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2,533 total results

Comments (2,422)

Wow! You have had excellent results with the Prednisone. Very happy for you, Congratulation! I only...

https://connect.mayoclinic.org/comment/1011525/

have PMR and had the possibility of GCA

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 7, 2024

Yes I get jaw tightness it's a symptom of GCA if you haven't had a biopsy...

https://connect.mayoclinic.org/comment/988412/

jaw tightness it's a symptom of GCA

Discussion: Is anyone with GCA experiencing jaw tightness?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 29, 2023

I'm new to this forum but I thank you @sashakay for your post. I was thinking...

https://connect.mayoclinic.org/comment/946223/

Possible GCA.

Discussion: Anyone else have strange neurological symptoms with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2023

@westcom I had a biopsy of my temporal artery last year. It was negative. I was...

https://connect.mayoclinic.org/comment/943894/

biopsy, I had all the symptoms of GCA

Discussion: Does anyone have eye problems because of neuropathy?

Support Group: Neuropathy

Posted: Oct 7, 2023

I was recently diagnosed with GCA. I was on 60 mg day of prednisone for 5...

https://connect.mayoclinic.org/comment/960948/

I was recently diagnosed with GCA.

Discussion: PMR, prednisone and Poor Sleep or Insomnia

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 8, 2023

From what I understand, one of the reasons why we need to be on enough prednisone...

https://connect.mayoclinic.org/comment/881295/

inflammation is the risk of acquiring GCA

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19, 2023

I have been on prednisone for 10 years for polymyalgia rheumatica and then try and GCA....

https://connect.mayoclinic.org/comment/615463/

polymyalgia rheumatica and then try and GCA

Discussion: Transplant: Has anyone tapered off prednisone after decades of use?

Support Group: Transplants

Posted: Jul 10, 2021

I also woke up blind one day in my right eye. Temporal biopsy was negative. C...

https://connect.mayoclinic.org/comment/1219239/

Turned out I had GCA.

Discussion: After remission ... has anyone discontinued Actemra or Kevzara?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 22 6:31pm

The following studies might have something to do with the interest that Novartis has in PMR/GCA....

https://connect.mayoclinic.org/comment/1205511/

interest that Novartis has in PMR/GCA ... treatments (n=297) available for PMR and GCA

Discussion: What do you all think of #Social Media Listening ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 6 5:23pm

Hello @amycmoore50nc, Welcome to Connect. I would definitely let your rheumatologist know about your recent symptoms....

https://connect.mayoclinic.org/comment/1109758/

related discussions on Actemra and other GCA ... search=GCA%20treatments.

Discussion: Recently Diagnosed With GCA - Still Experiencing Pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 22, 2024

Hi @abbeyc The biologic I'm currently on is called Actemra (tocilizumab). It has been FDA approved...

https://connect.mayoclinic.org/comment/826631/

FDA approved for the treatment of GCA ... game changer for the treatment of GCA

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 15, 2023

Thank you for posting your story! You are absolutely right about possibilities of other ailments that...

https://connect.mayoclinic.org/comment/810239/

prednisone also had a double biopsy for GCA ... upped the prednisone thinking I had GCA

Discussion: Strange story: Watch for changes in your condition, keep an open mind

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 12, 2023

Hi Becky, Sorry to hear your T-scores got worse on the drug. That , too, is...

https://connect.mayoclinic.org/comment/619539/

had the autoimmune disorder (PMR +GCA ... of osteoporosis and also the PMR + GCA

Discussion: Struggling with making an osteoporosis treatment decision

Support Group: Osteoporosis & Bone Health

Posted: Jul 24, 2021

Artificial intelligence says the following: "Actemra (tocilizumab) is a prescription medicine that blocks interleukin-6 (IL-6) receptors....

https://connect.mayoclinic.org/comment/1122631/

arthritis (RA) and giant cell arteritis (GCA ... contribute to the signs and symptoms of GCA

Discussion: Flareups, Prednisone, Tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 13, 2024

Every bottle of melatonin I ever purchased had a warning not to use if you have...

https://connect.mayoclinic.org/comment/1007936/

PMR and GCA are autoimmune disorders ... On 40 mg of prednisone to treat GCA,

Discussion: Advice/experience about going back on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1, 2024

Hi John, Thanks for your work with this forum. It’s a great resource for patients to...

https://connect.mayoclinic.org/comment/964236/

I am in my 4th year with GCA, on prednisone ... health issues, have read up on PMR/GCA

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 13, 2023

Hello~I'm so happy to have found this group. When I lost the sight in my left...

https://connect.mayoclinic.org/comment/856637/

left eye and was then diagnosed with GCA ... I found a support group for PMR/GCA

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8, 2023

Hi @whaler33 I hope you get an answer from your biopsy. It's a great relief to...

https://connect.mayoclinic.org/comment/680109/

If it is GCA, we are lucky that symptoms ... My mother-in-law had GCA, diagnosed

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 12, 2022

Hi tennis1234567, It's too bad you have to wait do long to see the Rheumatologist. I...

https://connect.mayoclinic.org/comment/618379/

textbook I have says both PMR and GCA ... My aunt had GCA and was on high dosage

Discussion: Was I properly diagnosed with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 20, 2021

Dropping 2.5 mg from 10 mg of prednisone sounds kind of risky to me. I have...

https://connect.mayoclinic.org/comment/1233593/

I have GCA and PMR, and I've been ... I haven't had any symptoms of GCA

Discussion: PMR and Sciatica with Back Pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 10 9:56am