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820 total results
Comments (749)
Hi, @pmm - what to do if the hematologists/oncologists at your clinic "don't treat MGUS"? I...
https://connect.mayoclinic.org/comment/987303/
my concerns about progressing to AL amyloidosis
@rainman316 Do you mind if I take a guess? If you have some form of amyloidosis,...
https://connect.mayoclinic.org/comment/183279/
If you have some form of amyloidosis
Hi, Lahnlaw, thirty-eight years ago my cardiologist told my wife that I would not live through...
https://connect.mayoclinic.org/comment/154282/
the same thing for this new disease (amyloidosis
@bobwesty Hi, there. Now you are sounding more like me. I have gone through a variety...
https://connect.mayoclinic.org/comment/179119/
Systemic Light Chain Deposit Disorder (Amyloidosis
@leezah Thanks so much for explaning more. I understand uncertainty and fear of the unknown when...
https://connect.mayoclinic.org/comment/678251/
with your father's diagnosis of Amyloidosis
I have learned much about this, some of it at Mayo. First, never tell Mayo what...
https://connect.mayoclinic.org/comment/129622/
various cancers (some are named AL Amyloidosis
@jackic Hi, friend. This sounds familiar... lots of tests, no answers, etc. etc. Anyway, even at...
https://connect.mayoclinic.org/comment/204212/
https://bit.Ly/1w7j4j8 under "Amyloidosis
Thank you. I have been educating myself daily on AL and its affect on the body...
https://connect.mayoclinic.org/comment/88320/
We later found out it was Amyloidosis
Wow, y’all are so inspiring. I was Diagnosed with Sytemic Amyloidosis AL. It is not a...
https://connect.mayoclinic.org/comment/1058433/
I was Diagnosed with Sytemic Amyloidosis
Yes, I have that same diagnosis too now 14 years back from my only colonoscopy which...
https://connect.mayoclinic.org/comment/872913/
survived 12 years and 2 transplants with Amyloidosis
@jeffrow Hi, friend. I think I have written earlier, but I have been thinking about you,...
https://connect.mayoclinic.org/comment/176535/
pdf, at: HTTPS://bit.Ly/1w7j4j8 "Amyloidosis
@olegraymare ...Hi, friend. Tough beans about the PMR dX. I was dXed with PMR a couple...
https://connect.mayoclinic.org/comment/180028/
Just advice. https://bit.Ly/1w7j4j8 (Amyloidosis
@undiagnosed2013 Seems to me that you, like me and millions of others around the world, especially...
https://connect.mayoclinic.org/comment/320465/
turned out to be Gelsolin, a form of Amyloidosis
My mother has been ill with a variety of issues that no one could figure out...
https://connect.mayoclinic.org/comment/88324/
She was diagnosed with AL Amyloidosis
@Lisal64 One problem I have is lazy doctors. These are people who don't know anything about...
https://connect.mayoclinic.org/comment/692176/
incurable cancer known as myeloma >Amyloidosis
@debkl Hi, there! Please do not be offended. I am neither kidding nor trying to play...
https://connect.mayoclinic.org/comment/176936/
Merotoja's Disease or Finnish Amyloidosis ... Amyloidosis.org.
@jhoffmanj HOHOHO! I knew somebody read my long-winded stuff! And thank you Colleen, for noticing about...
https://connect.mayoclinic.org/comment/173898/
Colleen, for noticing about Cardiac Amyloidosis
About 4 years ago I was going through the references in known symptoms of anything when...
https://connect.mayoclinic.org/comment/68744/
not TTR, but they could not rule out Amyloidosis
Judy, sadly that’s par for the course with some of our blood diseases…fatigue. And with that...
https://connect.mayoclinic.org/comment/724281/
level in his breathing along with the amyloidosis
I would add just a little to my previous statement. I have the same symptoms, and...
https://connect.mayoclinic.org/comment/717645/
your Gelsolin (also called Finnish Amyloidosis
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