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Comments (241)
I do actually go to Mayo-pulmonologist. He said Dipnech is a label that is hard to...
https://connect.mayoclinic.org/comment/846032/
He said Dipnech is a label that is hard
Thank you for reply, I don't have a net's team, I rely on my thoracic surgeon...
https://connect.mayoclinic.org/comment/1142739/
that but after ,it was found I had dipnech ... Obviously I'd had dipnech for many
Hi @bcraft. I'm new to this site too and what brought me here was a search...
https://connect.mayoclinic.org/comment/838450/
brought me here was a search about DIPNECH ... NETs/DIPNECH is not treated like regular ... The good news about DIPNECH is it' ... DIPNECH is often misdiagnosed as COPD ... Search his name and DIPNECH and DIPNCH
Rona I appreciate your reply. I will be getting my baseline scans and bloodwork in mid...
https://connect.mayoclinic.org/comment/1275395/
Huntsnan Labs and then meeting with my DIPNECH
Hi tatteesmom3, are you seeing a NETS (neuroendocrine tumor) multidisiciplinary team or just a local oncologist...
https://connect.mayoclinic.org/comment/844936/
tumors across both lungs and I have DIPNECH ... Most doctors have not heard of DIPNECH ... actually the first one to suggest DIPNECH ... Not everyone with DIPNECH does, but ... DIPNECH is mostly diagnosed in non-smoking
Yes, the tumor I had ablated was malignant (typical carcinoid). It was biopsied first. The microwave...
https://connect.mayoclinic.org/comment/1208685/
The rule of thumb for DIPNECH and lung ... DIPNECH is a benign neuroendocrine condition ... DIPNECH is often a precursor to lung ... more people have lung NETs without DIPNECH
I have DIPNECH, also had my right middle lobe removed in October 2023. At this point,...
https://connect.mayoclinic.org/comment/1244351/
I have DIPNECH, also had my right middle ... are not familiar with lung nets and DIPNECH ... ’t aware of how it might impact my DIPNECH ... in both of those groups that have DIPNECH
Doctor recommended another test before making the surgery decision. A Netscan. We'll see what that indicates...
https://connect.mayoclinic.org/comment/660238/
Has anyone any experience with DIPNECH
Welcome @triveraderubio As you likely know "diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is a rare...
https://connect.mayoclinic.org/comment/772200/
pulmonary neuroendocrine cell hyperplasia (DIPNECH ... amd12 has also been diagnosed with DIPNECH
My dipnech was also found by chance, I had fallen down some steps and landed on...
https://connect.mayoclinic.org/comment/1143736/
My dipnech was also found by chance, ... Pathology found the dipnech when they
You are Right about being your own Advocate. That's how I found out I had DIPNECH....
https://connect.mayoclinic.org/comment/1065383/
That's how I found out I had DIPNECH ... I'm also looking for a DIPNECH Specialist
I also have NET and DIPNECH. Both were found in August of 2024 when my tumor...
https://connect.mayoclinic.org/comment/1288119/
I also have NET and DIPNECH. ... Wish there was more info on DIPNECH,
Hello @ocean3131 and welcome to the NETs support group on Mayo Connect. I'm sorry to hear...
https://connect.mayoclinic.org/comment/987604/
another discussion group that deals with Dipnech ... carcinoid-tumorlets-neuroendocrine-tumorcell-hyperplasia-dipnech ... pulmonary neuroendocrine cell hyperplasia (DIPNECH
Do you see a pulmonologist or oncologist? Reason I’m asking I was told there’s only 1...
https://connect.mayoclinic.org/comment/853997/
there’s only 1 doctor knowledgeable in dipnech
Hi @netnan, I was diagnosed with a 17mm typical carcinoid early this year. I also have...
https://connect.mayoclinic.org/comment/1107076/
I also have many nodules from DIPNECH ... if the tumor is ‘shrinking’ and the dipnech
OMG. Yes yes yes so much the same. I was told by my pulmonary doctor that...
https://connect.mayoclinic.org/comment/1329979/
pulmonary doctor that it might be DIPNECH
I would strongly request a PET. I've had one recently to see if my dipnech tumours...
https://connect.mayoclinic.org/comment/1142721/
#39;ve had one recently to see if my dipnech
Are you taking a treatment? So interesting, these various symptoms, like GERD! I had it for...
https://connect.mayoclinic.org/comment/1330063/
and on meds before I ever knew about DIPNECH ... diagnosed with the lung tumor and DIPNECH ... aware and knowledgeable about NETs and DIPNECH ... general, but if he doesn’t know about DIPNECH
I was diagnosed with DIPNECH in June of last year. I have surgery to remove the...
https://connect.mayoclinic.org/comment/1244389/
I was diagnosed with DIPNECH in June
@colleenyoung Hi Colleen, I'm so glad you posted this article. Believe it or not, it was...
https://connect.mayoclinic.org/comment/1055394/
article that made me self-diagnose DIPNECH ... referred to a NETs team, they confirmed DIPNECH ... upon the Mayo article about the retro DIPNECH
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