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Comments (1,917)
Hi @barbsnow, Not sure I could have made it through my 2 occurrences of PMR without...
through my 2 occurrences of PMR without prednisone ... 6 years and it really helped me to taper ... off of prednisone quicker, one and
Posted: Sep 16, 2023
Hi Folks, I am new to PMR, just over 2 months on Prednisone (had symptoms 6...
(had symptoms 6 months before Prednisone ... am trying to learn tapering schedules ... there has a story of quickly getting off ... What is the shortest taper schedule ... do realize the importance of a slow taper
Posted: Sep 18, 2023
I was originally diagnosed with PMR in Dec 2019. After taking my first 15mg of Prednisone...
After taking my first 15mg of Prednisone ... think it was due to being told to taper ... to 40mg which I am still trying to taper ... been offered Leflunomide to help me taper ... off Pred but hesitant to take it with
Posted: Sep 20, 2023
Thanks for your reply @samara66 My a.m. cortisol level was tested and found to be low....
I was encouraged to taper down to the ... I was able to taper off prednisone when ... I tapered my prednisone dose down to ... I did a quick taper down to zero over ... couple of days and I was suddenly off
My very first injection of Actemra was January 1st, 2019. I started with injections every 2...
I got off prednisone for the first time ... It took me 9 months to taper off prednisone ... off prednisone again because of PMR ... I wanted to be off prednisone. ... off prednisone even faster the second
I think a person's weight should be considered. I'm not sure how often weight is considered....
for a month or two before trying to taper ... Plus, I took prednisone for years at ... had some tolerance for high doses of prednisone ... was diagnosed, I was always able to taper ... off quickly.
Posted: Aug 10, 2023
You may be interested the Treat-to-target link given by John in his post above. Having searched...
durations and don't push for getting off ... prednisone at any cost. ... Tapering off treatment should always
Posted: Aug 11, 2023
I might be the only person who thinks prednisone might have caused me to have PMR...
I was always able to taper off prednisone ... ophthalmologist said I was "skilled" at tapering ... off prednisone because I did it frequently ... I tried to taper off prednisone in ... It was impossible for me to taper off
Posted: Oct 21, 2023
Ok, so if this is secondary to the steroid use, have you been told your adrenal...
recognizing it already has (replacement by prednisone ... Usually a person is placed on a long taper ... off the steroids in order to allow ... If the taper is not long enough or the
Am also taking risendronate weekly for past 2 years with no side effects. Took prednisone for...
Took prednisone for 14 months for PMR ... up of PMR late January so back on Prednisone ... in Feb and now tapering off for the
Posted: Mar 27 8:20pm
My very first injection of Actemra was on January 1st, 2019. I thought it was appropriate...
off Prednisone but it took me a year ... off in 3 months. ... When I tapered off the first time it ... uveitis flare resolved but when I tapered ... I was off prednisone the second time
I first came down with PMR in March 2020 after my 2nd Shingrix shot. It took...
It took me 20 months of a slow taper ... up and down to get off prednisone. ... I tried every possible way to get off ... prednisone sooner but it seems you
HI @glinda47, I was fortunate not to wind up in the ER with Prednisone IV. I...
I was put on an oral dosage of prednisone ... 40 mg when diagnosed with GCA, then tapered ... I took prednisone for about 16 months ... I've been off it nearly as long. ... The high dosage of prednisone gave me
"Would you mind sharing what medication you took to take off the Prednisone? Do you still...
off prednisone wasn't going well ... off prednisone. ... off prednisone again. ... off prednisone again. ... The longer I stay off Prednisone the
"I read the other day that someone received Actemra for PMR. According to our rheumatologist, it's...
much sooner because I was able to taper ... off prednisone in 1 year after Actemra ... prednisone. ... Besides being off Prednisone, I' ... m also off many of the medications I
I don't know how avid of a golfer you are but you might want to cut...
Prednisone can make you feel like you ... When you take 20 mg of prednisone it ... Prednisone isn't a good substitute ... learn more about this when you try to taper ... off prednisone.
Encouraging news from MTH13 on EGPA. I am now past the second dose of Nucala, a...
I have tapered my prednisone to currently ... continue weekly to lowered doses and off ... and certainly better than staying on prednisone
Support Group: Autoimmune Diseases
Posted: Apr 13 7:04am
My endocrinologist wasn't exactly an "adrenal specialist" but she had insight into the problem with adrenal...
most amazing thing was not having taper ... -- no tapering required. ... I did a fast taper --- 3 mg to zero ... for about 4 months and I tapered off ... again ---so much for slow tapers.
Posted: Apr 25 6:56am
So sorry to hear you've had a relapse. I hope you do well on your taper...
I hope you do well on your taper and ... can get off Prednisone as soon as possible
Posted: May 1 4:43pm