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726 total results

Comments (686)

Hi all, I am new to the group and grateful to have found it. My symptoms...

https://connect.mayoclinic.org/comment/880547/

8.5mg (while waiting for approval of Kevzara

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18, 2023

@mikeshell HI Mike ! i am curious about your comment from 5mg to 3 mg --...

https://connect.mayoclinic.org/comment/905603/

specifically if you are now a candidate for Kevzara

Discussion: Trying to determine long term prednisone versus other prescriptions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1, 2023

I hope you get help. PMR can also lead to GCA. Swelling of your temporal artery...

https://connect.mayoclinic.org/comment/1071498/

experience with newer drugs such as Kevzara

Discussion: 3 1/2 years of chronic pain~ Still looking for solutions~please help

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20 9:06am

I don't know very much about RA but it can cause bilateral shoulder pain. https://www.verywellhealth.com/rheumatoid-arthritis-shoulders-5075449 For...

https://connect.mayoclinic.org/comment/1077489/

However, besides Prednisone and Kevzara

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29 10:33pm

I am in agreement, before being diagnosed I had all my well meaning fam and friends...

https://connect.mayoclinic.org/comment/1013098/

I recently tried kevzara and am not

Discussion: Acupuncture and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 10 11:35am

Frustration again!! Rheumatologist finally got back to me after I sent a second message today. She...

https://connect.mayoclinic.org/comment/1118212/

She keeps pushing methotrexate and kevzara

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5 9:45am

Thank-you but when I looked to find information I found the following: "What Is Not Eligible...

https://connect.mayoclinic.org/comment/869380/

Now Kevzara is another IL-6 receptor

Discussion: Polymyalgia Rheumatica (PMR) - Clinical Trials

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 30, 2023

I remember when I first started taking Actemra about 4 years ago. My ESR and CRP...

https://connect.mayoclinic.org/comment/960562/

The same is probably true for Kevzara

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 7, 2023

Well, my third attempt at tapering didn't end well, same as the first two. I went...

https://connect.mayoclinic.org/comment/1152260/

ex-rheumie discussed starting me on Kevzara

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 5 8:58am

My wife has uveitis. This created glaucoma. I know dadcue on this site suffers from inflammation...

https://connect.mayoclinic.org/comment/1080299/

Like Acterma or Kevzara.

Discussion: Tapering and Dealing with a Flareup

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 4:20pm

I started with Actemra (tociliumab) injections every 2 weeks. After a year, the injections were changed...

https://connect.mayoclinic.org/comment/1160479/

inflammation pathway in the same way as Kevzara

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21 10:57am

jabrown, I hear you. I am also extremely med sensitive and do not want to even...

https://connect.mayoclinic.org/comment/1050578/

I've seen re: Actemra, hydrox, Kevzara

Discussion: Shifting from Prednisone to Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 14 10:57am

In my 6th year of pmr. Been below 5 mg several times. A year ago both...

https://connect.mayoclinic.org/comment/1076839/

Suggested Kevzara which I said I would

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29 6:15am

@jabrown0407 suggestions have merit. I took Prednisone for more than 12 years. My primary diagnosis was...

https://connect.mayoclinic.org/comment/1122681/

Kevzara is another biologic medication

Discussion: Has anyone tried stem cell therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 13 9:02am

It is interesting that you are off prednisone and your doctor is considering starting Actemra. I...

https://connect.mayoclinic.org/comment/989895/

A similar biologic called Kevzara is ... news-releases/news-release-details/kevzarar-sarilumab-approved-fda-first-and-only-biologic

Discussion: Methotrexate / Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 1 5:46pm

I totally agree that a Mediterranean diet, focusing on anti-inflammatory foods, is super helpful. I have...

https://connect.mayoclinic.org/comment/934137/

I have taken six rounds of Kevzara so

Discussion: Diet & PMR.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 22, 2023

One would hope PMR patients of the future will have better options than prednisone. I took...

https://connect.mayoclinic.org/comment/892625/

least was Actemra which is similar to Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2023

I was on prednisone for almost two years starting at 15 Mg but quickly learned my...

https://connect.mayoclinic.org/comment/1111907/

30lb my rheumatologist put me on kevzera ... Swelling is not a side effect from Kevzara ... inflammationh markers have not gone up on Kevzera ... terrible different pain I am giving Kevzera

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25 10:13pm

In reply to @jabrown0407 "When I received my first PMR diagnosis I refused steroids long term...

https://connect.mayoclinic.org/comment/1050579/

I've seen re: Actemra, hydrox, Kevzara

Discussion: Shifting from Prednisone to Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 14 10:58am

There is no tapering strategy that has been researched that will allow you to taper off...

https://connect.mayoclinic.org/comment/1143510/

Only Kevzara is FDA approved to treat