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991 total results
Comments (943)
Have you have autonomic testing? I have had a mitral value prolapse for years with tachycardia...
Primary care no help. ... positive skin Biopsy last August for small ... fiber neuropathy. ... Constant battle to know what to eat.
Support Group: Neuropathy
Posted: Feb 19, 2020
Hello and welcome to Connect. It appears you came here for support and to find like...
EMG/Nerve studies do not detect Small ... Fiber Neuropathy which is what I have ... and you describe what I feel. ... In the mean time, self care may help ... and add the proper supplements to help
Support Group: Neuropathy
Posted: Feb 13, 2020
You are correct in your analogy of interviewing. My Neuro is a brilliant man but lacks...
This is what I mean. UGH! ... We all continue to help each other through ... For me, due to Small Fiber Poly Neuropathy
Support Group: Neuropathy
Posted: Feb 3, 2020
@phoenix0509 I had an Abbott scs implanted in June 2017. It's a Burst DR, so I...
Lyrica was the first one that was helping ... I didn't say what form of pn I have ... It's small fiber polyneuropathy, ... tongue, tinnitus, decreased sense of smell ... They have been a big help for me.
Support Group: Neuropathy
Posted: Jan 11, 2020
Hi I just joined this forum and I thought I'd share my story. I'll summarise as...
There was so much neuropathic pain ( ... begging my doctors to try figure out what ... much, but I could perhaps also have a small ... fiber neuropathy? ... verified abnormalities, I'm not sure what
I have pretty much conquered the neuropathy problem in my feet and legs that I developed...
someone help themselves. ... may be studied further to get the finer ... I need – not what I wanted or liked ... highly oxygenated which is exactly what ... a small nerve needs to receive the
Support Group: Neuropathy
Posted: Nov 1, 2019
Sorry, time was limited before with my response. I'd also like to add that you are...
Rest can be a big help too along with ... I have Small Fiber Neuropathy which ... Not a bad idea to be tested for Small ... Fiber Neuropathy via skin punch biopsy ... I hope any of what I've said helped
Support Group: Neuropathy
Posted: Oct 30, 2019
Hi @summertime4 -- I have small fiber PN and lymphedema mostly in my right leg but...
Hi @summertime4 -- I have small fiber ... second one is where members are sharing what ... Fiber Neuropathy lecture (Small Fibers ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy-lecture ... /discussion/ideas-for-pain-from-small-fiber-neuropathy
Support Group: Neuropathy
Posted: Oct 30, 2019
Hi Daryl @constitution, Welcome to Connect. I have small fiber peripheral neuropathy but only have numbness...
I have small fiber peripheral neuropathy ... for you to see what others are doing ... for pain relief from Small Fiber Neuropathy ... connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy ... / I posted my story and what has
Support Group: Neuropathy
Posted: Oct 26, 2019
Hi Cathy @cathyic58 — Neuropathy can be depressing just because it makes you feel so helpless....
and hopefully find something that helps ... story of my diagnosis of idiopathic small ... fiber peripheral neuropathy and what ... has helped me in an early post here ... It might help you if you can make a
Support Group: Neuropathy
Posted: Oct 22, 2019
Reading this opens the door for me to update everyone on the meeting I had yesterday...
He helped write the SFN book with other ... medical proof or long term studies for neuropathy ... cycle of added pain and has agreed to help ... all may know this stuff or not but, what ... Small Fiber Neuropathy continues to
Support Group: Neuropathy
Posted: Oct 3, 2019
Hello Georgina @444, Welcome to Connect. I don't have autoimmune hepatitis but do have other autoimmune...
rhematica for one and I also have small ... fiber peripheral neuropathy. ... can be confusing trying to figure what ... to help my autoimmune conditions and ... amazing story on how nutritional changes helped
Support Group: Autoimmune Diseases
Posted: Sep 27, 2019
Hi @lynnaustin, Welcome to Connect. I have idiopathic small fiber peripheral neuropathy but I only have...
I have idiopathic small fiber peripheral ... neuropathy but I only have numbness ... You can read what has helped me in an ... here on Connect: > Groups > Neuropathy ... little more about your PN diagnosis and what
Support Group: Neuropathy
Posted: Aug 15, 2019
Hello. I'm sorry to hear of your pain. Ablations are another step in managing pain by...
was finally properly diagnosed with Small ... Fiber Neuropathy which was the cause ... In the end I honestly can't help ... decision based on cause and effect (and what ... It could very well help you a great
Discussion: Facet Ablation
Support Group: Chronic Pain
Posted: Jul 25, 2019
I would like to echo the post by @cwm1, although my neuropathy is idiopathic. I was...
it is and that is what started my search ... cure but members here have shared what ... has helped them reduce or eliminate ... I am a small fiber peripheral neuropathy ... Maybe it can help you also.
Support Group: Neuropathy
Posted: Jul 6, 2019
@wisfloj I've given up my quest to determine the root cause of my idiopathic small fiber...
determine the root cause of my idiopathic small ... fiber peripheral neuropathy. ... Sometimes surgery can help if nerve ... and find something that treats or helps ... -- https://www.foundationforpn.org/what-is-peripheral-neuropathy
Support Group: Neuropathy
Posted: May 30, 2019
Thanks Krissy. That’s exactly what I feel In my right ear. The pain burns in my...
That’s exactly what I feel In my right ... Finally getting a small fiber neuropathy ... diagnosis is helpful, but it’s seems
Support Group: Brain & Nervous System
Posted: May 26, 2019
Hi Carol @summertime4, I also have nueropathy which has been diagnosed as idiopathic small fiber PN....
Hi Carol @summertime4, I also have nueropathy ... which has been diagnosed as idiopathic small ... fiber PN. ... I posted what helps me in an earlier ... anyone-here-dealing-with-peripheral-neuropathy
Support Group: Neuropathy
Posted: May 9, 2019
@rwinney Good morning and thanks for joining our community. You will find a supportive group that...
shares lots of options for coping with small ... fiber neuropathy (SFN). ... Fiber Neuropathy and reviewed the efforts ... Can you tell me more about what your ... day is like and what you do to combat
Hello @rwinney, I would like to add my welcome to Connect along with @colleenyoung and other...
I have idiopathic small fiber peripheral ... neuropathy but do not have the chronic ... Each of us are different and what works ... Breaking Away From Pain With the Help ... breaking-away-from-the-pain-with-the-help-of-the-scrambler