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651 total results
Comments (610)
@dlydailyhope I was unusually fortunate to have been diagnosed within the first 6 months nearly 40...
Back then it was called CFS then CFIDS ... and more recently ME/CFS. ... It’s not uncommon for people with ME ... /CFS to also have small or large fiber ... https://solvecfs.org/me-cfs-long-covid
Support Group: Neuropathy
Posted: Oct 15 10:51pm
Hi @2yorkiesmom , I’m so sorry you’re struggling to find answers. I totally understand because I’ve...
totally understand because I’ve had ME ... /CFS for almost 40 years. ... Mine,as did a many others with ME, began ... /CFS? ... https://solvecfs.org/me-cfs-long-covid
Posted: Sep 26 1:29pm
@alineechelard - we are always expanding and evolving the community as it grows. In the meantime,...
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments" - https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Support Group: Fibromyalgia
Posted: Oct 18, 2024
I have been following the research and evolution of the understanding of Long Covid for several...
many parallels between symptoms of ME ... /CFS and Long Covid, and the thought ... , which has been doing research in ME ... /CFS for years, and is now one of the
Support Group: Fibromyalgia
Posted: Nov 8, 2024
@SusanEllen66, it is good that you continue to seek answers for what you are experiencing. That...
post into an existing discussion on CFS ... /ME where you can connect with others ... post to this discussion group about ME ... /CFS to connect you with others like ... /CFS.
Thanks so much for article recommendation. Interesting. Not that helpful. By this time, now used most...
/CFS and its side effects. ... think it would be great to to have ME ... /CFS brain fog group. ... Developed ME/CFS while getting MFA and ... Some large hospitals have ME/CFS centers
Support Group: Autoimmune Diseases
Posted: Jan 31, 2022
@dlydailyhope you’re very welcome! Unfortunately, you are so right about the lack of understanding and coordination...
it comes to complex conditions like ME ... /CFS. ... /CFS. ... call it Myalgic Encephalomyelitis/CFS ... CFS so even a ME/CFS specialist can
Support Group: Neuropathy
Posted: Oct 17 10:50am
Hi Becky Thanks for the reply. I am not able to open this link. Can you...
Can you please help me in finding an ... Indian doctor who specializes in ME ... /CFS?
Support Group: Just Want to Talk
Posted: Dec 18, 2021
Hi @lukek and welcome to Mayo Clinic Connect. My suggestion would be to visit your local...
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments: https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Support Group: Visiting Mayo Clinic
Posted: Jun 23, 2022
I have very debilitating ME/CFS and would love definitive answers to help me. I started with...
I have very debilitating ME/CFS and ... would love definitive answers to help me ... I started with CFS 50 yrs ago.
Support Group: Autoimmune Diseases
Posted: Sep 4, 2021
Yes, your dr is correct. 4.5 mg is the normal dose. I have been on it...
have an NP who only treats those with ME ... /CFS, Fibro, POTS, Long Covid (so fatigue ... So I read the research she gave me & ... formost researchers in the US for ME ... /CFS, etc.
Support Group: Fibromyalgia
Posted: Oct 15, 2023
Hello @rarelybees2889, Have you seen the following discussion? You might want to post any questions you...
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments -- https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Support Group: Autoimmune Diseases
Posted: Jan 8, 2020
It seems a mystery to me why ME/CFS remains a mystery to doctors. The research being...
It seems a mystery to me why ME/CFS ... /CFS people. ... ME/CFS seems to have a mystery origin ... clue how to heal autoimmune," ME ... /CFS sufferers ARE THE CLUES.
Support Group: Just Want to Talk
Posted: Mar 24, 2022