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Comments (10,000+)

PMRand IL6.com is a good website but I had a heck of a time getting my...

https://connect.mayoclinic.org/comment/772396/

suggest putting a space in like this, PMR

Discussion: Do I really have PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 12, 2022

If you are doing OK without the prednisone, I'm with you on not taking it. I...

https://connect.mayoclinic.org/comment/723931/

Celebrex can be used in mild cases of PMR

Discussion: PMR Diet: Foods to eat and avoid

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2022

Hi @ripley, did your doctors ever prescribe a diagnostic trial of corticosteroids to see if your...

https://connect.mayoclinic.org/comment/710299/

Before I was diagnosed with PMR/GCA

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21, 2022

This is my second round of PMR. I used to make myself get up early, eat...

https://connect.mayoclinic.org/comment/664100/

This is my second round of PMR.

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 21, 2021

You again are giving excellent advice Lizzier. I go into second doctor appointment next week and...

https://connect.mayoclinic.org/comment/617617/

I feel like I can deal with the PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 18, 2021

@jlw -- I was reading through several of your posts and noticed that you have been...

https://connect.mayoclinic.org/comment/299310/

with steroids is with prednisone for PMR

Discussion: Unspecified Myopathy

Support Group: Autoimmune Diseases

Posted: Mar 13, 2020

Please, please, please contact your doctors - PCP and rheumy both. Extreme anxiety can have many...

https://connect.mayoclinic.org/comment/1160040/

and it may not be related to your PMR

Discussion: Extremely anxious

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 20, 2024

We're listening. Primary care docs mistakenly dismiss a patient's frequent complaint of pain. They commonly refer...

https://connect.mayoclinic.org/comment/1100191/

He knew right away it was PMR and I

Discussion: I think I have PMR. The pain in Iliac crest is so intense. PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2024

Hello @hopeinal, I don't have any experience with Kevzara but there are quite a few comments...

https://connect.mayoclinic.org/comment/1089208/

have taken it in the past when my PMR

Discussion: Kevzara Side Effects?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18, 2024

At the higher doses of 20mg or more, it is definitely possible to get very irritable,...

https://connect.mayoclinic.org/comment/1029352/

i wasnt completely disabled by the PMR

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2024

I was diagnosed with PMR about 4 years ago. Weaned off Pred last December, even though...

https://connect.mayoclinic.org/comment/1012346/

I was diagnosed with PMR about 4 years

Discussion: Advice/experience about going back on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9, 2024

I have not had any guidance for reducing prednisone while taking Kevzara. I do know you...

https://connect.mayoclinic.org/comment/980138/

winter it is hard to tell what is PMR

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 14, 2023

My doctor started me with 10mg - after 8 days with limited improvement, I still put...

https://connect.mayoclinic.org/comment/965004/

If you research it you will find PMR

Discussion: I’m Not Responding to Prednisone and I Need Advice

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 14, 2023

No bc I haven't found a Dr. that knows how to treat it properly. Fortunately, I...

https://connect.mayoclinic.org/comment/960102/

t even know if they are related to PMR

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 6, 2023

Dear SCA108, I was diagnosed with PMR after an inoculation for flu one year ago. Sorry...

https://connect.mayoclinic.org/comment/947514/

Dear SCA108, I was diagnosed with PMR

Discussion: Calf pain when exercising

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 14, 2023

I have had 8 injections of Kevzara. To date I have not had any improvements. I’ve...

https://connect.mayoclinic.org/comment/940613/

To me I have a severe case of PMR, for

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2023

So sorry you are having trouble with your dosage of prednisone. PMR is a tricky condition...

https://connect.mayoclinic.org/comment/911149/

PMR is a tricky condition that interferes

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2023

You’re so welcome. You’re right, it is definitely a lot. It sounds like a good idea...

https://connect.mayoclinic.org/comment/904634/

provide a prednisone RX and consider PMR

Discussion: PMR diagnosed but now headache for almost a month.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 30, 2023

Thanks for commenting, mrovka49 -- I'm coming across more instances of people who have developed PMR...

https://connect.mayoclinic.org/comment/904324/

instances of people who have developed PMR

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 29, 2023

Absolutely get another opinion or better yet, another doctor. The fact that the prednisone worked so...

https://connect.mayoclinic.org/comment/888150/

so quickly is a good sign you have PMR

Discussion: Can PMR come on more gradually?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 1, 2023