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Comments (2,483)

@kaylama I want to add just a couple things. First, no one has as much at...

https://connect.mayoclinic.org/comment/170700/

instance, I think I remember that Lupus ... There is nothing worth saving the Lupus

Discussion: Questions to ask before first lupus appointment

Support Group: Autoimmune Diseases

Posted: Oct 5, 2017

I’m concerned that A. You are getting nowhere with current medical care B that you might...

https://connect.mayoclinic.org/comment/989630/

10 years to get the 1st diagnosed (lupus ... Learn all you can about lupus, Sjögrens ... Many lupus patients are initially diagnosed

Discussion: Frustrated and continuing to look for diagnosis

Support Group: Autoimmune Diseases

Posted: Jan 1, 2024

Hi @kaylama, Welcome! I can understand your worry, but the best thing to do would be...

https://connect.mayoclinic.org/comment/170697/

www.mayoclinic.org/diseases-conditions/lupus ... Have your parents or siblings had lupus ... encourage you to be patient, because lupus

Discussion: Questions to ask before first lupus appointment

Support Group: Autoimmune Diseases

Posted: Oct 3, 2017

I have Sjogren’s—sort of. I’m Ro-SSA positive but don’t have very dry eyes/mouth. So I’m kind...

https://connect.mayoclinic.org/comment/1077398/

associated with myelitis, more so than lupus

Discussion: Internal body vibrations all night

Support Group: Neuropathy

Posted: May 29, 2024

So the tingling is only in thighs and feet? Have you had any autoimmune testing? Do...

https://connect.mayoclinic.org/comment/1068825/

I have lupus and spinal stenosis and

Discussion: Burning in inner thighs and needle pinch burning in feet

Support Group: Neuropathy

Posted: May 16, 2024

Your list runs like mine with a lot in common. I was told I had connective...

https://connect.mayoclinic.org/comment/1322435/

don’t even list connective tissue or Lupus

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Jun 7 4:17pm

Just want to add that most people do fine with full dose and I am exceptionally...

https://connect.mayoclinic.org/comment/1011004/

several health conditions including lupus

Discussion: Evenity Side Effects

Support Group: Osteoporosis & Bone Health

Posted: Feb 7, 2024

Thank you so much for the info. I was just diagnosed in July by my primary...

https://connect.mayoclinic.org/comment/937185/

route of an autoimmune disease, like lupus

Discussion: Who do I see for porphyria?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2023

Ohhhh @jager5210 - That's such a sad and frustrating history! It is apparent that some doctors...

https://connect.mayoclinic.org/comment/193859/

you I would want to follow up on the Lupus

Discussion: Who else has Autonomic Neuropathy?

Support Group: Neuropathy

Posted: Dec 18, 2019

I go in a few days to a Rheumatologist who specializes in Sjogren's. I have been...

https://connect.mayoclinic.org/comment/1258453/

My sister has Lupus and has for years

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Mar 15 9:44am

18 months after meningitis & brain surgery from CSF leak and went from recovery to migrating...

https://connect.mayoclinic.org/comment/1289392/

MS, lupus, many potential causes ruled

Discussion: Encephalomalacia, anyone?

Support Group: Brain & Nervous System

Posted: Apr 25 7:33am

Nissen fundoplication, I know there is a problem with mine but with Lupus it will remain....

https://connect.mayoclinic.org/comment/1128171/

there is a problem with mine but with Lupus

Discussion: Esophageal dysmotility

Support Group: Digestive Health

Posted: Aug 21, 2024

So happy to have found this group. I was diagnosed with ms in 2012, December. at...

https://connect.mayoclinic.org/comment/118411/

same time I was also diagnosed with lupus ... what is the difference between a lupus ... how to tell the difference between lupus

Discussion: Multiple Sclerosis (MS) - please introduce yourself

Support Group: Brain & Nervous System

Posted: Sep 2, 2017

I have just recently started symptoms of Raynaud's. So far only in my fingers. They go...

https://connect.mayoclinic.org/comment/1191661/

2004 and now have been diagnosed with LUPUS

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Dec 16, 2024

Your platelets, if low as well, might cause nosebleeds. I would avoid aspirin, ibuprofen and naproxen...

https://connect.mayoclinic.org/comment/1014376/

Lupus is the main autoimmune condition

Discussion: WBC count keeps getting lower and lower

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

I had to have my Thyroid surgery postponed due to serious blood issues, that came to...

https://connect.mayoclinic.org/comment/842883/

ruled out Von Willebrand since I have Lupus

Discussion: Upcoming Thyroid surgery 4/11 Follicular Cancer 3.5 cm.

Support Group: Thyroid Cancer

Posted: Apr 13, 2023

I am about two weeks out from first covid symptoms--I am boosted. Still have extreme lethargy,...

https://connect.mayoclinic.org/comment/680567/

I do have Lupus

Discussion: Multiple Autoimmune Diseases & Post Covid

Support Group: Autoimmune Diseases

Posted: Feb 13, 2022

I'm coming late to this discussion and I find it alarming. I have been on Tymlos...

https://connect.mayoclinic.org/comment/1228643/

rheumatologist (she is monitoring both my lupus

Discussion: Tymlos and Elevated Blood Calcium Scores

Support Group: Osteoporosis & Bone Health

Posted: Feb 3 12:32pm

I have Chiari Malformation and had 3 brain surgeries where the patch was used. The patch...

https://connect.mayoclinic.org/comment/382031/

I now have lupus that manifested after

Event: #MayoClinicNeuroChat about Congenital Anomalies of Brain and Skull

Posted: Mar 17, 2017

I looked that up and it does sound similar - I just don't have any skin...

https://connect.mayoclinic.org/comment/176465/

things are they doing to check for Lupus

Discussion: Diagnosed with Crohn's but having weird symptoms

Support Group: Inflammatory Bowel Disease (IBD)

Posted: Nov 30, 2017