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875 total results
Comments (796)
Hello @gala75, Welcome to Connect. I know it's difficult to be in so much pain and...
https://connect.mayoclinic.org/comment/768054/
@oldkarl has discussed amyloidosis in ... Hereditary ATTR Amyloidosis Testing ... www.hattrguide.com/diagnosing-hattr-amyloidosis ... / Amyloidosis Foundation — http: ... //amyloidosis.org/facts/al/ Diagnosis
Discussion: Amyloidosis and Polyneuropathy?
Support Group: Autoimmune Diseases
Posted: Nov 1, 2022
A bit over 20 years ago, I called a leading doc in that amyloidosis clinic at...
https://connect.mayoclinic.org/comment/1024092/
ago, I called a leading doc in that amyloidosis ... doc had underestimated his EF and amyloidosis
Discussion: Newly dx with stiff heart
Support Group: MAC & Bronchiectasis
Posted: Feb 28, 2024
@colleenyoung Colleen, I am new to this form and I am being treated for Amyloidosis with...
https://connect.mayoclinic.org/comment/1041672/
this form and I am being treated for Amyloidosis ... love to connect with others who have Amyloidosis
Discussion: Positive test results for amyloids
Support Group: Blood Cancers & Disorders
Posted: Mar 28, 2024
Consider getting an abdominal fat pad biopsy (assuming they didn't take that for the carpal tunnel...
https://connect.mayoclinic.org/comment/1323464/
I don't have amyloidosis, but was ... my.clevelandclinic.org/health/diseases/23398-amyloidosis ... /139/19/2918/476883/How-I-treat-AL-amyloidosis
Discussion: Amyloidosis - but no type yet. How do I get that?
Support Group: Autoimmune Diseases
Posted: Jun 9, 2025
No and I asked my cardiologist when I met with her yesterday if my HCM dx...
https://connect.mayoclinic.org/comment/945994/
could be in any way confused with amyloidosis ... cardiologist said that my labs checked for Amyloidosis ... light chain, serum, free” and that Amyloidosis
Discussion: What is amyloidosis?
Support Group: Hypertrophic Cardiomyopathy (HCM)
Posted: Oct 11, 2023
My first sign of Amyloidosis was increased protein in my urine….. Had a 24hr urine &...
https://connect.mayoclinic.org/comment/1119946/
My first sign of Amyloidosis was increased ... Confirmed the presence of amyloidosis ... My amyloidosis was in my kidneys &amp
Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?
Support Group: Blood Cancers & Disorders
Posted: Aug 8, 2024
I had idiopathic intestinal pain for a few decades. Last September /October things became acute for...
https://connect.mayoclinic.org/comment/1546119/
The biopsy came back as amyloidosis. ... showed AApoAIV (Apolipoprotein A-IV) Amyloidosis ... AApoAIV (Apolipoprotein A-IV) Amyloidosis
Discussion: Anyone else here with AApoAIV (Apolipoprotein A-IV) Amyloidosis
Support Group: Blood Cancers & Disorders
Posted: Apr 9 4:22am
@oakbourne First, I always welcome the questions about Amyloidosis. I have my own story on the...
https://connect.mayoclinic.org/comment/163068/
always welcome the questions about Amyloidosis ... more at the Mayo search line under Amyloidosis ... Hereditary gelsolin amyloidosis. ... slowly progressive but devastating amyloidosis ... ; hereditary amyloidosis; peripheral
Discussion: Anyone dealing with Dystonia?
Support Group: Brain & Nervous System
Posted: Sep 9, 2018