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927 total results
Comments (883)
HI I am new to the group. I have not understood how to private message anyone...
been dx with Non-Length Dependent Small ... Fiber Neuropathy last week, after 2 ... Fiber Neuropathy diagnosis, I started ... I don't know what I can actually ... do to help.
Support Group: Neuropathy
Posted: Jul 29, 2023
Seems we all may have similar symptoms to varying degrees, and some days are better than...
Up until 2021, I was leading what I ... neurologist who said I likely don't have neuropathy ... in my lower back rather than in the small ... fiber nerves of my feet. ... Maybe a fusion at L-4/L-5/S-1 would help
Discussion: Whats my future?
Support Group: Neuropathy
Posted: Jun 17 10:42am
Hi Yulander, Welcome to Connect. Can you share what the new medication is? I don't have...
Can you share what the new medication ... but do have an autoimmune disease - small ... fiber peripheral neuropathy which was ... nutrition changes that I can make to help
Support Group: Brain & Nervous System
Posted: Oct 25, 2016
@basenjidad I have spine issues and just had surgery on L3-L5 to decompress my spinal cord/nerve...
and neurogenic clarification plus small ... fiber neuropathy. ... fiber neuropathy. ... exactly where the bullet is lodged and what ... Do you have family/friends who help
Support Group: Neuropathy
Posted: Sep 13 6:26am
Hi there Pam and welcome. We (John and I) are not ganging up on you. I...
I just couldn't help but slip in ... which is not a good start with SFN (small ... fiber neuropathy). ... What is your climate like? ... Does any of this help with your inquiries
Support Group: Neuropathy
Posted: Oct 24, 2022
I have some questions for anyone who has Paroxysmal Supra-ventricular Tachycardia. It has been awhile since...
SNF and he said he didn't know what ... of the Metoprolol because it is not helping ... have treated and/or familiar with small ... nerve fiber. ... did read on Mayo about the autonomic neuropathy
Support Group: Neuropathy
Posted: Sep 5, 2022
Hi @mikeg0822 No worries about a long message. Talking it out is good. I understand not...
an umbrellas other diagnoses like neuropathy ... with neuropathy mainly. ... the end of the day, you have to do what ... help, what works...it gets confusing ... connect.mayoclinic.org/discussion/tingling-from-small-fiber-neurapathy
Support Group: Neuropathy
Posted: Oct 1, 2022
I have read a lot of everyones stories. I have a question of everyone who was...
who was diagnosed with Idiopathic Small ... Nerve Fiber Neuropathy non-length dependent ... rhythm he said to me it is normal what ... I say what a coincidence that it has ... the beta blocker because it did not help
Support Group: Neuropathy
Posted: Sep 29, 2022
I have vibrations/tremors in my head that started 6 month ago (2 month after my booster)....
fall asleep and I took Benadryl to help ... I am experiencing SFN symptoms (small ... fiver neuropathy). ... I tried Gabapentin to sleep, which helped ... What are you taking to fall asleep at
Hello @yojimbob, Welcome to Connect. It took me a minute but I did crack a smile...
are many, we are all different and what ... has helped each of us. ... I have idiopathic small fiber peripheral ... Journey Stories: What's Yours? ... you can about your conditions and what
Support Group: Neuropathy
Posted: Sep 18, 2022
Good evening @christine7, I have taken some time to get to know you a bit by...
the numbness and tingling of my SFN (small ... fiber neuropathy). ... first Neurologist was very kind and helpful ... It may not even be neuropathy. ... How can I help you? Chris
Support Group: Neuropathy
Posted: Nov 30, 2022
Good evening @grannymary7077, welcome to Connect and our neuropathy group. I think you can do a...
I think you can do a lot to help yourself ... I have had SFN (small fiber neuropathy ... What started with my toes in the right ... I am happy to help you on this journey ... What are you most concerned about at
Support Group: Neuropathy
Posted: Dec 4, 2022
Have you had an EMG? If so, what did it show? With those questions out of...
neurologist who dx me with large and small ... fiber neuropathy but said my symptoms ... that, in addition to the large and small ... fiber neuropathy dx at Mayo, I have ... WHAT?
Support Group: Neuropathy
Posted: Dec 22, 2022
Hello @hansong7, I would like to add my welcome to @colleenyoung and others. Fortunately for me...
't had COVID yet but I do have small ... fiber peripheral neuropathy with only ... One thing that has helped me is to learn ... helped us -- Member Neuropathy Journey ... Stories: What's Yours?
Support Group: Neuropathy
Posted: Dec 27, 2021
Hello @mariell, I'm Rachel, it's nice to meet you. Thank you for sharing your story. I...
biopsy and was finally diagnosed with Small ... Fiber Neuropathy from a B12 deficiency ... What do you think still needs to be ... What does your daily routine look like ... I am happy to help further and want
Support Group: Depression & Anxiety
Posted: Mar 3, 2022
Hello @jbskinner, Welcome to Connect. I'm not sure if you have seen this information from the...
after I was diagnosed with idiopathic small ... fiber peripheral neuropathy. ... journey and what has helped them. ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... that may help you learn more: -- Neuropathy
Support Group: Neuropathy
Posted: Feb 28, 2022
Hi @bocagrande, I would like to add my welcome to Connect along with @colleenyoung and other...
My small fiber peripheral neuropathy ... That's actually what brought me ... as it's a great place to learn what ... other members have tried and found helpful ... that you might find helpful. -- Alcohol
Support Group: Neuropathy
Posted: Feb 23, 2022
Good evening @marie1959, it appears that you have been a member of Connect for quite some...
are now dealing with PN (peripheral neuropathy ... I was diagnosed with SFN (small fiber ... neuropathy) about the same time and ... I also found that to be helpful. ... don't know where you live and what
Support Group: Neuropathy
Posted: Mar 16, 2022
Hello @rose2, welcome to Connect. I too am glad you found us. Autoimmune conditions can be...
neurologist and found out I have idiopathic small ... fiber peripheral neuropathy. ... started my search to find out more and what ... I think the key to getting help is to ... Here are some links that I hope will help
@steveny9, My Mayo primary care doc prescribed 300 mg gabapentin when I first complained and was...
first complained and was looking for help ... found out, yes you have idiopathic small ... fiber peripheral neuropathy and there ... isn't any medication that helps ... That's what started my journey on
Support Group: Neuropathy
Posted: Jun 25, 2023