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963 total results

Comments (917)

I can surely relate to your issues as I have been dealing with progressive numbness and...

https://connect.mayoclinic.org/comment/882415/

diagnose me other than to say I had CIDP

Discussion: My PN? What do you mean it's "progressive"?

Support Group: Neuropathy

Posted: Jun 21, 2023

Hi Rachel and Hank, I have never been treated at the Mayo Clinic. I had an...

https://connect.mayoclinic.org/comment/238705/

never mentioned a particular diet for CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Sep 30, 2020

I am not diabetic. Mine is autoimmune. I have had emg/nerve conduction test and biopsy. You...

https://connect.mayoclinic.org/comment/1075479/

I am fixing to be tested for CIDP and

Discussion: Small fiber neuropathy?

Support Group: Neuropathy

Posted: May 27, 2024

I have been doing IVIG for just a couple of sessions so far. I have had...

https://connect.mayoclinic.org/comment/1064250/

afternoon via "Shining through CIDP

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: May 8, 2024

@windyshores Have you had surgery for your myelopathy? Maybe your cranial/cervical nerves/spinal cord are impacted? I...

https://connect.mayoclinic.org/comment/1042132/

will help diagnose me (rule out MS/CIDP

Discussion: Occipital Neurogia, a complication of neuropathy?

Support Group: Brain & Nervous System

Posted: Mar 29, 2024

Hi Susan. You’ve likely have heard of small fiber neuropathy. That has a variety of causes...

https://connect.mayoclinic.org/comment/908211/

In CIDP the motor nerves have significant

Discussion: CIDP, While I am waiting for the tests, genetic?

Support Group: Neuropathy

Posted: Aug 5, 2023

Welcome Toolman 53! I too have had a combination of GBS and CIDP although my timeline...

https://connect.mayoclinic.org/comment/1170525/

have had a combination of GBS and CIDP ... in the hospital and now I feel the CIDP

Discussion: CIDP diagnosis after severe GBS long ago, where do I start?

Support Group: Neuropathy

Posted: Nov 9, 2024

I can attest to chronic progressive pain in my lower back, spine, hips, back of my...

https://connect.mayoclinic.org/comment/1287119/

I have CIDP which is a chronic neuropathy ... I know my pain is caused from my CIDP

Discussion: Severe chronic back pain

Support Group: Chronic Pain

Posted: Apr 21 8:38pm

Mine have been hazy since 2002 when I had bacterial spinal meningitis. No on would listen...

https://connect.mayoclinic.org/comment/1060610/

When the doctor brought up CIDP I really

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: May 2, 2024

@kuriousmind @scottrl I am 54 and noticed cognitive decline about 6+ months ago. I had 3...

https://connect.mayoclinic.org/comment/1048225/

of April to get tested for MS and CIDP

Discussion: Short Term memory loss

Support Group: Brain & Nervous System

Posted: Apr 10, 2024

@kevinmc You've heard from the voices of (painful) experience. It seems that every person is unique....

https://connect.mayoclinic.org/comment/983510/

that have worked, as well, for my CIDP

Discussion: Has anyone ever experienced severe pressure/pain in their lower legs ?

Support Group: Neuropathy

Posted: Dec 19, 2023

My 72 yr. old husband was falling, had balance problems and very high inflammation markers. His...

https://connect.mayoclinic.org/comment/923490/

month for 4 hours at a time to treat CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Sep 3, 2023

Ray, I feel like you should always be prepared when you go to a doctor and...

https://connect.mayoclinic.org/comment/911800/

last week after being diagnosed with CIDP

Discussion: Preparing for a follow-up exam …

Support Group: Neuropathy

Posted: Aug 12, 2023

Thanks to everyone who responded to my post about starting IVIG for CIDP. Since I've only...

https://connect.mayoclinic.org/comment/712012/

to my post about starting IVIG for CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: May 27, 2022

Hello all, my name is Kim and I have read many of your posts regarding peripheral...

https://connect.mayoclinic.org/comment/1262438/

four years ago I was diagnosed with CIDP

Discussion: Worse Neuropathy After EMG Test?

Support Group: Neuropathy

Posted: Mar 20 7:58am

Hi there, I have CIDP since 2009 it was in remission until 2015 when it flared...

https://connect.mayoclinic.org/comment/938455/

Hi there, I have CIDP since 2009 it

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Sep 29, 2023

My husband ( 71 yrs.) is no where near as ill as you poor souls are...

https://connect.mayoclinic.org/comment/744160/

Inflamatory Demyelinating Polyneuropathy (CIDP

Discussion: Lost my legs and now both arms to Neuropathy.

Support Group: Neuropathy

Posted: Sep 1, 2022

I have CIDP and other issues. I was treated with Rituximab early on in this vaccine...

https://connect.mayoclinic.org/comment/1117394/

I have CIDP and other issues.

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Aug 4, 2024

You're definitely not alone! I've felt alone as of late but then remembered that Mayo has...

https://connect.mayoclinic.org/comment/1360708/

Inflammatory Demyelinating Polyneuropathy or CIDP

Discussion: EMG - "MILD AXONAL NEUROPATHY"

Support Group: Autoimmune Diseases

Posted: Jul 31 11:43am

@ellashab I am sorry that you are going through this! First I want to thank you...

https://connect.mayoclinic.org/comment/816684/

undifferentiated connective tissue disease and CIDP

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Feb 24, 2023