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Comments (1,322)

I'm amazed at everything that is being tried for PMR/GCA. I was only offered long term...

https://connect.mayoclinic.org/comment/1019701/

Now Kevzara is another option.

Discussion: PMR inflamation management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21, 2024

I am currently seeing a rheumatologist at UPenn and was lucky to get an appointment within...

https://connect.mayoclinic.org/comment/995953/

quagmire of applying for assistance for Kevzara

Discussion: Have an appointment with rheumatology at Perelman Center - UPenn

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12, 2024

I started an anti-inflammatory diet as soon as I was diagnosed --it's not all that different...

https://connect.mayoclinic.org/comment/888326/

They even suggest this on the Kevzara

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 1, 2023

My GP diagnosed my PMR, prescribed prednisone then referred me to a rheumatologist. My GP also...

https://connect.mayoclinic.org/comment/1247419/

Other than offering to prescribe Kevzara

Discussion: Are specialists necessary?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28 1:16pm

In the initial onset of this crazy thing PMR, nothing helps! Throbbing muscles, shoulder and hip...

https://connect.mayoclinic.org/comment/1354926/

Still tapering and started Kevzara.

Discussion: Polymyalgia rheumatica: Any thoughts on my taper plan?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 23 7:43pm

I am an avid cyclist. One day Im ridimg 50 miles a day the next I...

https://connect.mayoclinic.org/comment/1428287/

I am on Kevzara now and have gotten

Discussion: Does anyone else feel isolated and misunderstood?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 1 12:04pm

I think this is a simple way to communicate the logically possible outcomes for PMR. I...

https://connect.mayoclinic.org/comment/1126688/

important to remember that the biologic Kevzara ... 8 to 10 mg of Pred when I started Kevzara

Discussion: Grouped Into 3 Buckets

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 19, 2024

Hi G, I was diagnosed with PMR in 2016 after knee replacement and possible GCA. Was...

https://connect.mayoclinic.org/comment/1121688/

only, new rheumatologist suggests Kevzara ... pain and morning stiffness from Kevzara

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2024

Actemra (tocilizumab) was FDA approved to treat GCA back in 2017. I was started on Actemra...

https://connect.mayoclinic.org/comment/1257180/

That was long before Kevzara was FDA ... Kevzara will be tried if Actemra stops

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13 3:07pm

Hi hope, Just noticed your message regarding your eyes. I had bruising on the inside of...

https://connect.mayoclinic.org/comment/1124237/

I’ve tried methotrexate and now Kevzara

Discussion: Prednisone Side Effects and Withdrawal Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 15, 2024

I am about to start Kevzara but would not have been able to since the cost...

https://connect.mayoclinic.org/comment/1014221/

I am about to start Kevzara but would

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 12, 2024

New to the group. Initial diagnosis from PCP was PMR. Everything I read and felt told...

https://connect.mayoclinic.org/comment/1435401/

I was convinced I was going to use Kevzara

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 10 2:45pm

"My rheumatologist, "my endocrinologist", LOL. Here PMR patients can't even get a referral accepted by any...

https://connect.mayoclinic.org/comment/1144087/

t even get methotrexate, much less Kevzara

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19, 2024

Your story gives me hope. I’ve been on Pred for over 10 years and nothing else...

https://connect.mayoclinic.org/comment/1361263/

The biologic’s haven’t helped and Kevzara

Discussion: PMR at a young age

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1 8:55am

Hi, I've been diagnosed with PMR and have been on prednisone for 12 months. (continuing to...

https://connect.mayoclinic.org/comment/1246539/

continuing to taper with the benefit of Kevzara

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 27 10:29am

It's my understanding the maximum out-of-pocket cost for prescription drugs under Medicare Part D is capped...

https://connect.mayoclinic.org/comment/1258721/

I also believe Kevzara is now covered

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 15 2:15pm

@dadcue I was diagnosed with Crohns in the late 90’s. I started prednisone in the fall...

https://connect.mayoclinic.org/comment/1409289/

flare last fall I agreed to start KEVZARA

Discussion: Prednisone to Kevzara back to Prednisone. ( Hope not )

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 5 10:33pm

@dadcue After discovering I had Hypoglycaemia 3 months ago, I stopped taking Actemra and had good...

https://connect.mayoclinic.org/comment/1437733/

wondering if another biologic like me Kevzara

Discussion: How does your pain come back when decreasing dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 13 1:31pm

Don't expect an immediate change when starting Kevzara but try to be optimistic. Kevzara doesn't come...

https://connect.mayoclinic.org/comment/1079756/

an immediate change when starting Kevzara ... Kevzara doesn't come with any guarantees ... Good Luck ...your experience with Kevzara

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

@paulagcl, Your previous post was here in the PMR treatment w Kevzara discussion - https://connect.mayoclinic.org/comment/890320/. If...

https://connect.mayoclinic.org/comment/890362/

post was here in the PMR treatment w Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2023