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Comments (2,395)

Fall 2024, I had PSA 6, Gleason 7(3+4, 4+3),December PET indicated N1M0 with activity in right...

https://connect.mayoclinic.org/comment/1304961/

I started Orgovyx Christmas Eve and ... Doctor wants me on Orgovyx 24 months

Discussion: Taking Orgovyx long term

Support Group: Prostate Cancer

Posted: May 15 5:36pm

My intent is to request switching from Orgovyx to Nubeqa at 12 months. There are some...

https://connect.mayoclinic.org/comment/1306128/

intent is to request switching from Orgovyx ... Typically doctors add Nubeqa to Orgovyx

Discussion: Taking Orgovyx long term

Support Group: Prostate Cancer

Posted: May 17 10:57am

Thanks, Jeffmarc, I am hoping my constipation will improve somewhat after I get off the Orgovyx...

https://connect.mayoclinic.org/comment/1204833/

improve somewhat after I get off the Orgovyx

Discussion: Any Tips For Radiation Patients Who Suffer Constipation?

Support Group: Prostate Cancer

Posted: Jan 5 8:09pm

Thank you. I didn't realize there was a short term protocol available. My obvious concern was...

https://connect.mayoclinic.org/comment/1223742/

returned to normal after stopping Orgovyx

Discussion: High fasting glucose of 115 after 7 mos on Orgovyx

Support Group: Prostate Cancer

Posted: Jan 28 9:24am

You are very thoughtful. I have lost both erections and climaxes while on Orgovyx, and my...

https://connect.mayoclinic.org/comment/1369339/

both erections and climaxes while on Orgovyx

Discussion: Any suggestions for the wife on how to support my husband?

Support Group: Prostate Cancer

Posted: Aug 12 5:34pm

You are spot on with the cardiotoxicity of Orgovyx. No matter what hormone therapy you choose,...

https://connect.mayoclinic.org/comment/1242215/

spot on with the cardiotoxicity of Orgovyx

Discussion: Difficulty In Deciding on IMRT or Proton Therapy

Support Group: Prostate Cancer

Posted: Feb 21 11:12am

An ARSI can extend the effective period of ADT like Orgovyx by many years by delaying...

https://connect.mayoclinic.org/comment/1066748/

extend the effective period of ADT like Orgovyx

Discussion: Will Orgovyx (relugolix) Reduce Prostate Cancer without Radiation?

Support Group: Prostate Cancer

Posted: May 12, 2024

@mothergoose1, don't forget that not everyone experiences all the side effects listed as possible side effects....

https://connect.mayoclinic.org/comment/819273/

oncologist about potential alternatives to Orgovyx

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Mar 1, 2023

No - my husband just had a total knee replacement on March 4th. He has been...

https://connect.mayoclinic.org/comment/1269227/

He has been on Xtandi & Orgovyx

Discussion: Anyone had a knee replacement while on ADT?

Support Group: Prostate Cancer

Posted: Mar 29 9:45am

@toolbelt I'm just a Prostate cancer rookie. Still learning all the above and took my initial...

https://connect.mayoclinic.org/comment/1098135/

the above and took my initial 3 dose ORGOVYX

Discussion: T and PSA levels 6 month post SBRT and 1 month post Orgovyx

Support Group: Prostate Cancer

Posted: Jul 2, 2024

Hey Johnw, Orgovyx suppresses T, which feeds your cancer. It does NOT kill it. It weakens...

https://connect.mayoclinic.org/comment/1285847/

Hey Johnw, Orgovyx suppresses T, which

Discussion: What do you do when one lymph node on PSMA is inconclusive ?

Support Group: Prostate Cancer

Posted: Apr 20 7:41am

Mine was 682 and I had no symptoms until about 2 months prior. My primary care...

https://connect.mayoclinic.org/comment/1379585/

shots immediately, later changing to Orgovyx

Discussion: Last PSA Number Before Cancer Diagnosis?

Support Group: Prostate Cancer

Posted: Aug 26 8:48am

Firmagon and Orgovyx are both GnRH antagonists, so they should work more-or-less the same way, but...

https://connect.mayoclinic.org/comment/1354828/

Firmagon and Orgovyx are both GnRH antagonists

Discussion: 1st PSA test seven weeks after surgery

Support Group: Prostate Cancer

Posted: Jul 23 4:23pm

I don't think they'd call my cancer "advanced" they didn't find any metastasis in my PSMA...

https://connect.mayoclinic.org/comment/777848/

I've been on Orgovyx since my PSA

Discussion: Eligard - 1 mo. , 3 mo., 6 months: any difference in side effects?

Support Group: Prostate Cancer

Posted: Nov 27, 2022

My experience on orgovyx for 6 months was hot flashes through the day and night it...

https://connect.mayoclinic.org/comment/1392675/

My experience on orgovyx for 6 months

Discussion: Orgovyx done. What to expect?

Support Group: Prostate Cancer

Posted: 6 days ago

Hi...I'm being treated for G9 too. Unfortunately, my PSMA PET lit up like a Christmas tree....

https://connect.mayoclinic.org/comment/1351777/

Currently on doublet therapy (Orgovyx

Discussion: Being treated for Gleason 9

Support Group: Prostate Cancer

Posted: Jul 19 1:53pm

I am about a month post Orgovyx six month regime and I still get hit with...

https://connect.mayoclinic.org/comment/1368205/

I am about a month post Orgovyx six

Discussion: How Much Exercise during ADT?

Support Group: Prostate Cancer

Posted: Aug 11 9:03am

Seven months on Orgovyx, each month tougher than the previous. Daily changes of clothing from sweats,...

https://connect.mayoclinic.org/comment/1341640/

Seven months on Orgovyx, each month

Discussion: Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 5 12:27pm

Going to get salvage radiation, the 5 day treatment, starting next week, one every other day....

https://connect.mayoclinic.org/comment/1350235/

Just wondering how Orgovyx worked for

Discussion: Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 17 10:33am

That's great news! No guarantee, but since it's started off so well, here's hoping you'll stay...

https://connect.mayoclinic.org/comment/1348145/

years, I'm still tolerating my Orgovyx

Discussion: ADT/ARI treatment - 1 month in

Support Group: Prostate Cancer

Posted: Jul 14 1:30pm