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Comments (1,323)

I agree to NOT amputate as it might cause even worse symptoms, such as phantom limb...

https://connect.mayoclinic.org/comment/159924/

pain, which in itself can be like CRPS ... Organization of Rare Diseases lists CRPS

Discussion: CRPS - anyone suffering with complex regional pain syndrome

Support Group: Chronic Pain

Posted: Nov 15, 2019

I have CRPS that began in my left foot and has since spread to both feet...

https://connect.mayoclinic.org/comment/1192668/

I have CRPS that began in my left foot ... specializes in treating the symptoms of CRPS

Discussion: Complex regional pain syndrome (CRPS) and feeling blank

Support Group: Chronic Pain

Posted: Dec 18, 2024

Hi, I have CPRS and it does affect your enter body. Please get on YouTube and...

https://connect.mayoclinic.org/comment/1120748/

My CRPS affects my digestive system, ... I have had CRPS for 24 years and just

Discussion: CRPS - anyone suffering with complex regional pain syndrome

Support Group: Chronic Pain

Posted: Aug 9, 2024

I’ve gotten a lot of relief from my Boston Scientific, too!! I’m about 90-95% better! It...

https://connect.mayoclinic.org/comment/784996/

weight off that I have gained since my CRPS

Discussion: RSD/CRPS

Support Group: Brain & Nervous System

Posted: Dec 15, 2022

You’re so sweet. My pen name (and real one for that matter lol) is Renee Blare....

https://connect.mayoclinic.org/comment/290227/

Renee Blare - CRPS 3.

Discussion: Peripheral nerve stimulators

Support Group: Neuropathy

Posted: Dec 9, 2020

I have CRPS in my left knee - was in a wheelchair, insane pain for 2...

https://connect.mayoclinic.org/comment/159973/

I have CRPS in my left knee - was in

Discussion: CRPS - anyone suffering with complex regional pain syndrome

Support Group: Chronic Pain

Posted: Nov 7, 2020

@lisagraber Hey there, I do have CRPS and Allodynia pretty bad. I'm actually meeting with a...

https://connect.mayoclinic.org/comment/687031/

@lisagraber Hey there, I do have CRPS

Discussion: Has anyone tried Scrambler Therapy for neuropathy or for pain?

Support Group: Neuropathy

Posted: Mar 6, 2022

Thank you so much for your kind words and helpful advice. I'll definitely try to contact...

https://connect.mayoclinic.org/comment/89167/

to contact your doctor and the rsd,/crps

Discussion: Complex regional pain syndrome or reflex sympathetic dystrophy

Support Group: Chronic Pain

Posted: Feb 19, 2019

Hello @charwill234, welcome to Connect. I am sorry to hear your desperation that you are feeling...

https://connect.mayoclinic.org/comment/95159/

active discussion regarding their RSD/CRPS

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Feb 28, 2017

Yes, I had L4-L5 fusion in October "22 the surgeon knicked my dura during surgery and...

https://connect.mayoclinic.org/comment/890057/

right leg hamstring down to calf and CRPS

Discussion: Anyone been diagnosed with arachnoiditis after spine surgery?

Support Group: Spine Health

Posted: Jul 4, 2023

After searching the web (being my own advocate) I ended up calling the mayo clinic in...

https://connect.mayoclinic.org/comment/873300/

As far as somebody that understands CRPS

Discussion: New to CRPS complex regional paint syndrome: want to talk

Support Group: Chronic Pain

Posted: Jun 6, 2023

@chuck406 Welcome to Mayo Clinic Connect. I am so happy to hear that you had a...

https://connect.mayoclinic.org/comment/742369/

came on or were you diagnosed with CRPS

Discussion: Complex regional pain syndrome (CRPS) and feeling blank

Support Group: Chronic Pain

Posted: Aug 27, 2022

Wow some road can't imagine the battles I do know that my initial injuries stink to...

https://connect.mayoclinic.org/comment/741882/

stiffness and too boot I believe the crps

Discussion: Complex regional pain syndrome (CRPS) and feeling blank

Support Group: Chronic Pain

Posted: Aug 26, 2022

I don’t have CRPS but I have a lot of crazy chronic pain that can be...

https://connect.mayoclinic.org/comment/669311/

I don’t have CRPS but I have a lot of

Discussion: CRPS - anyone suffering with complex regional pain syndrome

Support Group: Chronic Pain

Posted: Jan 9, 2022

Molly, Thanks for your reply and the links for more information. My daughter lives in Arkansas,...

https://connect.mayoclinic.org/comment/335939/

to help with the daily headaches, CRPS

Discussion: Stem cells for Autoimmune Diseases

Support Group: Autoimmune Diseases

Posted: Mar 2, 2021

I have had my Boston Scientific stimulator since 2012. That was replaced in 2018 with a...

https://connect.mayoclinic.org/comment/286224/

helpful for my neuropathy in my legs and CRPS

Discussion: Anyone used Spinal Cord Stimulation for pudendal nerve entrapment?

Support Group: Chronic Pain

Posted: Dec 14, 2019

I have retractable CRPS in my left foot and ankle getting much worse with age (I'm...

https://connect.mayoclinic.org/comment/159903/

I have retractable CRPS in my left foot

Discussion: CRPS - anyone suffering with complex regional pain syndrome

Support Group: Chronic Pain

Posted: Sep 25, 2018

Not sure if my other response will load. Second time I've lost a comment with depth...

https://connect.mayoclinic.org/comment/742400/

Officially diagnosed with CRPS in fall ... the leg (not sure if warm and cold CRPS ... Analgesics long term make CRPS worse ... as symptoms progress into chronic CRPS ... The most promising development in CRPS

Discussion: Complex regional pain syndrome (CRPS) and feeling blank

Support Group: Chronic Pain

Posted: Aug 27, 2022

I also have CRPS that I've had in my right foot for about 6 years now....

https://connect.mayoclinic.org/comment/1296329/

I also have CRPS that I've had in

Discussion: CRPS - anyone suffering with complex regional pain syndrome

Support Group: Chronic Pain

Posted: May 4 9:55am

I have a spinal cord implant. Boston Scientific. I love it. Unfortunately, i also needed to...

https://connect.mayoclinic.org/comment/1158349/

I have CRPS and arthritis.