To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
146 total results
Comments (141)
Hi @rogo It seems like we’ve communicated in the past. I have DIPNECH and lung NETs...
https://connect.mayoclinic.org/comment/1070950/
I have DIPNECH and lung NETs (typical ... Based on symptoms, I’ve had DIPNECH ... greatly improved so was clearly tied to DIPNECH ... 65 and I don’t expect to die from DIPNECH
Discussion: Anyone living long-term with DIPNECH on lungs?
Support Group: Neuroendocrine Tumors (NETs)
Posted: May 19 12:08pm
I was Dx’d with DIPNECH post op after removal of right middle lobe Oct 2023. PET...
https://connect.mayoclinic.org/comment/1108711/
I was Dx’d with DIPNECH post op after ... The more I read about DIPNECH, the more
Discussion: DIPNECH
Support Group: Neuroendocrine Tumors (NETs)
Posted: Jul 20 9:17am
It can sure be a frustrating journey to diagnosis, can’t it? Glad they figured yours out...
https://connect.mayoclinic.org/comment/1171342/
out I also had the very, very rare DIPNECH ... Mayo study I found that focused on 59 DIPNECH ... university hospital and they confirmed DIPNECH
Discussion: How many doctors did you see to get to your NETS diagnosis?
Support Group: Neuroendocrine Tumors (NETs)
Posted: 5 days ago
@gig666 How did your PET scan turn out? Was it a DOTATATE scan specifically for NETs?...
https://connect.mayoclinic.org/comment/1033637/
MIGHT YOU HAVE DIPNECH? ... I also have DIPNECH which is an even ... that makes me wonder if you also have DIPNECH ... That is another sign of DIPNECH. ... couple hundred documented cases of DIPNECH
Discussion: High risk surgery. Is it worth it?
Support Group: Neuroendocrine Tumors (NETs)
Posted: Mar 14 6:22pm