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820 total results
Comments (749)
For individuals who are immunocompromised and also have cardiac amyloidosis is this drug contraindicated due to...
https://connect.mayoclinic.org/comment/673967/
immunocompromised and also have cardiac amyloidosis
Sounds like some form of Amyloidosis to me, perhaps Gelsolin. That is what I went through.
https://connect.mayoclinic.org/comment/334485/
Sounds like some form of Amyloidosis
Sorry to hear of all your disappointments Is Hereditary Gersolin Amyloidosis different than HATTR?
https://connect.mayoclinic.org/comment/213889/
disappointments
Is Hereditary Gersolin Amyloidosis
Have you tried University of Pennsylvania Hospital? They run clinical trials for some types of amyloidosis....
https://connect.mayoclinic.org/comment/381222/
clinical trials for some types of amyloidosis ... trial at U Penn for Wild Type Cardiac Amyloidosis
No and I asked my cardiologist when I met with her yesterday if my HCM dx...
https://connect.mayoclinic.org/comment/945994/
could be in any way confused with amyloidosis ... cardiologist said that my labs checked for Amyloidosis ... light chain, serum, free” and that Amyloidosis
My first sign of Amyloidosis was increased protein in my urine….. Had a 24hr urine &...
https://connect.mayoclinic.org/comment/1119946/
My first sign of Amyloidosis was increased ... Confirmed the presence of amyloidosis ... My amyloidosis was in my kidneys &
Hello @gala75, Welcome to Connect. I know it's difficult to be in so much pain and...
https://connect.mayoclinic.org/comment/768054/
@oldkarl has discussed amyloidosis in ... Hereditary ATTR Amyloidosis Testing ... www.hattrguide.com/diagnosing-hattr-amyloidosis ... /
Amyloidosis Foundation
— http: ... //amyloidosis.org/facts/al/
Diagnosis
Hi @rbnwalls2, have you been diagnosed with cardiac amyloidosis, also called “Stiff Heart Syndrome?”
https://connect.mayoclinic.org/comment/103017/
have you been diagnosed with cardiac amyloidosis
My husband has restrictive cardiomyopathy due to amyloidosis. He only takes diuretics currently.
https://connect.mayoclinic.org/comment/210857/
restrictive cardiomyopathy due to amyloidosis
s Seek an opinion with a cardiologist who is knowledgeable and experienced about cardiac amyloidosis at...
https://connect.mayoclinic.org/comment/761344/
knowledgeable and experienced about cardiac amyloidosis
What do you mean Finnish Amyloidosis? I have Amyloidosis of Laryngeal and it spread to sinuses...
https://connect.mayoclinic.org/comment/684904/
What do you mean Finnish Amyloidosis ... I have Amyloidosis of Laryngeal and
@rosalynclifton Hi, Rosalyn. Several years ago, Mayo issued a list of signs ond symptoms of Gelsolin...
https://connect.mayoclinic.org/comment/333038/
of signs ond symptoms of Gelsolin Amyloidosis ... learned later that I have GSN (AGel) Amyloidosis
@oakbourne First, I always welcome the questions about Amyloidosis. I have my own story on the...
https://connect.mayoclinic.org/comment/163068/
always welcome the questions about Amyloidosis ... more at the Mayo search line under Amyloidosis ... Hereditary gelsolin amyloidosis. ... slowly progressive but devastating amyloidosis ... ; hereditary amyloidosis; peripheral
Hello @asergio714, While you wait for others with experience to share with you, I thought you...
https://connect.mayoclinic.org/comment/989526/
the following information from the Amyloidosis ... arci.org/ helpful:
--- Neuropathy in Amyloidosis ... wp-content/uploads/2022/06/Neuropathy-in-Amyloidosis.pdf
What does the latest research show on treating amyloidosis with velcade only without the accompanying use...
https://connect.mayoclinic.org/comment/381151/
the latest research show on treating amyloidosis
Good morning, @sherryzitter. I’m so happy to see you’re jumping in with both feet into this...
https://connect.mayoclinic.org/comment/1042022/
already discovered one of the many Amyloidosis ... You’ll be able to find more Amyloidosis ... members and discussions by typing Amyloidosis
I lost both my senses of smell and taste a few years ago. Since then I...
https://connect.mayoclinic.org/comment/260928/
sign and symptom of several forms of Amyloidosis ... most likely one of the many forms of amyloidosis
You're welcome. I hope you find some answers. I have AL Amyloidosis, there is another type...
https://connect.mayoclinic.org/comment/1120802/
I have AL Amyloidosis, there is another ... type called TTR Amyloidosis that has
Do there have to be separate trials for cardiomyopathy; wouldn't any drug that slows the deposit...
https://connect.mayoclinic.org/comment/381141/
any drug that slows the deposit of amyloidosis
Yes it is more specific for cardiac Amyloidosis always varying opinions for testing protocols Sent from...
https://connect.mayoclinic.org/comment/754874/
Yes it is more specific for cardiac Amyloidosis
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