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250 total results
Comments (242)
Hi I was just diagnosed with CIDP after 7 years of bizarre symptoms and neuropathy. I...
Hi I was just diagnosed with CIDP after ... 7 years of bizarre symptoms and neuropathy ... Can this be related to my CIDP?
That’s a good question because I still don’t completely understand what I’ve been told (or not...
Pre CIDP diagnosis, I had neuropathy ... to a Neurologist, who gave me the CIDP ... IVIG, the neuropathy was a secondary symptom
Support Group: Autoimmune Diseases
Posted: Jul 10, 2019
I have tested positive for four years for the Epstein Barr virus. I am now being...
I am now being tested for CIDP. ... therapy it takes at least six months for symptoms ... EMG/nerve conduction test for the CIDP ... inflammatory demylinating disease -CIDP
Support Group: Autoimmune Diseases
Posted: May 15, 2024
Hi Kim Sorry to hear that you also have been diagnosed with CIDP. I also have...
you also have been diagnosed with CIDP ... My symptoms have gotten much better, ... however I do have periods that my symptoms ... neuropathy but the pathophysiology for CIDP ... GIB-CIDP.org is a great organization
Support Group: Autoimmune Diseases
Posted: Feb 2, 2023
I have neuropathy still - year later! I started having neuropathy throughout my entire body after...
My first odd symptoms right after the ... Mind you, I’ve never had any symptoms ... back injury causing these new onset symptoms ... seem to find anything to explain my symptoms ... get me to the right Dr or test for CIDP
Support Group: Neuropathy
Posted: Oct 11, 2022
Hi @casey1329, There is currently a discussion going on since 2019 about Chronic Inflammatory Demyelinating Polyneuropathy...
/connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy ... What type of symptoms is your husband
Support Group: Autoimmune Diseases
Posted: Aug 6, 2022
My symptoms started about 5 years ago with cold feet. Over the course of about 2...
My symptoms started about 5 years ago ... again and indicated I actually have CIDP ... My symptoms are predominantly numbness
Support Group: Neuropathy
Posted: Dec 13, 2021
Specifically I have many classic symptoms of GBS / CIDP I was first diagnosed with GBS...
Specifically I have many classic symptoms ... of GBS / CIDP I was first diagnosed ... not definitive), as of yesterday, is CIDP ... Onset of symptoms was 10 days after ... Happy to share symptoms etc if you are
Support Group: Neuropathy
Posted: May 26, 2021
I have CIDP -- chronic inflammatory demyelinating polyneuropathy -- an autoimmune form of PN that is...
I have CIDP -- chronic inflammatory ... It produces all the symptoms others ... is that I was old when I developed CIDP
Support Group: Neuropathy
Posted: Nov 11, 2020
Hi Cindylb, I saw your post referencing your Brother-in-law having Gillian Barre Syndrome from Epstein Barr...
The symptoms of Gillian Barre are very ... GBS/CIDP Foundation › variants Miller ... Fisher Syndrome - GBS/CIDP Foundation ... The first symptoms of GBS are usually ... Once they start to occur, the symptoms
Support Group: Infectious Diseases
Posted: Feb 25, 2020
Your history is quite interesting and a lot of puzzle pieces might fit. I would bet...
connections and you should inquire about CIDP ... have chronic EBV, lupus, RA, PN and CIDP ... doesn’t put people in wheelchairs but CIDP ... and don’t let anyone dismiss your symptoms
Posted: Oct 6, 2024
I also a very disappointed that Mayo isn’t taking any new neurology patients. I have been...
I have been diagnosed with CIDP as far ... I have meant bizarre symptoms including ... Nothing helped my symptoms, and MS was
Welcome @cathiee, A member in another discussion shared a link to the MOG Project website that...
several discussions on treatments for CIDP ... search=CIDP+treatments. ... anything that helps you manage the symptoms
Support Group: Autoimmune Diseases
Posted: Aug 4, 2024
I have been on IVIG infusions for about two months, every two weeks. Because of a...
Demyelinating Polyradiculoneuritis (CIDP ... what are the progressive signs and symptoms
Support Group: Neuropathy
Posted: May 28, 2024
I know what the testing involves. I am an RN. I have read so much about...
People who get CIDP is over 96% men. ... Epstein Barr virus which is part of CiDP ... shall see but currently non of my symptoms
Support Group: Neuropathy
Posted: May 1, 2024