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Comments (952)
@jjheying I'm glad you took the initiative and started this conversation. When I was diagnosed with...
Idiopathic small fiber peripheral polyneuropathy ... and autonomic neuropathy entered my ... View, it was really hard to believe what ... I think that helps to take some of the
Discussion: depression
Support Group: Neuropathy
Posted: Mar 14, 2021
Welcome to Connect @undiagnosed2016, As you probably already know, we are not medically trained, we are...
Do you mind telling me what they were ... What can the pain psychologist do for ... months after being diagnosed with SFN, small ... fiber neuropathy. ... Did that help?
Support Group: Digestive Health
Posted: Feb 28, 2021
Thank you, Erika. I have received some unhelpful feedback. My first neurologist did an EMG. There...
and a nerve biopsy to show large and small ... fiber neuropathy. ... Of those docs who have proved helpful ... We just don't know what it is.
Posted: Feb 18, 2021
Hello @robo37, Welcome to Connect. I'm sorry to hear your neuropathy has gotten worse. I have...
I'm sorry to hear your neuropathy ... I have small fiber peripheral neuropathy ... may want to read through and learn what ... - Chemo-related Neuropathy: https ... Have you tried any exercises to help
Support Group: Neuropathy
Posted: Feb 18, 2021
Thanks for the introduction of a timely and necessary discussion @rwinney. The subject is rarely if...
In fact….it might be helpful just to ... Hmmmm…..what do I do now? ... …..small fiber neuropathy (SFN) entered ... What can replace the loss of sexual
Support Group: Women's Health
Posted: Aug 30, 2020
I was diagnosed with idiopathic small fiber neuropathy at age 64 about 3 years ago. Took...
I was diagnosed with idiopathic small ... fiber neuropathy at age 64 about 3 ... Rochester, as my final resort, to see what ... ganglion to see if it can offer me some help ... I am not one to give up on finding help
Support Group: Neuropathy
Posted: Aug 24, 2020
@suzanne2, @sandytoes14, Good evening. Michigan does have current laws about medical marijuana as well as recreational...
You justifiably ask....how do I know what ... specialist at the dispensary who can help ... locations At this time my pain from Small ... Fiber Neuropathy (SFN) is totally controlled ... What is your greatest concern?
Support Group: Chronic Pain
Posted: Aug 20, 2020
Hi @robtlhughes you are likely to get all sorts of answers to your question here. Some...
feeling is that a neurologist may be helpful ... diagnosing that you have or do not have neuropathy ... type it is (e.g. small fiber, autonomic ... , etc.) but beyond that, from what I ... of things people are turning to for help
Support Group: Neuropathy
Posted: Jul 20, 2020
Hello @rdg063, I would like to add my welcome to Connect along with @rwinney and other...
As a member with idiopathic small fiber ... of information on neuropathy. ... : What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... is an article I think you may find helpful
Support Group: Neuropathy
Posted: Jul 7, 2020
Hello @rdelfin, Welcome to Connect. I think you came to the right place for information. There...
who have shared what has helped them ... other discussions you also might find helpful ... Journey Stories: What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... fiber peripheral neuropathy with my
Support Group: Neuropathy
Posted: Jun 27, 2020
Hi Rachel @rwinney, I had not heard the term before but think it is a great...
information I found when trying to learn what ... painful diabetic neuropathy: -- https ... fiber neuropathy: -- https://www.nature.com ... Fiber Neuropathy – Corneal Confocal ... www.pathlms.com/iasp/courses/11312 Hope this helps
Support Group: Eye Conditions
Posted: Jun 27, 2020
Hello @sunnyflower, I would like to add my welcome to Connect along with @kcshoemaker and other...
have shared their experience with what ... has helped them that you may be interested ... in: Ideas for pain relief from Small ... Fiber Neuropathy (SFN): -- https: ... connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy
Support Group: Neuropathy
Posted: May 8, 2020
I have the exact same problem of my hands, feet, and it is growing up both...
they haven't already given me to help ... The EMG shows the neuropathy but other ... in the small fiber neuropathy. ... So I don't know what to do to help ... in my bed because I don't know what
Support Group: Neuropathy
Posted: Apr 16, 2020
Hello @richade, Welcome to Mayo Clinic Connect. Thank you for sharing your story. I feel the...
I have idiopathic small fiber PN and ... I shared what has helped me in an earlier ... anyone-here-dealing-with-peripheral-neuropathy
Support Group: Neuropathy
Posted: Mar 22, 2020
Hello @neuroliz and welcone! I'm curious what kind of Dr you are referring to that is...
I'm curious what kind of Dr you ... that is suggesting stem cells for neuropathy ... my disease but, I was desperate for help ... My underlying cause of progressive small ... fiber polyneuropathy was B12 deficiency
Support Group: Neuropathy
Posted: Mar 12, 2020
Hello Larry @oldshep, Welcome to Mayo Clinic Connect. I also have idiopathic small fiber peripheral neuropathy....
I also have idiopathic small fiber peripheral ... neuropathy. ... I posted my story and what helps me ... anyone-here-dealing-with-peripheral-neuropathy ... frustrating trying to find something that helps
Support Group: Neuropathy
Posted: Jan 24, 2020
Hello @purplewillow, Welcome to Mayo Clinic Connect. I think it would be hard for anyone to...
I have idiopathic small fiber peripheral ... here: https://www.foundationforpn.org/what-is-peripheral-neuropathy ... > Small fiber peripheral neuropathy ... /connect.mayoclinic.org/discussion/small-fiber-peripheral-neuropathy-and-alcohol ... thing is that you are actively seeking help
Support Group: Neuropathy
Posted: Jan 21, 2020
Good afternoon, @beth11 and @llsalucier. I have two of the myoclonus symptoms: "sleep starts" and toes...
Did you mean not helping with your pain ... or not helping with the "sleep ... When do you take the Neurontin and at what ... don't know if that medication helps ... It does help with the small fiber neuropathy
Support Group: Brain & Nervous System
Posted: Dec 28, 2019
@jager5210, I found an article similar to what you describe but I'm not sure if it...
jager5210, I found an article similar to what ... fiber neuropathy. ... Hope this helps. ... PubMed -- Stronger evidence for small ... fiber sensory neuropathy in restless
Support Group: Brain & Nervous System
Posted: Nov 25, 2019
Hello Bryan, sorry about loss of job. I must stress the importance of filing for social...
eight +years of pure agony not knowing what ... misdiagnosed with MS, DX with SPS and Small ... Fiber Neuropathy the first year of ... to insufficient Neurologic care in small ... Let me know if I can help in any way
Support Group: Brain & Nervous System
Posted: Nov 4, 2019