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Comments (1,045)

I am now on Kevzara for 5 months after two years of being on prednisone and...

https://connect.mayoclinic.org/comment/1151528/

I am now on Kevzara for 5 months after ... protein and sed rate are normal on Kevzara

Discussion: Has anyone experienced steroid myopathy?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 3, 2024

I have been on prednisone for 3 years. After the first year at higher doses, from...

https://connect.mayoclinic.org/comment/1137289/

After I started Kevzara 4 months ago ... So far so good on Kevzara but I haven

Discussion: Effects of Prednisone on Eyes

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 6, 2024

I give your rheumatologist credit for wanting to "manage your pain." She isn't wrong for wanting...

https://connect.mayoclinic.org/comment/1118265/

being treated with methotrexate and/or Kevzara ... don't have any experience with Kevzara ... Your mileage with Kevzara might be different

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2024

Our government doesn't get overly involved in medical decisions except for granting FDA approval of the...

https://connect.mayoclinic.org/comment/1067333/

Kevzara is now FDA approved for PMR. ... easily be switched and treated with Kevzara

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 13, 2024

I recently started Kevzara 11/23 I was diagnosed with PMR 7/22 my Pred dose was 20mg...

https://connect.mayoclinic.org/comment/996604/

I recently started Kevzara 11/23 I ... was at 5mg prednisone when starting Kevzara

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13, 2024

I was on Kevzara for 8 months last year. It did help my symptoms and seemed...

https://connect.mayoclinic.org/comment/1330869/

I was on Kevzara for 8 months last year

Discussion: Kevzara Experiences

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19 8:21pm

Did you consider you may be having a reaction to coming down off the Prednisone? Had...

https://connect.mayoclinic.org/comment/1079106/

sure if she'll be putting me on Kevzara

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2024

Will never get a Covid Booster with all the negative side affects that I'm hearing about....

https://connect.mayoclinic.org/comment/950724/

Just got approval for Kevzara but waiting ... and cons they have experienced with Kevzara

Discussion: Any side effects from present flu shot with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 20, 2023

My story : Had terrible pain across my chest as well as other parts of my...

https://connect.mayoclinic.org/comment/1322412/

Meantime went on kevzara in March 2024 ... was going to attempt my going off Kevzara ... L3-4 Rheumatologist said to stop Kevzara ... because now I had a long span without Kevzera

Discussion: PMR (ending prednisone) and Osteoarthritis flare up

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7 3:46pm

I am taking the Evenity shots once a month for the osteoporosis. I can take them...

https://connect.mayoclinic.org/comment/1030545/

I have not heard of Kevzara.

Discussion: Rheumatoid Drs

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9, 2024

Thanks for the reply, John, and for the wisdom you’ve gleaned from your experiences with PMR,...

https://connect.mayoclinic.org/comment/1006520/

on a biologique such as Actemra or Kevzara

Discussion: Advice/experience about going back on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 30, 2024

I would say you should try another one. MTX has not been as successful and takes...

https://connect.mayoclinic.org/comment/1237065/

Kevzara and Actemra both seem to work

Discussion: Prednisone and Opioids

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 14 7:35pm

I have just started Kevzara along with the methotrexate. It is a biologic which targets Il-...

https://connect.mayoclinic.org/comment/992891/

I have just started Kevzara along with

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7, 2024

Kevzara (sarilumab) is FDA approved for PMR Actemra (tocilizumab) is FDA approved for GCA Both of...

https://connect.mayoclinic.org/comment/924479/

Kevzara (sarilumab) is FDA approved

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 5, 2023

I’ve been on Pred for 8 years, can’t seem to go below 4 mls without a...

https://connect.mayoclinic.org/comment/1116241/

term but now says a biologic like Kevzara

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2024

Why were your brother and brother-in-law treated with prednisone for so long? I thought prednisone was...

https://connect.mayoclinic.org/comment/994709/

is great that you were prescribed Kevzara

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 9, 2024

I am hopefully going on Kevzara starting this week. It actually targets the IL-6 anti inflammatory...

https://connect.mayoclinic.org/comment/977940/

I am hopefully going on Kevzara starting

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 10, 2023

Yes, Kevzara is the drug. I checked on cost, around $3k/month. I have been on prednisone...

https://connect.mayoclinic.org/comment/1078826/

Yes, Kevzara is the drug.

Discussion: Methotrexate to wean off long term Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2024

Yes, Inflammation markers can be normal (as with me) and you can still have PMR. My...

https://connect.mayoclinic.org/comment/1227512/

Nov I started Kevzara and am now down

Discussion: what does the community consider a normal SED rate for GCA/PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 2 9:26am

I have no experience with Kevzara but I have over 15 years of experience with PMR....

https://connect.mayoclinic.org/comment/1141799/

I have no experience with Kevzara but ... t think it is ever too soon to try Kevzara ... Both Kevzra and Actemra work on the ... There are no guarantees that Kevzara

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2024