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Comments (2,430)

Ohhhh @jager5210 - That's such a sad and frustrating history! It is apparent that some doctors...

https://connect.mayoclinic.org/comment/193859/

you I would want to follow up on the Lupus

Discussion: Who else has Autonomic Neuropathy?

Support Group: Neuropathy

Posted: Dec 18, 2019

I go in a few days to a Rheumatologist who specializes in Sjogren's. I have been...

https://connect.mayoclinic.org/comment/1258453/

My sister has Lupus and has for years

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Mar 15 9:44am

@bettyg81pain I meant to mention that my bloodwork mainly showed iron deficiency, thyroid autoantibodies (Hashimoto’s thyroiditis...

https://connect.mayoclinic.org/comment/1127999/

autoantibodies (higher risk for clotting), lupus

Discussion: Desperate: Is there any hope for neuropathy?

Support Group: Neuropathy

Posted: Aug 21, 2024

I have an appointment with Rheumatology next week. I was recently tested for Lupus and the...

https://connect.mayoclinic.org/comment/52617/

I was recently tested for Lupus and

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2020

God Bless You! You can share your aches & pains...I care. The jury is still out...

https://connect.mayoclinic.org/comment/953035/

out as to whether I have systemic lupus ... I have all the symptoms of Lupus, red

Discussion: Lupus pain

Support Group: Autoimmune Diseases

Posted: Oct 24, 2023

This sounds like Tumid Lupus which is basically caused by direct sunlight or fluorescent lighting. The...

https://connect.mayoclinic.org/comment/117604/

This sounds like Tumid Lupus which is ... dermatologist does not know why as Tumid Lupus

Discussion: Tumid Lupus

Support Group: Autoimmune Diseases

Posted: Jul 5, 2017

Hi there..... The words that stood out for me that resonated was Labels. My Doctor said...

https://connect.mayoclinic.org/comment/1225741/

HLA-B27 positive which is marker for Lupus ... I have every single sypmtom of Lupus

Discussion: My Autoimmune Journey: From 1:5120 to 1:320 ANA

Support Group: Autoimmune Diseases

Posted: Jan 30 4:52pm

Hi there I was on Methotrexate and Mycophenolate for 3 years ... 18 months each. Made...

https://connect.mayoclinic.org/comment/1086401/

I have Lupus, Fibro and also Neuro Autoimmune ... treating symptoms now of inflamation and lupus

Discussion: Methotrexate and Hydroxychloroquine

Support Group: Autoimmune Diseases

Posted: Jun 13, 2024

@rebaba you asked this: " Does this mean I am 95% likely to have Mixed Connective...

https://connect.mayoclinic.org/comment/1081011/

with a 30-50% likelihood of having Lupus ... I have a systemic lupus diagnosis and

Discussion: Help with understanding test results

Support Group: Autoimmune Diseases

Posted: Jun 5, 2024

I have never experienced anything like this before. I'm only assuming that I had a "flare...

https://connect.mayoclinic.org/comment/997896/

Taking the Plaquenil for the Lupus (

Discussion: MCTD: Preparing for evaluation appointment at Mayo Clinic

Support Group: Autoimmune Diseases

Posted: Jan 15, 2024

I haven't heard about Lupus causing brain damage to your basal ganglia. I am getting buzzing...

https://connect.mayoclinic.org/comment/685474/

I haven't heard about Lupus causing

Discussion: Strange neurological symptoms - myoclonic jerks

Support Group: Brain & Nervous System

Posted: Mar 1, 2022

TERESA ,sir galahad her and or john golding I have a dear friend and her son...

https://connect.mayoclinic.org/comment/197964/

Weston are autistic and both have lupus

Discussion: Adults On The Autism Spectrum

Support Group: Autism (ASD)

Posted: Sep 12, 2018

Well that, like a lot of those I see on these boards, is a new one...

https://connect.mayoclinic.org/comment/91484/

antibody and anti-sm to maybe rule out lupus

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jun 21, 2016

Lisa I don’t have restless legs or Parkinson’s. What I do have is tremors in my...

https://connect.mayoclinic.org/comment/1345477/

Dysautonomia My autoimmune diagnosis Lupus

Discussion: Parkinson's plus restless leg syndrome

Support Group: Parkinson's Disease

Posted: Jul 10 8:28pm

Thank you for your comment. Health education has always been the missing link in patient care....

https://connect.mayoclinic.org/comment/1338806/

Information & Education for the Lupus

Discussion: Boehringer Ingelheim AIRTIVITY clinical trial

Support Group: MAC & Bronchiectasis

Posted: Jun 30 7:34pm

@californiazebra maybe you are a long lost cousin :) My autoimmunity is flaring badly this summer...

https://connect.mayoclinic.org/comment/871496/

I have had a lupus diagnosis for years

Discussion: How to monitor for reoccurring BC after double mastectomy?

Support Group: Breast Cancer

Posted: Jun 3, 2023

Hi, I am 64 years old, have Lupus and my neck is fused due to 4...

https://connect.mayoclinic.org/comment/816294/

Hi, I am 64 years old, have Lupus and

Discussion: Thyroid biopsy shows multiple nodes and need encouragement

Support Group: Thyroid Cancer

Posted: Feb 23, 2023

I am new here. I have been itching for years but it gotten worse. It's not...

https://connect.mayoclinic.org/comment/592863/

tissue disease, now kidney issues, Lupus

Discussion: What do you do for Neuropathy itch?

Support Group: Skin Health

Posted: Apr 8, 2021

My thyroid does not work and medication doesn't help like I would like it to. My...

https://connect.mayoclinic.org/comment/79407/

Years ago I was checked for Lupus.

Discussion: Mesenteric Panniculitis and Sclerosing Mesenteritis: Let's connect

Support Group: Digestive Health

Posted: Sep 28, 2017

yes, what you learned is correct. The AvWS was diagnosed first, and when the usual suspects...

https://connect.mayoclinic.org/comment/1185087/

the usual suspects were ruled out (lupus

Discussion: Anyone w/ both AL Amyloidosis & Acquired Von Willebrand Syndrome?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024