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723 total results
Comments (699)
My husband developed PMR in May 2023 and GCA (giant cell arteritis) in February 2024. Three...
husband developed PMR in May 2023 and GCA ... Three weeks ago he started weekly Actemra ... He was on 80 since development GCA and ... anyone experienced being tired after an Actemra ... It’s kind of early to know what the Actemra
Posted: Apr 1, 2024
I’m so sorry to hear you’ve had relapses. My husband was diagnosed with PMR in May...
diagnosed with PMR in May 2023 and GCA ... treatment initially) and also started Actemra ... he doesn’t get relapses because his GCA
Posted: Mar 20, 2024
My husband has just been given Actemra (injections you do at home.) We picked it up...
My husband has just been given Actemra ... on literature I've read about Actemra ... said my husband has a severe case of GCA ... 80 mg daily of Prednisone since his GCA ... said they didn't think he had GCA
Posted: Feb 29, 2024
"The pathway forward is to get pred down below 10 and then off ..." That sounds...
inflammation pathway implicated with PMR/GCA ... I took Actemra but no reason to believe ... 10 mg to zero was easy when I took Actemra ... Actemra is preventing PMR flares from
I had difficulty coming off prednisone after starting Actemra. It took me an entire year to...
coming off prednisone after starting Actemra ... taper from 10 mg to zero while doing Actemra ... I had to persevere with Actemra but ... Your PMR/GCA symptoms may gradually ... return when Actemra is stopped.
Hi Krueg, I was diagnosed with GCA and PMR in 2017. I was on 60-80mg of...
Hi Krueg, I was diagnosed with GCA and ... for 8 months and then switched to Actemra ... I stayed on Actemra until Nov of 2021 ... Actemra weakens your immune system so
Not being able to taper gracefully is a good way to describe it. There was nothing...
Actemra (tocilizumab) helped me taper ... Actemra is FDA approved for GCA. ... Kevzara and Actemra target the same
Thank you for your words, which have given me hope. I am so glad to hear...
to hear about your experience with Actemra ... I was diagnosed with GCA in February ... However, throughout treatment for GCA ... that I have large-vessel vasculitis (GCA ... that she thinks I'd need to be on Actemra
Discussion: GCA conserns
Posted: Nov 30, 2023
Charlotte. I had PMR somewhere back around 2011 when I finally got off prednisone 2014 I...
got off prednisone 2014 I developed GCA ... Never mentioned GCA during my treatment ... rheumatologist do not know much about GCA ... However, I am still on prednisone and Actemra
Posted: Nov 26, 2023
Hello @amu66, I would like to add my welcome to Connect along with @pag1949 and others....
finally are on track for treating GCA ... topic. "Giant cell arteritis (GCA ... an inflammatory vascular disease, GCA ... -- What's your experience with Actemra ... for GCA?
Posted: Nov 19, 2023
I took prednisone for more than 30 years for a variety of autoimmune problems but GCA...
variety of autoimmune problems but GCA ... Perhaps I was never diagnosed with GCA ... Uveitis was easy to diagnose compared to GCA ... I'm not sure PMR and/or GCA responds ... a massive flare of uveitis ... not GCA
Posted: Oct 21, 2023
Actemra is FDA approved for the treatment of GCA. I hope Actemra works for you. I...
Actemra is FDA approved for the treatment ... of GCA. ... I hope Actemra works for you. ... I wasn't diagnosed with GCA but ... was to treat me the same as if I had GCA
Posted: Oct 18, 2023
It would have been interesting if my IL-6 level was checked before starting a biologic medication...
The medication was called Actemra ( ... https://www.actemra.com/gca/considerations ... After starting Actemra, I was able to
Posted: Oct 16, 2023
I just wanted to suggest that finding a "stable dose" of prednisone that works was more...
Approval for a biologic called Actemra ... My rheumatologist said Actemra might ... Actemra was FDA approved for GCA. ... I had no clue what Actemra was so I ... Actemra still isn't FDA approved
Posted: Oct 5, 2023