... / — CIDP and concerns about treatment ... /connect.mayoclinic.org/discussion/cidp ... Can you let us know how your treatment
Discussion: CIDP Support Group
Support Group: Autoimmune Diseases
Posted: Jul 3, 2023
Hi jaymiier, I've had/have the same symptoms as you for 18+ months and will share a...
new long covid symptoms while having CIDP ... It may be beneficial to review your CIDP ... treatment.
Posted: May 7, 2023
Hi @lucy84 I have MCL stage 2A which was diagnosed last April. It's taken an indolent...
However, I also was diagnosed with CIDP ... didn't show I responded to the treatment ... Everyone's treatment is different
Posted: Feb 26, 2023
Hi Kim Sorry to hear that you also have been diagnosed with CIDP. I also have...
you also have been diagnosed with CIDP ... immunosuppressant therapy, and steroid treatments ... neuropathy but the pathophysiology for CIDP ... GIB-CIDP.org is a great organization
Support Group: Autoimmune Diseases
Posted: Feb 2, 2023
I just ran across these YouTube videos that I thought might be helpful for anyone new...
might be helpful for anyone new to CIDP ... Optimizing Outcomes in CIDP: Honing ... Diagnostic Accuracy, Personalizing Treatment
Support Group: Neuropathy
Posted: Dec 18, 2022
Good to hear you are faring well and great to hear you have a connection with...
you have a connection with the GBS/CIDP ... There are some other CIDP discussions ... you might find helpful. -- CIDP ... and concerns about treatment risk factors ... /connect.mayoclinic.org/discussion/cidp
Support Group: Neuropathy
Posted: Dec 9, 2022
Hello @jamiemccorkle, Welcome to Connect. Thank you for being an advocate for your dad. I'm sorry...
I'm sorry to hear his IVIG treatments ... discussion on the same topic here - CIDP ... and concerns about treatment risk factors ... /connect.mayoclinic.org/discussion/cidp ... members who have been treated for CIDP
Support Group: Neuropathy
Posted: Aug 19, 2022
Hi Fin @fintown, Welcome to Connect. I'm not sure @dellinger is still following Connect. The member...
members are sharing their stories of CIDP ... that you might find helpful: CIDP ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy ... doctor suggested or started you on any treatments
Support Group: Autoimmune Diseases
Posted: Jun 10, 2022
My symptoms started about 5 years ago with cold feet. Over the course of about 2...
She indicated there is no treatment ... again and indicated I actually have CIDP ... cause was discovered so I am under treatment ... benefit, my doctor has no further treatment
Support Group: Neuropathy
Posted: Dec 13, 2021
I begin my 5th (of 6) round of infusions tomorrow to treat CIDP. 3 consecutive/6 hr....
round of infusions tomorrow to treat CIDP ... not, she does not have additional treatment ... up a team that is involved in both treatment
Support Group: Autoimmune Diseases
Posted: Dec 12, 2021