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1,052 total results
Comments (946)
Hey Woody319, I have Raynaud's and doctors do not seem to be concerned about it at...
My hands and feet stay cold (I have ... When I pick up anything cold, such as ... other autoimmune diseases such as Lupus
Support Group: Autoimmune Diseases
Posted: May 4, 2024
I too suffered for years not knowing what was wrong. Similar symptoms and every neurologist said...
definitely something going on either Lupus ... my legs and hips and at one point could ... a Rheumatologist in UCLA and they couldn ... No one could figure it out. ... It was horrible and I could not function
Mine have been hazy since 2002 when I had bacterial spinal meningitis. No on would listen...
No on would listen to me about my feet ... No one would try IVIG therapy so I have ... In my chart one doctor says Lupus another
Support Group: Neuropathy
Posted: May 2, 2024
I have had sle for 40+ years and have studied and experienced it in depth. Here’s...
Could you elaborate on those with a ... wondering if you have had symptoms of lupus ... Symptoms of lupus can precede the lab ... A skin biopsy by a dermatologist would ... I would encourage you to be proactive
Support Group: Autoimmune Diseases
Posted: Apr 14, 2024
Glad I found this thread. I was vaccinated in Feb 2022 and in March 2023, I...
After COVID, I would wake up every morning ... that affects the neurological system (Lupus
Support Group: Sleep Health
Posted: Apr 3, 2024
@sunscominup I meant to also say that it is concerning your doctor is dismissing you and...
I would get a new doctor for sure and ... My mom had RA/lupus/Hashimotos/fibromyalgia ... The only way I could get officially ... rose above 4+ and at that point I could
I will be truthful. I have had several neurologist tell me this mimics Parkinson’s and MS....
The doctors have it narrowed to RA, lupus ... hot they feel good when he puts his cold ... A regular neurologist could not answer ... but it explained why no neurologist could ... up in the middle of the night and could
Support Group: Neuropathy
Posted: Mar 11, 2024
Gosh, I feel like I'm late to the party.....all the posts are from 2023! I was...
For symptoms, I could cut and paste ... something I've never heard of that could ... platelets, tested positive for both lupus ... I would be interested in talking to
Support Group: Autoimmune Diseases
Posted: Feb 29, 2024
I lost my job because I could not get into a Neurologist in Michigan. After many...
I lost my job because I could not get ... She had Migraines, Lupus, Kidney and ... I would walk crushed glass to get to
Your platelets, if low as well, might cause nosebleeds. I would avoid aspirin, ibuprofen and naproxen...
I would avoid aspirin, ibuprofen and ... Lupus is the main autoimmune condition ... but I would caution you not to try
Posted: Feb 12, 2024
Accidentally found to have monoclonal gammopathy from a biopsy because I was anemic and they couldn’t...
biopsy because I was anemic and they couldn ... Then I received a diagnosis of lupus ... I wasn’t aware the two could be related
Posted: Jan 29, 2024
I have nystagmus when I have a full on vertigo attack. My eyes uncontrollably jerk around...
My neurotologist said it could be Autoimmune ... I also have lupus. ... U) said the treatment would be the same
Thankyou so much for responding!I am sorry that you are going through this as well.I was...
so many people in our Family with Lupus ... working in Healthcare during Covid it would ... walk.My WBC Esterase was abnormal which could ... complement C3 Serum was elevated which could ... Best Doctor at John's Hopkins could
Support Group: Infectious Diseases
Posted: Dec 22, 2023
Hey, I have had 3 positive ANA/Lupus tests, too, and still told I don't have Lupus,...
Hey, I have had 3 positive ANA/Lupus ... too, and still told I don't have Lupus ... The rheumatologist told me that I would
Support Group: Autoimmune Diseases
Posted: Dec 19, 2023