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Comments (10,000+)

The Cubii was issued to me by the VA for being enrolled in the MOVE program....

https://connect.mayoclinic.org/comment/1149774/

I'm amazed that PMR didn't seem ... pain was when I was diagnosed with PMR ... serious damage but I don't think PMR

Discussion: Exercise

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 30, 2024

Your story makes me want to stop Actemra. I'm aware that serious infections are possible. Were...

https://connect.mayoclinic.org/comment/925569/

willing to try stopping it because PMR ... may have helped the uveitis but my PMR ... restarted to prevent uveitis but my PMR

Discussion: What's your experience with Actemra for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 7, 2023

I am a very active 60 year old semi retired health care worker . My PMR...

https://connect.mayoclinic.org/comment/852604/

My PMR came in suddenly and severely ... believe I had a perfect storm For PMR ... health care relating the vaccine to PMR

Discussion: Diet & PMR.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 1, 2023

I did not go on steroids. And so far, very glad I didn't. My pain started...

https://connect.mayoclinic.org/comment/1176304/

Back to pre-PMR levels.

Discussion: Do not want to take steroids.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 19, 2024

I too have severe thigh pain in the a.m. it does get better in an hour...

https://connect.mayoclinic.org/comment/1161874/

spine and leg issues I have were from PMR

Discussion: PMR with normal labs and having severe thigh pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 24, 2024

I can relate exactly how you are feeling while on prednisone! There’s no magic formula for...

https://connect.mayoclinic.org/comment/1144755/

PMR for me is very very disconcerting

Discussion: PMR and prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2024

Good luck! I've was on Actemra weekly injections for a year with minimal side effects and...

https://connect.mayoclinic.org/comment/1139473/

event that is most consistent with PMR

Discussion: Just Started Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 10, 2024

there is a wonderful book called YOUR Bones by Lisa Pizzoli )sp)? and there are exercises...

https://connect.mayoclinic.org/comment/1127198/

I started off with PMR and prednisone

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 20, 2024

Yes. I experienced quad and calf symptoms as my body adjusted to zero prednisone. About 8...

https://connect.mayoclinic.org/comment/1118890/

been walking throughout my active PMR

Discussion: PMR with only lower body pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 6, 2024

Hi all- I has just been diagnosed a few weeks ago with PMR. I was on...

https://connect.mayoclinic.org/comment/1107200/

been diagnosed a few weeks ago with PMR

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 17, 2024

I had cortisone shot in right shoulder for PMR pain while tapering off prednisone, only helped...

https://connect.mayoclinic.org/comment/1093186/

cortisone shot in right shoulder for PMR

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 24, 2024

A quick note about the toilet issue. I am new to PMR (2 months) and am...

https://connect.mayoclinic.org/comment/1087367/

I am new to PMR (2 months) and am slowly

Discussion: Prednisone to Kevzara back to Prednisone. ( Hope not )

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 15, 2024

I would not accept being “stuck” if you are having severe pain. Presuming your pain is...

https://connect.mayoclinic.org/comment/1072273/

Presuming your pain is PMR, it is probably

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21, 2024

My rheumatologist told me the opposite. She said if I’m still experiencing pain, PMR is still...

https://connect.mayoclinic.org/comment/1071988/

said if I’m still experiencing pain, PMR

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21, 2024

I had the same thing a couple of months back and was worried it might be...

https://connect.mayoclinic.org/comment/1050309/

injuries seem to come on more easily with PMR

Discussion: Unrelenting neck/shoulder spasms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 13, 2024

@detc, Interesting...I can't take the vaccines either and have had 2 covid infections in the last...

https://connect.mayoclinic.org/comment/1003385/

months with several residual illnesses, PMR

Discussion: Anyone lucky enough to get Monoclonal Antibodies?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 25, 2024

My sister was on Red Yeast Rice for a few yaers and was just diagnosed with...

https://connect.mayoclinic.org/comment/986895/

years and in Sept of 2017 developed PMR

Discussion: Diagnosed with PMR shortly after starting statin drug.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 26, 2023

I've had restless leg syndrome, which is similar to leg cramps, but more of a sudden,...

https://connect.mayoclinic.org/comment/980659/

think the inflammatory response to PMR

Discussion: Anyone having problems with leg cramps during the night?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 14, 2023

Hi @lindapayton, I would like to add my welcome to Connect along with @megz and others....

https://connect.mayoclinic.org/comment/971612/

that might be helpful: --- Steroids/PMR

Discussion: One month on prednisone. Bloodwork showed neutrophil high/lymphocytes

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 28, 2023

I have just started Actemra in conjunction with 6mg of prednisone for GCA. I previously had...

https://connect.mayoclinic.org/comment/963679/

I previously had PMR about 8 years ago

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 12, 2023