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860 total results

Comments (821)

I'm grateful to have a pain specialist who has gotten to know me well enough to...

https://connect.mayoclinic.org/comment/1126893/

It wasn't helping with my CIDP pain

Discussion: Opioids for back spasms?

Support Group: Bones, Joints & Muscles

Posted: Aug 19 2:59pm

Hi I was diagnosed with CIPD about 7yrs ago, before that my doctors thought I was...

https://connect.mayoclinic.org/comment/900297/

Besides having CIDP, I also have multiple

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jul 22, 2023

I have severe axonal sensorimotor polyneuropathy SFN Can - cardiac autonomic neuropathy- they can’t do anything...

https://connect.mayoclinic.org/comment/1076392/

for my RA and they believe I have CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: May 28 10:55am

Hello folks, I have been reading everyone’s posts. I can relate to your neuropathy, I have...

https://connect.mayoclinic.org/comment/676424/

neuropathy, I have been diagnosed with CIDP

Discussion: Controlling the Anger and Sadness: My Neuropathy is Overtaking Me

Support Group: Neuropathy

Posted: Jan 30, 2022

@sueborfl Good evening, sorry to hear that Gabapentin did not help your neuropathic pain, I know...

https://connect.mayoclinic.org/comment/911436/

I have CIDP and I started Gabapentin

Discussion: How long do you take Gabapentin?

Support Group: Chronic Pain

Posted: Aug 11, 2023

@txamo I wonder if you are taking bisphosphonates for your osteoporosis? Another Connect member, @sunnyflower has...

https://connect.mayoclinic.org/comment/238703/

Just put CIDP into the search window

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Sep 29, 2020

I have been on IVIG infusions for about two months, every two weeks. Because of a...

https://connect.mayoclinic.org/comment/1076404/

Demyelinating Polyradiculoneuritis (CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: May 28 11:09am

good evening nervelady-70, sounds like your pain is severe and you are not getting relief from...

https://connect.mayoclinic.org/comment/787135/

gabapentin for about 1 1/2 years for severe CIDP

Discussion: Can Gabapentin make neuropathy pain worse?

Support Group: Neuropathy

Posted: Dec 20, 2022

I have been bounced around from doctor to doctor and have had many tests for over...

https://connect.mayoclinic.org/comment/1034978/

closely at the potential for MS or CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 17 6:13am

I had an Abbott spinal cord stimulator implant in 1971, and the first year was wonderful!...

https://connect.mayoclinic.org/comment/904914/

Prednisone to slow the progress of CIDP

Discussion: Severe SI joint pain and pain stimulators

Support Group: Chronic Pain

Posted: Jul 31, 2023

I can relate to your pain and frustration. For 10 yrs now I have been dealing...

https://connect.mayoclinic.org/comment/880653/

with no help and been diagnosed with CIDP

Discussion: Peripheral Neuropathy - Anyone else?

Support Group: Neuropathy

Posted: Jun 18, 2023

Scott22 @Scott22 to Autoimmune Support Group CIDP This autoimmune disease has many different causes. If you...

https://connect.mayoclinic.org/comment/1053164/

Scott22 to Autoimmune Support Group CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Apr 18 1:34pm

I have Graves (hyperthyroid) and CIDP (chronic Guillain-Barré Syndrome) which usually shows up on consent forms...

https://connect.mayoclinic.org/comment/937665/

I have Graves (hyperthyroid) and CIDP

Discussion: Risk of vaccine for Autoimmune compromised?

Support Group: Autoimmune Diseases

Posted: Sep 27, 2023

@ronoejello1, @SusanEllen66 - I would be interested to hear how your appointment went with Dr. David...

https://connect.mayoclinic.org/comment/921906/

show_locs=Y#locn • CIDP – The Gripper ... Treatment Related Fluctuations in CIDP

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Aug 31, 2023

I also have MGUS which was discovered in lab work few years ago by accident. I...

https://connect.mayoclinic.org/comment/943307/

diagnosed generally few years ago with CIDP ... which has good results for people with CIDP

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

Hi, I have a neuromuscular doctor. I had nerve conduction studies. All four extremities were tested...

https://connect.mayoclinic.org/comment/1020856/

the one who asked me if I’d heard of CIDP ... Is or can CIDP (poly radiculopathy)

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Feb 23 6:11am

About ten years ago I was diagnosed with PN due to slight sleepy feeling in finger...

https://connect.mayoclinic.org/comment/1135051/

neurologist who, after many tests, diagnosed CIDP

Discussion: Is there somebody who is diagnosed with megavitamin b6 syndrome ?

Support Group: Neuropathy

Posted: Sep 2 12:20pm

Hi Chris, and thank you so much for taking the time to respond. I'd like to...

https://connect.mayoclinic.org/comment/733043/

CIDP - in asking/pushing one of my neurologists ... went to the Mayo Clinic to see if CIDP ... s no way my NP could be considered CIDP

Discussion: Medical marijuana vape for pain relief from Peripheral Neuropathy?

Support Group: Neuropathy

Posted: Aug 1, 2022

Neurologist #1 did an EMG/NCS test, told me I have SFSN and that nothing can be...

https://connect.mayoclinic.org/comment/660664/

extensive blood work, concluded I have CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Dec 8, 2021

My initial neuropathy started in 2012 after knee replacement. Mild symptoms numbness in fingertips and arm...

https://connect.mayoclinic.org/comment/844581/

many tests finally got diagnosed with CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Apr 17, 2023