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Comments (10,000+)

But in some cases, there are no bloodwork markers. Am one of those. Nothing showed up...

https://connect.mayoclinic.org/comment/1086058/

and X-rays concluded it was indeed PMR

Discussion: Tapering and Dealing with a Flareup

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 13, 2024

I was on Prednisone for over a year prior. I had a lot of side effects...

https://connect.mayoclinic.org/comment/1080135/

I was finally diagnosed with PMR in

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3, 2024

I have PMR and GCA and had terrible discomfort in only my right foot. I am...

https://connect.mayoclinic.org/comment/1063848/

I have PMR and GCA and had terrible

Discussion: Peripheral Neuropathy and PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 7, 2024

My PMR, before treatment and when it flares, feels like someone is whacking me with a...

https://connect.mayoclinic.org/comment/1024765/

My PMR, before treatment and when it

Discussion: Question about PMR pain locations

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 29, 2024

Thank you! That’s what I hope is happening to me. Both my GP and Rheumatologist warned...

https://connect.mayoclinic.org/comment/1022227/

Best of luck on your PMR-free journey

Discussion: Post prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25, 2024

I was diagnosed with PMR and GCA in 2017. Was on 80mg of Pred for 8...

https://connect.mayoclinic.org/comment/989328/

I was diagnosed with PMR and GCA in

Discussion: Methotrexate / Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 31, 2023

I definitely believe my PMR was triggered by starting a very limited low-key exercise program after...

https://connect.mayoclinic.org/comment/960452/

I definitely believe my PMR was triggered

Discussion: Can PMR be induced by Exercise

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 7, 2023

I have been diagnosed with PMR and GCA the end of January. I went down to...

https://connect.mayoclinic.org/comment/951454/

I have been diagnosed with PMR and GCA

Discussion: Headache in back of head possible symptom of GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2023

Hi @coppertop71 - you may notice I moved your discussion and combined it with an existing...

https://connect.mayoclinic.org/comment/949758/

an existing discussion titled: "PMR

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 18, 2023

I have had a persistent itch in exactly the same place for decades, but as I...

https://connect.mayoclinic.org/comment/945728/

convinced that I have had low level PMR

Discussion: Itching upper to mid back

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 11, 2023

Hi @edinnola, Thank you for starting this discussion and sharing your PMR treatment journey with Kevzara....

https://connect.mayoclinic.org/comment/942583/

starting this discussion and sharing your PMR

Discussion: Starting treatment with Kevzara: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 5, 2023

Yes, I do see a rheumatologist. It originally took 3 different doctors and 3 months to...

https://connect.mayoclinic.org/comment/874614/

different doctors and 3 months to diagnose PMR

Discussion: Have you been able to taper prednisone with long lasting success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 8, 2023

I have prickly feelings but not numbness in my legs (near ankle and knee) occasionally. It...

https://connect.mayoclinic.org/comment/737644/

I think it is related to the PMR because

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 15, 2022

Hi Thank you for replying and yes i have both PMR and GCA i have had...

https://connect.mayoclinic.org/comment/725027/

you for replying and yes i have both PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8, 2022

My PMR symptoms began not long after I got my Maderna COVID shots. I’m still waiting...

https://connect.mayoclinic.org/comment/650896/

My PMR symptoms began not long after

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 3, 2021

Hi @virginiaj. There are also genetic markers for PMR and GCA, which I haven't seen mentioned...

https://connect.mayoclinic.org/comment/639601/

There are also genetic markers for PMR

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 27, 2021

I think we think alike. I want to knock PMR out of my system; then taper....

https://connect.mayoclinic.org/comment/601490/

I want to knock PMR out of my system

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 13, 2021

Hi @ambershe, I never noticed any eyesight side effects from the 2 occurrences of PMR that...

https://connect.mayoclinic.org/comment/137936/

effects from the 2 occurrences of PMR

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 14, 2019

@dadcue Thank you for the link. It sure explains things very clearly. This PMR / Prednisone...

https://connect.mayoclinic.org/comment/1143448/

This PMR / Prednisone journey we are

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 18, 2024

Hi John, you are correct, it is not uncommon to misdiagnose PMR. This is my story......

https://connect.mayoclinic.org/comment/1263934/

it is not uncommon to misdiagnose PMR ... elsewhere in this sea of comments under PMR ... the classic textbook symptoms for PMR ... the Cleveland Clinic doubts I had PMR ... It could be something other than PMR

Discussion: Surprised and Uncertain: Should I get a second opinion?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 22 8:50am