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984 total results
Comments (955)
I was diagnosed with MDS with ring sideblasts in December 2024. I was on the mend...
was on the mend from a very painful PMR ... and fatigue symptoms, along with the PMR ... on prednisone, and then biologic (actemra ... prednisone successfully, and have not had PMR
Posted: Mar 3 5:32pm
Actemra (tocilizumab) was FDA approved to treat GCA back in 2017. I was started on Actemra...
Actemra (tocilizumab) was FDA approved ... treat PMR. ... before Kevzara was FDA approved for PMR ... "should work" for PMR since ... there is a close association between PMR
Posted: Mar 13 3:07pm
I have GCA and PMR diagnosis Nov 2024 . Immediate start on 50mg pred rapid taper...
I have GCA and PMR diagnosis Nov 2024 ... on 50mg pred rapid taper and weekly Actemera ... Now I’m on Actemera as a mono treatment ... any relapses would be treated with Actemera ... Actemera has been effective for me and
Posted: Feb 16 9:27pm
My first experience with an autoimmune disorder wasn't PMR or GCA. It was triggered by an...
an autoimmune disorder wasn't PMR ... I just remember PMR started after I ... At first when PMR symptoms started, ... Finally, PMR was diagnosed nearly 20 ... Actemra has been substituted for Prednisone
Thanks for this information. I have an appt this Tuesday with my rheumatologist to discuss adding...
pred in late July 2024 for GCA and PMR ... I want her to consider Actemra for me ... methotrexate, before Medicare will approve Actemra
Yes, I had PMR before the GCA symptoms started. It was never officially diagnosed, but starting...
Yes, I had PMR before the GCA symptoms ... worked out for you to get treated with Actemra ... Prednisone and Actemra both have some
Posted: Dec 31, 2024
Your CRP and ESR levels aren't that useful when taking Actemra. Anti-Il-6 therapy will reduce CRP...
aren't that useful when taking Actemra ... I have done monthly Actemra infusions ... You still have PMR/GCA. ... I had PMR for more than 12 years before ... year to taper off Prednisone after Actemra
Posted: Dec 9, 2024
A long list of medications were tried. I started with 40 mg of Prednisone and NSAIDS...
Ultimately, Actemra (IL-6 inhibitor) ... TNF-inhibitor) wasn't any help for PMR ... I just do a monthly infusion of Actemra ... When I said nothing other than Actemra ... She said Actemra treated "inflammation
Posted: Nov 29, 2024
"It sounds like you have a keeper for a rheumatologist. That is half the battle. I...
The diagnosis that Actemra treated was ... "refractory PMR." The request ... prednisone for 12 years to treat refractory PMR ... PMR was just my latest addition and ... PMR, I had a massive flare of panuveitis
Posted: Nov 17, 2024
Hi @dengland, Your description of your PMR journey sounds similar to mine but you were a...
dengland, Your description of your PMR ... very high stress job and even though PMR ... I have had 3 Actemra infusions and am ... that mine will arrived with the next Actemra
Posted: Nov 17, 2024
Hello again everyone, I’m curious about Actemra side effects. Methotrexate gave me terrible headaches and Kevzara...
again everyone, I’m curious about Actemra ... is the same binding ingredient in Actemra ... If I can’t use Actemra, I’m told it ... mg prednisone for newly diagnosed PMR ... I pray I can try Actemra with no problems
Posted: Nov 14, 2024
The 5-7 mg dose of Prednisone is what I call the "adrenal zone" because that is...
This pain is very similar to PMR pain ... when I was originally diagnosed with PMR ... Actemra allowed me to do this. ... the pain crisis was more severe than PMR ... pain but I thought it was a PMR flare
Posted: Nov 11, 2024
Kevzara is now an option for me since it was FDA approved for PMR in February...
for me since it was FDA approved for PMR ... biologics that were FDA approved for PMR ... Now my PMR is said to be in remission ... Either one should work for PMR but maybe ... not for everyone with PMR.
Posted: Nov 11, 2024
I just wish to say that Actemra should help with PMR but it takes time. I...
I just wish to say that Actemra should ... help with PMR but it takes time. ... 12 years for "refractory" PMR ... It took me a year after starting Actemra ... My symptoms on Actemra aren't like
Posted: Nov 2, 2024
I was diagnosed with PMR and possible GCA in July 2024. Started on 60 mg. of...
I was diagnosed with PMR and possible ... I had my first Actemra infusion this ... their prednisone tapers after starting Actemra ... group with a lot of experience with PMR
Actemra works well for PMR/GCA. What it doesn’t help with is adrenal insufficiency. My cortisol level...
Actemra works well for PMR/GCA. ... insufficiency and prednisone withdrawal from PMR ... I think Actemra indirectly helps adrenal ... would have ever stayed on 3 mg without Actemra
I’m definitely not the one to ask because my nails have always been thin and split...
I am taking both prednisone and Actemra ... I think you’re right, it’s not the Actemra ... It’s either PMR or prednisone.
Posted: Jan 23 6:38pm