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Comments (10,000+)

Yes, I am on Medicare and am taking Zepbound for sleep apnea. ( covered by Medicare)...

https://connect.mayoclinic.org/comment/1357416/

I also have PMR and am very pleased

Discussion: Anyone on Medicare been prescribed Zepbound for sleep apnea

Support Group: Sleep Health

Posted: Jul 27 8:41am

I'm symptom free right now... Taking 1000 mg Mycophenolate Mofetil and 15 mg prednisolone down from...

https://connect.mayoclinic.org/comment/1289576/

Peripheral Neuropathy prior to my PMR ... diet is the primary reason for the PMR

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25 10:28am

I was diagnosed with osteoporosis over 8 years ago and started on prolia. My docs always...

https://connect.mayoclinic.org/comment/1306092/

PMR was diagnosed in September at age ... diet have not changed since before PMR

Discussion: Osteopenia/ Osteoporosis and Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17 10:20am

I was diagnosed with PMR and GCA in late June 2024. I have had a good...

https://connect.mayoclinic.org/comment/1249119/

I was diagnosed with PMR and GCA in ... lost weight and strength from the PMR

Discussion: Actrema advice

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3 5:18am

My current experience is this: Tapered from 10 to 5 at 1 per month, then at...

https://connect.mayoclinic.org/comment/1100468/

After PMR is in remission, pain is ... most often NOT PMR pain and should be

Discussion: Feeling Stuck at 7mg Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2024

When I tapered to about 7, I started having mild wrist/finger/thumb pains in the AM. The...

https://connect.mayoclinic.org/comment/1079372/

osteoarthritis before experiencing PMR ... levels of prednisone is not necessarily PMR

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

Interesting. I too have peripheral neuropathy. I got PMR after a Pfizer booster in Feb 2021,...

https://connect.mayoclinic.org/comment/1071225/

I got PMR after a Pfizer booster in ... I had a good GP who diagnosed PMR early

Discussion: Peripheral Neuropathy and PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 19, 2024

HI @floridabonnie I have been dealing with annoying pain deep in my thigh for almost 1...

https://connect.mayoclinic.org/comment/1047982/

almost 1 year , coinciding with my PMR ... questioning that Dx vs. a relapse of PMR

Discussion: Is this a possible relapse to PMR or something entirely different??

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 9, 2024

I agree—it’s a really broad, generalization. Inflammation does promote healing in the right amount, but excessive...

https://connect.mayoclinic.org/comment/1021827/

specialties you’d want to avoid it… But with PMR ... the steroid use is warranted and a PMR

Discussion: Upcoming surgery prevents prednisone use

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 24, 2024

If Kevzara didn't work then I doubt Actemra will work but it might be worth a...

https://connect.mayoclinic.org/comment/961827/

As a 5 year veteran of PMR and long ... Whether you have PMR or adrenal insufficiency

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 9, 2023

At present, I have no choice but to take prednisone, even with osteoporosis, since it's either...

https://connect.mayoclinic.org/comment/951589/

live in excruciating pain from the PMR ... going to have to stay on some kind of PMR

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2023

I feel your pain literally. I am off Prednisone after 3 years. I'm going to see...

https://connect.mayoclinic.org/comment/759020/

, the hands arthritis and the rest PMR ... that if it was all related to your PMR

Discussion: Increasing unrelenting pain - PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 9, 2022

@joeblo746 If you have PMR and are not getting enough prednisone your pain will not subside....

https://connect.mayoclinic.org/comment/738974/

@joeblo746 If you have PMR and are ... others, they're still battling PMR

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18, 2022

So much unnecessary suffering! The fact that prednisone eased the pain should be enough evidence for...

https://connect.mayoclinic.org/comment/714809/

your GP to assume your husband has PMR ... The treatment for PMR is prednisone

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2022

Hi.. I'm glad to find someone about the same age as me (72) with PMR and...

https://connect.mayoclinic.org/comment/704234/

about the same age as me (72) with PMR ... of the drs could relate the pain to PMR

Discussion: Does or has anyone suffered depression while on Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 30, 2022

I’m in the same boat you’re in. I’m 65 and last year I began with excruciating...

https://connect.mayoclinic.org/comment/180111/

me to Rheumatologist who feels it’s PMR ... I’m still not convinced I have PMR as

Discussion: PMR Anyone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 30, 2019

It's possible to experience both polymyalgia rheumatica (PMR) and inflammatory arthritis concurrently. This was mostly my...

https://connect.mayoclinic.org/comment/1328847/

experience both polymyalgia rheumatica (PMR

Discussion: Weight based prednisone dosing

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 17 5:46am

I have had tailbone, lower back pain since the PMR started, 2 months ago. Also pain...

https://connect.mayoclinic.org/comment/1345396/

tailbone, lower back pain since the PMR

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 10 5:21pm

I’d say avoid stress but the reality is stress finds us. The only thing we can...

https://connect.mayoclinic.org/comment/1344502/

My first bout with PMR was triggered

Discussion: PMR Remission

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9 1:08pm

Thank you. I'm going to ask my rheumatologist about Actemra! Additionally, you mentioned that you were...

https://connect.mayoclinic.org/comment/1368886/

that you were diagnosed first with PMR

Discussion: Better to be in some pain or better to up the dose of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12 8:36am