Frequent Urination and Large Fiber Neuropathy

Posted by Ray Kemble @ray666, Nov 6, 2023

Hello!

I'm meeting with my PCP tomorrow to discuss what I believe is my increased need to urinate. My bladder never feels 100% empty. I've always been a once- or twice-a-night urinater, but in the past half year, my need to go seems to have grown more insistent, now even pestering me during the day. As for my PN, I have large fiber PN: no pain, but lots of trouble with balance and walking. Does this sound familiar to anyone else?

Ray (@ray666)

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I have PN in my lower leg and foot on the left. Tried duloxetine which put me in seratonin syndrome with sweating, dizzy, diarrhea, stomach upset and GI upset. I quit it after 2 doses. Foot felt like it was on fire. I am very sensitive to drugs and wish I could get a trial of pills not 90 days.

I also was on cyclobenzaprine, a muscle relaxer for back pain, and that relaxed my bladder so much I couldn't control it at all. Off that now too. Am scheduled for pelvic floor PT to try to get things under control.

Be sure to check with the doctor all the side effects before you fill a Rx.

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Thank you, @daisy22, for reminding me of "side effects"! I think it's entirely likely that my PCP will suggest I try an OTC drug like Flomax. What I don't need are any additional symptoms! 😀 Thanks for bringing this up, as I'm about to leave to talk with my PCP. –Ray (@ray666)

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@ray666

Thank you, @daisy22, for reminding me of "side effects"! I think it's entirely likely that my PCP will suggest I try an OTC drug like Flomax. What I don't need are any additional symptoms! 😀 Thanks for bringing this up, as I'm about to leave to talk with my PCP. –Ray (@ray666)

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good luck!!

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@ray666 I try not to take liquids after 9PM other than small amounts of water with any before bed meds, it has helped, and I avoid caffeine after 6PM. If you can do this perhaps, you'll make it through the night.

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Female here, I have the same problem you do. Large fiber PN and it is all the way up to my glutes and crotch. It's pudendal nerve damage that causes the bladder issues. I have it from lupus. Have had it for 25 years. Sometimes I cough a couple of times to get the urine to completely empty. I've gotten used to these problems but it did ruin my quality of life.

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Hi Ray @ray666, I also have the problem not being able to completely empty the bladder which increases the number of trips to the bathroom at night. Mine is due to BPH and I take a generic Flomax daily in the evening that helps the problem. I've thought about the steam treatment vs the surgery but both particularly want to have either one done...yet.

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@daisy22

I have PN in my lower leg and foot on the left. Tried duloxetine which put me in seratonin syndrome with sweating, dizzy, diarrhea, stomach upset and GI upset. I quit it after 2 doses. Foot felt like it was on fire. I am very sensitive to drugs and wish I could get a trial of pills not 90 days.

I also was on cyclobenzaprine, a muscle relaxer for back pain, and that relaxed my bladder so much I couldn't control it at all. Off that now too. Am scheduled for pelvic floor PT to try to get things under control.

Be sure to check with the doctor all the side effects before you fill a Rx.

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Have you asked you pharmacy for a smaller amount of pills? I think they would work with you if you would ask them to unless of course if you get your meds by mail.

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@rllh5403

Have you asked you pharmacy for a smaller amount of pills? I think they would work with you if you would ask them to unless of course if you get your meds by mail.

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With the seratonin reaction, I can't take them. The Dr wrote for three months and the pharmacist can't change that. Such a system now with meds.

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