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Comments (1,324)

Hi to all! I've had CRPS in my left hand/arm for a year now. I'm interested...

https://connect.mayoclinic.org/comment/95296/

I've had CRPS in my left hand/arm for ... interested in learning how others cope with CRPS ... practitioners all knew a lot about CRPS ... Oh, and how do others explain CRPS to

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Apr 4, 2017

I was told by rehabilitation therapist I dont have to be like this REALLY I been...

https://connect.mayoclinic.org/comment/89154/

like this REALLY I been dealing with CRPS

Discussion: Complex regional pain syndrome or reflex sympathetic dystrophy

Support Group: Chronic Pain

Posted: Jan 18, 2019

Hi @rags that must be so frustrating. I wanted to tag fellow Connect members, @rsnowflake @lizzyisme...

https://connect.mayoclinic.org/comment/258780/

lizzyisme and @mam14 have all dealt with CRPS

Discussion: CRPS or Peripheral Neuropathy

Support Group: Brain & Nervous System

Posted: Apr 14, 2019

Yes I've always worn glasses but since being diagnosed with crps , I failed my field...

https://connect.mayoclinic.org/comment/244482/

glasses but since being diagnosed with crps

Discussion: Want to talk with others. Have you found relief from CRPS?

Support Group: Chronic Pain

Posted: Feb 8, 2019

Hello Charlton (@charlton), I see that your diagnosis from one of your earlier posts is RSD...

https://connect.mayoclinic.org/comment/96273/

one of your earlier posts is RSD (CRPS ... available: http://www.rsdhope.org/crps-treatments.html

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Oct 8, 2017

Hello, Just joined this very informative site a few minutes ago. Here is my story :...

https://connect.mayoclinic.org/comment/91839/

physical therapy learned that I had CRPS ... went to said I know longer have the CRPS

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Apr 8, 2017

I totally agree. Can I recommend combining occasional accpuncture and massage with med. treatment. I don't...

https://connect.mayoclinic.org/comment/842911/

effects for my Chronic Pain Syndrome (CRPS

Discussion: Abuse of Opioids takes away from all the good it can do

Support Group: Chronic Pain

Posted: Apr 13, 2023

Thank the DEA for the Opioid fiasco. As for a drug? They have some good ones...

https://connect.mayoclinic.org/comment/99219/

CRPS is a rare disease and incurable

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Oct 7, 2020

I'm supposed to be able to post this again. Having trouble. TONIGHT. 7PM. March 5th. Philip...

https://connect.mayoclinic.org/comment/1251012/

Getson, D.O., one of the few serious CRPS

Discussion: The Pain in CRPS

Support Group: Brain & Nervous System

Posted: Mar 5 11:38am

I have had CRPS since 1993 from surgery on my right ankle for tarsal tunnel s...

https://connect.mayoclinic.org/comment/749228/

I have had CRPS since 1993 from surgery

Discussion: Complex regional pain syndrome (CRPS) and feeling blank

Support Group: Chronic Pain

Posted: Sep 13, 2022

Hi I am daddylonglegs. I have CRPS and have had it for 21 years now and...

https://connect.mayoclinic.org/comment/96858/

I have CRPS and have had it for 21 years

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Apr 6, 2018

I agree about neurologists. My pain management doctor has started me on Low Dose Naltrexone. I...

https://connect.mayoclinic.org/comment/1004599/

So far I have had relief of my CRPS

Discussion: Your Thoughts on a Foundation for Small-Fiber and Autonomic Neuropathy

Support Group: Neuropathy

Posted: Jan 27, 2024

Where is your CRPS? My is in my foot, so I am a little nervous about...

https://connect.mayoclinic.org/comment/873429/

Where is your CRPS?

Discussion: Anyone with CRPS been to Mayo Pain Rehabilitation Centers?

Support Group: Chronic Pain

Posted: Jun 6, 2023

Hi, I’m Finny4606 and I was diagnosed with CRPS by my pain management dr about 2-1/2...

https://connect.mayoclinic.org/comment/824283/

Finny4606 and I was diagnosed with CRPS

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Mar 10, 2023

I would love to at least try ketamine, but it is too risky for me. The...

https://connect.mayoclinic.org/comment/274765/

The pain from the CRPS could probably

Discussion: Ketamine for chronic pain

Support Group: Chronic Pain

Posted: Dec 14, 2020

Is there anyone out there with Narcolepsy & Cataplexy? I cannot take any stimulants for my...

https://connect.mayoclinic.org/comment/40613/

significantly increase my chronic CRPS

Discussion: Narcolepsy Type 1 (Narcolepsy with Cataplexy)

Support Group: Sleep Health

Posted: Aug 21, 2018

Hi everyone! I just joined. My first post disappeared before I was ready to post. I...

https://connect.mayoclinic.org/comment/709363/

I have the nerve disease CRPS (Complex ... Research shows SCS are not for CRPS ... CRPS is now causing trouble with heartbeat

Discussion: Neuropathy after TKR: I'm 68 and fearful of future

Support Group: Neuropathy

Posted: May 18, 2022

Hi Laura, I just read your message several times, to try to get a clue as...

https://connect.mayoclinic.org/comment/256434/

I also read about CRPS. ... that strikes me that you do not have CRPS ... years and coming back is unusual for CRPS

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: Apr 29, 2019

Hello @rags. I would like to invite @mam14, @rsnowflake, @struggler23, @barbbie, @lizzyisme, to this conversation as...

https://connect.mayoclinic.org/comment/254841/

have all recently discussed having CRPS

Discussion: CRPS Question: Itching

Support Group: Chronic Pain

Posted: Mar 13, 2019

I was diagnosed w crps in 2022 by a pain management clinic in Oregon. Started after...

https://connect.mayoclinic.org/comment/1193786/

I was diagnosed w crps in 2022 by a

Discussion: CRPS - anyone suffering with complex regional pain syndrome

Support Group: Chronic Pain

Posted: Dec 19, 2024