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89 total results
Comments (78)
Hi, I feel for your frustration. I, too, am experiencing some frustration too as my O/H...
https://connect.mayoclinic.org/comment/1250438/
to maybe “might be transitioning to Primary ... Melofibrosis (PMF) which is treated
I just returned from my first 6 month check up at Moffitt Cancer Center near where...
https://connect.mayoclinic.org/comment/1258442/
My diagnosis is Primary MF meaning I ... and a Facebook support group called Myelofibrosis
Hi, I agree that the whole person approach is better. I finally have a decent primary...
https://connect.mayoclinic.org/comment/1275734/
I finally have a decent primary doctor ... saw the O/H and she feels I do have Myelofibrosis
I was diagnosed with Myelofibrosis almost 2 1/2 years ago. Lost 50 pounds, have tremendous fatigue,...
https://connect.mayoclinic.org/comment/1005596/
I was diagnosed with Myelofibrosis almost ... coming from the ECD as opposed to the Myelofibrosis ... Bad primary!!! ... that you think are coming from your Myelofibrosis
I can relate to blindsided, I was diagnose with Primary myleofibrousis (anemic) in July 2023. I...
https://connect.mayoclinic.org/comment/1275379/
to blindsided, I was diagnose with Primary ... myleofibrousis (anemic) in July 2023 ... symptoms only related to Jakafi and myleofibrousis
Fantastic. If you scroll to the bottom of this information from Mayo Clinic, you'll find a...
https://connect.mayoclinic.org/comment/1103248/
www.mayoclinic.org/diseases-conditions/myelofibrosis ... For myelofibrosis, some basic questions ... What are the alternatives to the primary
Hi @sonja239. I understand your duress with having received news that you have two myeloproliferative blood...
https://connect.mayoclinic.org/comment/1097321/
https://www.healthline.com/health/primary-thrombocythemia ... You mentioned MF…myelofibrosis. ... Myelofibrosis is a bone marrow cancer ... www.mayoclinic.org/diseases-conditions/myelofibrosis ... enlarged spleen can be a side effect of myelofibrosis
Hi chrisatwell I am 65 and was diagnosed with ET on January 10, 2025 which my...
https://connect.mayoclinic.org/comment/1267651/
2025 which my O/H changed to maybe Myelofibrosis ... decent appointments with my finally new primary ... I appreciate that my primary doc, rheumatologist ... I had ET and then changed that to Myelofibrosis
Hi cindy e m, Thank you so much for posting. If you do not mind sharing,...
https://connect.mayoclinic.org/comment/1298131/
morning per my finally found decent primary ... you when you finally learned you had Myelofibrosis
Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...
https://connect.mayoclinic.org/comment/1050553/
ET, PV (polycythemia vera) or MPF (myelofibrosis ... https://www.healthline.com/health/primary-thrombocythemia
Hi...I have a condition called Myeloid/lymphoid neoplasms with PCM1-JAK2. My first indication of something wrong was...
https://connect.mayoclinic.org/comment/132623/
wrong was in the summer of 2017 My primary ... Frauenshuh Cancer Center where the term myelofibrosis
et1055, I found this comment from Colleen, one of our monitors, on another thread. I myself...
https://connect.mayoclinic.org/comment/1168338/
myelofibrosi? ... pesterthief, I found this information:
"Primary ... idiopathic myelofibrosis is a rare ... pmc.ncbi.nlm.nih.gov/articles/PMC6557368/#:~:text=Primary ... %20idiopathic%20myelofibrosis%20is%20a
@pesterthief, I found this information: "Primary idiopathic myelofibrosis is a rare myeloproliferative condition which can present...
https://connect.mayoclinic.org/comment/1168109/
pesterthief, I found this information:
"Primary ... idiopathic myelofibrosis is a rare ... pmc.ncbi.nlm.nih.gov/articles/PMC6557368/#:~:text=Primary ... %20idiopathic%20myelofibrosis%20is%20a
My mom(75yr old) was recently diagnosed with AML-M7 (acute megakaryoblastic leukemia) which progressed from JAK2 myelofibrosis...
https://connect.mayoclinic.org/comment/1250454/
leukemia) which progressed from JAK2 myelofibrosis ... I'll be primary carer (eldest daughter
Hi Steve, Becky has the JAK2 mutation which, from my understanding, makes primary ET more likely,...
https://connect.mayoclinic.org/comment/1154236/
which, from my understanding, makes primary ... myeloproliferative disorder, such as ET, PV, myelofibrosis
I had horrible thorax itching years before being diagnosed with Myelofibrosis. No specialist could determine the...
https://connect.mayoclinic.org/comment/875274/
years before being diagnosed with Myelofibrosis ... My primary at that time laughed at me ... itching was likely the first sign of the Myelofibrosis
I have gotten my platelets down to 388,000 but it has take a long time and...
https://connect.mayoclinic.org/comment/792897/
The composite primary end point was ... hydroxyurea group to have reached the primary ... hemorrhage (P=0.008), and transformation to myelofibrosis
My first meeting with an oncologist after an accurate diagnosis of Primary Mylofibrosis was disturbing. She...
https://connect.mayoclinic.org/comment/1313191/
oncologist after an accurate diagnosis of Primary ... Mylofibrosis was disturbing.
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