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208 total results
Comments (198)
My dipnech was also found by chance, I had fallen down some steps and landed on...
https://connect.mayoclinic.org/comment/1143736/
My dipnech was also found by chance, ... Pathology found the dipnech when they
You are Right about being your own Advocate. That's how I found out I had DIPNECH....
https://connect.mayoclinic.org/comment/1065383/
That's how I found out I had DIPNECH ... I'm also looking for a DIPNECH Specialist
@rogo, we share a few similarities. I've also been incorrectly diagnosed with asthma for over 30...
https://connect.mayoclinic.org/comment/1268878/
DIPNECH was suspected by the surgeon ... DIPNECH was a positive finding consisting ... my area who is trained in treating DIPNECH
Do you see a pulmonologist or oncologist? Reason I’m asking I was told there’s only 1...
https://connect.mayoclinic.org/comment/853997/
there’s only 1 doctor knowledgeable in dipnech
Welcome @triveraderubio As you likely know "diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is a rare...
https://connect.mayoclinic.org/comment/772200/
pulmonary neuroendocrine cell hyperplasia (DIPNECH ... amd12 has also been diagnosed with DIPNECH
Hello @ocean3131 and welcome to the NETs support group on Mayo Connect. I'm sorry to hear...
https://connect.mayoclinic.org/comment/987604/
another discussion group that deals with Dipnech ... carcinoid-tumorlets-neuroendocrine-tumorcell-hyperplasia-dipnech ... pulmonary neuroendocrine cell hyperplasia (DIPNECH
I would strongly request a PET. I've had one recently to see if my dipnech tumours...
https://connect.mayoclinic.org/comment/1142721/
#39;ve had one recently to see if my dipnech
Thanks for the update. I do not have those mutations so we may have different types...
https://connect.mayoclinic.org/comment/1226513/
(typical carcinoids in addition to DIPNECH
I coughed constantly for 30 years due to lung NETs and DIPNECH but octreotide injections for...
https://connect.mayoclinic.org/comment/1067737/
for 30 years due to lung NETs and DIPNECH
You definitely need to get a second opinion from a NETs specialist. Other types of lung...
https://connect.mayoclinic.org/comment/1242687/
treated the same as lung NETs and DIPNECH ... I also have lung NETs and DIPNECH.
@colleenyoung Hi Colleen, I'm so glad you posted this article. Believe it or not, it was...
https://connect.mayoclinic.org/comment/1055394/
article that made me self-diagnose DIPNECH ... referred to a NETs team, they confirmed DIPNECH ... upon the Mayo article about the retro DIPNECH
Hi, I'm 67 years old. Have been mis-diagnosed for over 5 years. 2023 Dr. finally walks...
https://connect.mayoclinic.org/comment/1054374/
in and tells me he believes I have DIPNECH ... Now unfortunately my Dr is not a DIPNECH
Hi @queengemini16 What is your surgeon’s and oncologist’s recommended course of action? Are you planning to...
https://connect.mayoclinic.org/comment/1006882/
than what you’ve read here in the DIPNECH
@meryls12, you may wish to consult with the leading NETs team at Mayo Clinic in Jacksonville...
https://connect.mayoclinic.org/comment/968224/
pulmonary neuroendocrine cell hyperplasia (DIPNECH
Hi @dipnech67 I would be happy to speak with you. I just sent you a private...
https://connect.mayoclinic.org/comment/1055386/
Hi @dipnech67
I would be happy to ... young, but no one else with NETs or DIPNECH ... DIPNECH may or may not progress to lung ... even as a child so maybe I've had DIPNECH ... Yes, there are probably a lot more DIPNECH
@mieczyslaw If you have a lot of tumorlets in both lungs it sounds suspect for DIPNECH....
https://connect.mayoclinic.org/comment/962492/
in both lungs it sounds suspect for DIPNECH
Hi @donnapeck51 I’m sorry to hear about your Merkel cell carcinoma. I’m not a doctor but...
https://connect.mayoclinic.org/comment/1172492/
As for DIPNECH, it is even rarer and ... I do not believe DIPNECH is Merkel cell
Hi @californiazebra This tumor that was ablated was the only one that the dotatate pet ‘lit’...
https://connect.mayoclinic.org/comment/1071219/
I have many small tumors with the DIPNECH
Tom, that’s frustrating about your incidental findings too. I hope both conditions were successfully treated. I...
https://connect.mayoclinic.org/comment/958681/
NETS & DIPNECH.
I was diagnosed with DIPNECH in November 2024 after a segmental left lung resection for 3...
https://connect.mayoclinic.org/comment/1250339/
I was diagnosed with DIPNECH in November
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