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Comments (918)

A gentle reminder that the topic of this discussion is CIDP (chronic inflammatory demylinating polyneuropathy). For...

https://connect.mayoclinic.org/comment/238715/

that the topic of this discussion is CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Oct 2, 2020

Like @jeffrapp , any contact, even loose socks, cause burning pain for me. The irony is...

https://connect.mayoclinic.org/comment/1014006/

But she doesn't have CIDP.

Discussion: Cold feet due to neuropathy - need help

Support Group: Neuropathy

Posted: Feb 11, 2024

Hello @txamo, Welcome to Mayo Clinic Connect. You will notice that we have moved your post...

https://connect.mayoclinic.org/comment/238696/

post to an existing discussion "CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Sep 28, 2020

Do you still have your foot drop? I had no idea what it was. I only...

https://connect.mayoclinic.org/comment/1034374/

I have CIDP. ... eventually led to my diagnosis of CIDP ... what I am experiencing is related to CIDP

Discussion: Thigh weakness/foot drop after spine surgery

Support Group: Spine Health

Posted: Mar 15, 2024

Thanks for the reply. Well he doesn't really know if it's CIDP. All of his previous...

https://connect.mayoclinic.org/comment/1152731/

doesn't really know if it's CIDP

Discussion: Lumbar puncture - my next step in my journey

Support Group: Neuropathy

Posted: Oct 6, 2024

New here and to the Mayo forum in general. I was first misdiagnosed in 2020 then...

https://connect.mayoclinic.org/comment/1034696/

2020 then properly diagnosed in 2021 CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 16, 2024

Hello! I’m 76 years old woman and I was just diagnosed with anti Mag. Originally it...

https://connect.mayoclinic.org/comment/910945/

Originally it was just CIDP and my neurologist

Discussion: Anti Myelin Associated Glycoprotein Antibodies

Support Group: Neuropathy

Posted: Aug 10, 2023

I was diagnosed with peripheral sensorimotor polyneuropathy last year with symptoms mostly in my feet and...

https://connect.mayoclinic.org/comment/896792/

The EMG resulted in a diagnosis of CIDP

Discussion: CIDP Support Group

Support Group: Autoimmune Diseases

Posted: Jul 16, 2023

I just started reading the understanding B6 toxicity website someone here posted. I was aware of...

https://connect.mayoclinic.org/comment/1137110/

and I eventually was diagnosed with CIDP ... field) told me I didn’t have GBS or CIDP

Discussion: severe peripheral neuropathy and vitamin B6

Support Group: Neuropathy

Posted: Sep 6, 2024

Hello @26sabrina and @danawyn, I would like to welcome you both to Connect. One of the...

https://connect.mayoclinic.org/comment/782523/

Do you have CIDP (Chronic Inflammatory

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Dec 8, 2022

Hi Hank, I am still taking gabapentin for neuropathy that is a residual of the CIDP....

https://connect.mayoclinic.org/comment/99624/

neuropathy that is a residual of the CIDP

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Nov 5, 2020

I’m with you having been dealing with this disease about 11 yrs now. Been thru 7...

https://connect.mayoclinic.org/comment/968567/

my whole body is affected by this CIDP

Discussion: CIDP Support Group

Support Group: Autoimmune Diseases

Posted: Nov 21, 2023

I have neuropathy caused by DADS which is a variant of CIDP. The symptoms began within...

https://connect.mayoclinic.org/comment/942856/

caused by DADS which is a variant of CIDP

Discussion: Anyone had a problem with neuropathy after receiving the vaccine?

Support Group: Neuropathy

Posted: Oct 6, 2023

I am trying to navigate IVIG for CIDP and Medicare coverage. My wife has a Medicare...

https://connect.mayoclinic.org/comment/837820/

I am trying to navigate IVIG for CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Apr 4, 2023

@debgio11 Hi, Deb. I am a 54 year old female with small fiber neuropathy, cervical spondylitic...

https://connect.mayoclinic.org/comment/1051075/

MRN, and bloodwork to rule out MS/CIDP ... I understand that CIDP needs a spinal

Discussion: Am I getting the best treatment for my SFN?

Support Group: Neuropathy

Posted: Apr 15, 2024

Good morning I have been diagnosed with CIDP and the pain, numbness and tingling was terrible....

https://connect.mayoclinic.org/comment/1261649/

morning I have been diagnosed with CIDP

Discussion: How much R-ALA to take?

Support Group: Neuropathy

Posted: Mar 19 8:00am

A neurologist does an EMG/nerve conduction test to test for neuropathy. Yes, the motor neuropathy causes...

https://connect.mayoclinic.org/comment/1068840/

They are now testing me for CIDP.

Discussion: Has anyone had a tilt table test or examination?

Support Group: Autoimmune Diseases

Posted: May 16, 2024

Good morning, I had similar issues after my Moderna vaccines. My left foot and leg had...

https://connect.mayoclinic.org/comment/670495/

providers the neurologist said I have CIDP

Discussion: Anyone had a problem with neuropathy after receiving the vaccine?

Support Group: Neuropathy

Posted: Jan 13, 2022

I have had Hashimoto's since my teens. I now have CIDP, a rare autoimmune neurological disorder,...

https://connect.mayoclinic.org/comment/151073/

I now have CIDP, a rare autoimmune neurological

Discussion: Hashimoto's Thyroiditis and IVIG Treatment?*

Support Group: Autoimmune Diseases

Posted: Jun 5, 2020

Were you able to follow the link to the study I included? NAC is N-acetyl cysteine...

https://connect.mayoclinic.org/comment/938829/

CIDP which is also known as chronic

Discussion: Risk of vaccine for Autoimmune compromised?

Support Group: Autoimmune Diseases

Posted: Sep 29, 2023