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875 total results

Comments (796)

These braces are like fingerless gloves that loop over the thumb, cover the palm of the...

https://connect.mayoclinic.org/comment/91995/

I went to the Amyloidosis Organization

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jul 20, 2017

Hi @drw32, I am glad to see you find Connect and others with Cardiomyopathy of Transthyretin-Mediated...

https://connect.mayoclinic.org/comment/1530239/

Cardiomyopathy of Transthyretin-Mediated amyloidosis

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 8:17pm

Gosh, this all sounds so familiar, and the answers should be so easy. However, we live...

https://connect.mayoclinic.org/comment/716999/

or more forms of Myeloma, such as Amyloidosis

Discussion: Undiagnosed Autoimmune Disease - No one will listen to me

Support Group: Autoimmune Diseases

Posted: Jun 13, 2022

@lily2013 About your facial swelling. I have facial swelling in some areas, and shrinkage in others....

https://connect.mayoclinic.org/comment/782293/

be cancerous evidence of my Myeloma-Amyloidosis-Gelsolin

Discussion: Facial Swelling - no diagnosis

Support Group: Autoimmune Diseases

Posted: Dec 8, 2022

Hi, I also amonthins treatment with AL Amyloidosis. Everybody is different, but generally speaking days two...

https://connect.mayoclinic.org/comment/1296892/

I also amonthins treatment with AL Amyloidosis

Discussion: Amyloidosis diagnosed through blood tests: Kidney biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

Hi, @2012can - I'm so glad that you were able to get your neuropathy and other...

https://connect.mayoclinic.org/comment/987954/

about potential development into AL amyloidosis

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Have you had any previous abdominal surgeries that could have created adhesions in your abdominal area...

https://connect.mayoclinic.org/comment/760777/

done on my kidneys & bingo….. amyloidosis

Discussion: Not being able to see an actual gastro doc at Mayo

Support Group: Visiting Mayo Clinic

Posted: Oct 13, 2022

Many causes must be investigated. Cannot post link Here are some in ncib article Structural heart...

https://connect.mayoclinic.org/comment/1165435/

Infiltrative conditions: sarcoidosis or amyloidosis

Discussion: Left Bundle Branch Block (LBBB) life expectancy?

Support Group: Heart Rhythm Conditions

Posted: Oct 30, 2024

This is a puzzlement, friend. And I think the doc is at least partly correct. Most...

https://connect.mayoclinic.org/comment/89574/

Systemic Amyloidosis. Injury.

Discussion: AFib questions

Support Group: Heart Rhythm Conditions

Posted: Sep 3, 2017

Hello. I am a RN and I am answering for my husband. He was diagnosed with...

https://connect.mayoclinic.org/comment/1062525/

husband is 82 yrs, diagnosed with Amyloidosis

Discussion: Post Radiation Therapy - Blood in Urine

Support Group: Prostate Cancer

Posted: May 5, 2024

Stumpjumper, I do not have the package you have but a vastly different mess. I have...

https://connect.mayoclinic.org/comment/239855/

I have Gelsolin -> Amyloidosis,-&

Discussion: Difficult case, several diagnosis, no solution yet

Support Group: Autoimmune Diseases

Posted: Jan 20, 2021

@aaroncush I don't know whether you're frequenting these pages, but I thought I'd try reaching you....

https://connect.mayoclinic.org/comment/1498965/

bone marrow and fat biopsies for AL amyloidosis

Discussion: What should I ask for?

Support Group: Neuropathy

Posted: Feb 5 5:33pm

I have sarcoidosis (cardiac w/pacemaker) which is an inflammatory/autoimmune disease. It sometimes goes hand in hand...

https://connect.mayoclinic.org/comment/1215885/

could fit Lupus, Rheumatoid Arthritis, Amyloidosis

Discussion: Lymphocytes on CBC

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2025

Thank you for your comment. I also super from many auto immune disorders. Graves. Endometriosis. Had...

https://connect.mayoclinic.org/comment/1216598/

so I'm being investigated for amyloidosis

Discussion: Lymphocytes on CBC

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

@devanab5 You have a tough row to how. However, there are some things you should know...

https://connect.mayoclinic.org/comment/212206/

They are forms of Amyloidosis, Light

Discussion: Suddenly became a Type I Diabetic - Don't understand how

Support Group: Diabetes & Endocrine System

Posted: Aug 25, 2018

In 2010 I became very sick and lethargic having to go on medical disability from my...

https://connect.mayoclinic.org/comment/104732/

and had the sample diagnosed as "Amyloidosis

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2018

Wow, y’all are so inspiring. I was Diagnosed with Sytemic Amyloidosis AL. It is not a...

https://connect.mayoclinic.org/comment/1058433/

I was Diagnosed with Sytemic Amyloidosis

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Apr 27, 2024

Thank you. I have been educating myself daily on AL and its affect on the body...

https://connect.mayoclinic.org/comment/88320/

We later found out it was Amyloidosis

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2019

I have learned much about this, some of it at Mayo. First, never tell Mayo what...

https://connect.mayoclinic.org/comment/129622/

various cancers (some are named AL Amyloidosis

Discussion: Depression in Heart Disease

Support Group: Heart & Blood Health

Posted: Dec 11, 2016

I am so glad to find and join this group. I have struggled with doctors not...

https://connect.mayoclinic.org/comment/884229/

told by one cardiologist that I have Amyloidosis

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023