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833 total results
Comments (763)
@cgerwig66 Welcome to Mayo Clinic Connect. I understand you were recently diagnosed with MGUS, and are...
https://connect.mayoclinic.org/comment/842868/
and are now concerned you may have amyloidosis ... what Mayo Clinic has to say about amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
Hello @carolynaune. Here is a discussion I think you may enjoy looking at, https://connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa/. It has...
https://connect.mayoclinic.org/comment/196640/
connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa ... It has members discussing both amyloidosis
Thanks for the reminder about videos, @oldkarl! There's a video with Martha Grogan, MD, and hematologist...
https://connect.mayoclinic.org/comment/104698/
Jill, please see:
Video Q&A Amyloidosis ... https://connect.mayoclinic.org/webinar/amyloidosis-what-patients-need-to-know
@brittalisse Hi, friend. Sounds as if your mother has the same stuff I have. We are...
https://connect.mayoclinic.org/comment/188994/
testing for some form of Light Chain Amyloidosis ... , probably Gelsolin, an Amyloidosis ... My lungs, although crowded with Amyloidosis ... weight loss is part of it for many Amyloidosis ... Also search on Mayo for Amyloidosis
Hi @flcrakr1, welcome. You'll notice that I moved your message to this existing discussion about amyloidosis....
https://connect.mayoclinic.org/comment/623980/
to this existing discussion about amyloidosis ... , were you recently diagnoses with amyloidosis
I would like to discuss your condition with you if you'd like. Have peripheral neuropathy as...
https://connect.mayoclinic.org/comment/104723/
Have peripheral neuropathy as well as amyloidosis ... Doctors are not familiar with Amyloidosis
Lori, switched the loading sequence but that caused a problem. It talks about AL Amyloidosis but...
https://connect.mayoclinic.org/comment/738758/
It talks about AL Amyloidosis but I ... to think I might have the hATTA-CM Amyloidosis ... which is the Hereditary Amyloidosis ... AL means light chain Amyloidosis. ... Here’s the Enigma, AL means the Amyloidosis
Amyloidosis can be tested with a fat pad biopsy. They take a small bit of abdominal...
https://connect.mayoclinic.org/comment/1378108/
Amyloidosis can be tested with a fat ... on a 1/24 test and because kidney amyloidosis ... had a kidney biopsy and it showed no amyloidosis
Hello Oldkari, Thank you very much for taking time to give me this information. I will...
https://connect.mayoclinic.org/comment/179553/
with my doctor about this condition (Amyloidosis ... ), but i have a question : does Amyloidosis
Fat pad biopsies may be done to look for Amyloidosis - not very definitive or accurate
https://connect.mayoclinic.org/comment/754346/
pad biopsies may be done to look for Amyloidosis
Lupus is a mutation of mis-folded protein, otherwise known as amyloidosis. My sister has it.
https://connect.mayoclinic.org/comment/149850/
mis-folded protein, otherwise known as amyloidosis
Columbia-Pres in NYC and Boston Mass. are two Amyloidosis centers in the NE
https://connect.mayoclinic.org/comment/1062374/
in NYC and Boston Mass. are two
Amyloidosis
I am working through the dX snail route toward a diagnosis of Amyloidosis. I have written...
https://connect.mayoclinic.org/comment/377263/
snail route toward a diagnosis of Amyloidosis ... built around your staff's book on "Amyloidosis
Our experience with gi amyloidosis was different. That said you may want to suggest that a...
https://connect.mayoclinic.org/comment/1174177/
Our experience with gi amyloidosis was ... Congo red the further work up for amyloidosis
A bit over 20 years ago, I called a leading doc in that amyloidosis clinic at...
https://connect.mayoclinic.org/comment/1024092/
ago, I called a leading doc in that amyloidosis ... doc had underestimated his EF and amyloidosis
I had a diagnosis of amyloidosis this year after a bilateral carpal tunnel surgery biopsy done...
https://connect.mayoclinic.org/comment/1323748/
I had a diagnosis of amyloidosis this ... I was referred to a amyloidosis specialist ... back positive for Attr “wild type” amyloidosis ... Chang that my amyloidosis was caught
luckyme54216 @luckyme54216, I want to welcome you to Connect. I can understand why you have so...
https://connect.mayoclinic.org/comment/88312/
I don't know anything about AL Amyloidosis ... I also read that Amyloidosis is often ... protein disorders of the blood, such as amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
Have you tried University of Pennsylvania Hospital? They run clinical trials for some types of amyloidosis....
https://connect.mayoclinic.org/comment/381222/
clinical trials for some types of amyloidosis ... trial at U Penn for Wild Type Cardiac Amyloidosis
Consider getting an abdominal fat pad biopsy (assuming they didn't take that for the carpal tunnel...
https://connect.mayoclinic.org/comment/1323464/
I don't have amyloidosis, but was ... my.clevelandclinic.org/health/diseases/23398-amyloidosis ... /139/19/2918/476883/How-I-treat-AL-amyloidosis
Hello @gala75, Welcome to Connect. I know it's difficult to be in so much pain and...
https://connect.mayoclinic.org/comment/768054/
@oldkarl has discussed amyloidosis in ... Hereditary ATTR Amyloidosis Testing ... www.hattrguide.com/diagnosing-hattr-amyloidosis ... /
Amyloidosis Foundation
— http: ... //amyloidosis.org/facts/al/
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