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979 total results
Comments (950)
Thank-you. I didn't know what to expect if Actemra ever stopped working. I thought it would...
didn't know what to expect if Actemra ... #39;m not sure what will happen if Actemra ... People with PMR are basically given ... Then we are told to wait until PMR goes ... than prednisone for most people with PMR
Posted: Jan 25, 2024
I took methotrexate as an adjunct to prednisone. In my case, it was used as a...
Its effectiveness for PMR has mixed ... developing antibodies to my biologic Actemra ... haven't developed antibodies to Actemra ... Actemra still seems to work for me so ... there might be a greater risk when Actemra
Posted: Jan 24, 2024
"The pathway forward is to get pred down below 10 and then off ..." That sounds...
inflammation pathway implicated with PMR ... I took Actemra but no reason to believe ... 10 mg to zero was easy when I took Actemra ... Actemra is preventing PMR flares from
@pag1949, you may also be interested in this related discussion: - Actemra (Tocilizumab) to treat PMR??...
interested in this related discussion: - Actemra ... (Tocilizumab) to treat PMR?? ... /connect.mayoclinic.org/discussion/actemra-tocilizumab-to-treat-pmr
I had difficulty coming off prednisone after starting Actemra. It took me an entire year to...
coming off prednisone after starting Actemra ... I had to persevere with Actemra but ... insufficiency can be very similar to PMR ... thought my symptoms were caused by PMR ... Your PMR/GCA symptoms may gradually
Hi Krueg, I was diagnosed with GCA and PMR in 2017. I was on 60-80mg of...
Krueg, I was diagnosed with GCA and PMR ... for 8 months and then switched to Actemra ... I stayed on Actemra until Nov of 2021 ... Actemra weakens your immune system so
I liked your story! I hope Kevzara will work for you. I wanted to add something...
something about inflammation markers or PMR ... When I started Actemra (tocilizumab) ... Actemra and Kevzara both target the ... This is true for Actemra (tocilizumab ... Actemra interrupts the production of
Posted: Dec 4, 2023
Not being able to taper gracefully is a good way to describe it. There was nothing...
Kevzara (sarilumab) was FDA approved for PMR ... fda-approves-sarilumab-for-the-treatment-of-adults-with-glucocorticoid-resistant-pmr ... Actemra (tocilizumab) helped me taper ... Actemra is FDA approved for GCA. ... Kevzara and Actemra target the same
Thank you for your words, which have given me hope. I am so glad to hear...
to hear about your experience with Actemra ... whole journey in October 2018 with PMR ... continue to feel like this when (if) on Actemra ... that she thinks I'd need to be on Actemra
Discussion: GCA conserns
Posted: Nov 30, 2023
Charlotte. I had PMR somewhere back around 2011 when I finally got off prednisone 2014 I...
I had PMR somewhere back around 2011 ... He too knew very little about PMR and ... However, I am still on prednisone and Actemra
Posted: Nov 26, 2023
I'm happy Actemra works for you. I'm going in the opposite direction with Actemra. I started...
I'm happy Actemra works for you. ... going in the opposite direction with Actemra ... PMR was under control but a low cortisol ... off prednisone while on Humira when PMR ... Weekly injections of Actemra worked
Posted: Nov 5, 2023
@curtvapor How long have you taken Actemra? My adrenals recovered in spite of 12 years of...
curtvapor How long have you taken Actemra ... spite of 12 years of prednisone for PMR ... My symptoms were controlled on Actemra ... Now I have been on Actemra for almost ... thinks I'm better off being on Actemra
Posted: Nov 4, 2023
Be patient and hopefully Kevzara works for you. I didn't really know Actemra was working until...
I didn't really know Actemra was ... having a flare or any increase in PMR ... prednisone, my rheumatologist said PMR ... I still take Actemra and my rheumatologist ... thinks being off prednisone and on Actemra
I took prednisone for more than 30 years for a variety of autoimmune problems but GCA...
I'm not sure PMR and/or GCA responds ... happened during the 15 years before PMR ... age of 40 during the 15 years before PMR ... 13 years of taking prednisone for PMR ... daily wasn't that bad as far as PMR
Posted: Oct 21, 2023
Thank-you for the information about the 2023 ARC meeting. The 7 mg dose is a hard...
arthritis and uveitis in addition to PMR ... PMR complicated things after it was ... dose to under 10 mg after 12 years of PMR ... Actemra changed everything for me. ... 15 mg of prednisone again except my PMR
Hi @emer, I see that you have already connected with another new member @curtvapor. I would...
helpful. --- Actemra (Tocilizumab) ... to treat PMR?? ... /connect.mayoclinic.org/discussion/actemra-tocilizumab-to-treat-pmr ... (Tocilizumab) with PMR? ... discussion/how-hard-is-it-to-get-on-actemra-tocilizumab-with-pmr
Posted: Oct 20, 2023
Actemra is FDA approved for the treatment of GCA. I hope Actemra works for you. I...
Actemra is FDA approved for the treatment ... I hope Actemra works for you. ... #39;t diagnosed with GCA but I had PMR ... needed to seek approval to prescribe Actemra
Posted: Oct 18, 2023