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Comments (2,483)

Yes, I have asked. It is not lupus. That was the first thing they thought about....

https://connect.mayoclinic.org/comment/696010/

It is not lupus.

Newsfeed Post: Diagnostic testing, precision medicine and what it means for patients

Blog: Podcasts

Posted: Apr 4, 2022

Hi everyone, I am new to this group. I have been diagnosed with Tumid Lupus around...

https://connect.mayoclinic.org/comment/892995/

I have been diagnosed with Tumid Lupus ... anyone has successfully get their lupus

Discussion: Tumid Lupus

Support Group: Autoimmune Diseases

Posted: Jul 9, 2023

I take plaquenil, cymbalta, neurontin, and then supplements (they're my saving grace). To help with cognitive...

https://connect.mayoclinic.org/comment/117614/

fluorescent lights are much worse for my lupus ... I have searched all of the tumid lupus

Discussion: Tumid Lupus

Support Group: Autoimmune Diseases

Posted: Aug 11, 2017

A lot of rheumatologist, expect patients signs and symptoms and labs to meet all the criteria...

https://connect.mayoclinic.org/comment/1239626/

diagnosed simply because my classic lupus ... symptoms preceded laboratory evidence of lupus

Discussion: What could my doctor be overlooking? ANA 1:1280

Support Group: Autoimmune Diseases

Posted: Feb 18 6:57am

Everything was normal and then 2 days ago my little finger is bent out to the...

https://connect.mayoclinic.org/comment/1361670/

not rheumatoid my sister does have lupus

Discussion: Does anyone suffer from random hand cramping and finger contractures?

Support Group: Bones, Joints & Muscles

Posted: Aug 1 5:26pm

Good morning! I say I was misdiagnosed because my rheumatologist said I was misdiagnosed and that...

https://connect.mayoclinic.org/comment/1238850/

She said that patients with lupus have

Discussion: What could my doctor be overlooking? ANA 1:1280

Support Group: Autoimmune Diseases

Posted: Feb 17 7:11am

I have been diagnosed with PV as well. Confirmed after a bone marrow biopsy. I have...

https://connect.mayoclinic.org/comment/1292112/

been confusing because I also have Lupus

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 28 3:08pm

@slkanowitz , What an encouraging letter! Made ME feel better and I'm not even part of...

https://connect.mayoclinic.org/comment/1170632/

really understand, not having had GBS, Lupus

Discussion: CIDP diagnosis after severe GBS long ago, where do I start?

Support Group: Neuropathy

Posted: Nov 9, 2024

I too have MGUS and have intermittent M spikes on labs. Mine is lambda FLC also....

https://connect.mayoclinic.org/comment/1134423/

autoimmune conditions, like ITP and lupus

Discussion: How high has anyone seen Lambda free light chain go with Mgus?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2024

Yes my free light chain tests were abnormal. I have always had a very positive ANA...

https://connect.mayoclinic.org/comment/1064895/

I have a lupus diagnosis and a neuropathy

Discussion: Kappa and Lampda Serum Levels

Support Group: Neuropathy

Posted: May 9, 2024

Female here, I have the same problem you do. Large fiber PN and it is all...

https://connect.mayoclinic.org/comment/960710/

I have it from lupus.

Discussion: Frequent Urination and Large Fiber Neuropathy

Support Group: Neuropathy

Posted: Nov 7, 2023

Hi I have been tested for almost everything. They said no autoimmune markers. No arthritis no...

https://connect.mayoclinic.org/comment/714761/

No arthritis no lupus.

Discussion: Chronic pain and other joint issues: Looking for answers

Support Group: Bones, Joints & Muscles

Posted: Jun 6, 2022

You know it is just amazing to find your own journey in these posts. I have...

https://connect.mayoclinic.org/comment/705595/

By diagnosing Lupus.

Discussion: Dismissing doctors: How do you find a doctor who can help?

Support Group: Bones, Joints & Muscles

Posted: May 5, 2022

@JustinMcClanahan we really dont know where we are in this thing. He's started steroids and the...

https://connect.mayoclinic.org/comment/290957/

is a rare type of arthritis or even lupus

Discussion: Extreme Swelling in the Hand

Support Group: Bones, Joints & Muscles

Posted: Jan 30, 2020

@gemmax, Hello Gem. Thank you for sharing your Sjogren experience. My sister also has Sjogren's along...

https://connect.mayoclinic.org/comment/111312/

Sjogren's along with Systemic Lupus

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 6, 2018

@gailb Thank you for responding. Recently they have thrown an autoimmune disease into the mix but...

https://connect.mayoclinic.org/comment/95222/

They have apparently ruled out Lupus

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Mar 10, 2017

OH WOW!!!! Congrads I went to see my hematology my levels just go up high but...

https://connect.mayoclinic.org/comment/1170202/

I had my Physician run test for Lupus ... about this because it could either be Lupus

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2024

Diabetics get neuropathy whether it’s controlled or not. Over 1/2 the patients on this website is...

https://connect.mayoclinic.org/comment/1338242/

Then I got lupus, Hashimotos (autoimmune

Discussion: Depression

Support Group: Neuropathy

Posted: Jun 30 6:37am

I would get a 2nd opinion. I also only had high ANA titers- crazy high- but...

https://connect.mayoclinic.org/comment/1356787/

back it up does NOT mean necessarily lupus

Discussion: ANA positive for Lupus

Support Group: Autoimmune Diseases

Posted: Jul 26 9:47am

I have Sjogrens diagnosed by biopsies by an ENT went to the eye doctor be tested...

https://connect.mayoclinic.org/comment/1249930/

Lupus, asthma and hypothyroidism.

Discussion: Sjogren's Question

Support Group: Autoimmune Diseases

Posted: Mar 3 11:28pm