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79 total results

Comments (64)

I have had Raynauds for years and it got worse. I took pictures of my stomach,...

https://connect.mayoclinic.org/comment/964008/

tests it became clear that I have Cryoglobulinemia

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Nov 13, 2023

I so when I hear others say I have SEVERE Raynauds ….. go straight to a...

https://connect.mayoclinic.org/comment/984854/

later I was told I have the ever rare Cryoglobulinemia

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Dec 22, 2023

I also keep a binder with all my medical stuff in it now. I also have...

https://connect.mayoclinic.org/comment/776759/

my eye doctor, of the diagnosis of cryoglobulinemia

Discussion: Cryoglobulinemia: Want to connect

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2022

I was recently diagnosed with hypogammaglobulinemia back in December. Not only do I have that but...

https://connect.mayoclinic.org/comment/823727/

Leukocytoclastic Vasculitis, R.A. and Cryoglobulinemia

Discussion: Hypogammaglobulinemia

Support Group: Autoimmune Diseases

Posted: Mar 9, 2023

Yes, this is a brand new diagnosis for me. In April 2021, I was diagnosed with...

https://connect.mayoclinic.org/comment/1187074/

I have cryoglobulinemia but the doctors

Discussion: Cryoglobulinemia: Want to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2024

Well yes! I was told by a hematologist my Raynauds is a severe case and go...

https://connect.mayoclinic.org/comment/983734/

who did tons of tests to find I have Cryoglobulinemia

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Dec 20, 2023

I've been on 60 mg of prednisone since september when they diagnosed me with cryoglobulinemia. At...

https://connect.mayoclinic.org/comment/783233/

september when they diagnosed me with cryoglobulinemia

Discussion: Feeling tired! Do others with PMR feel significantly more tired?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 10, 2022

Hi @leelaguna, you’re trying to connect with other members who share your diagnosis of Cold Agglutinin...

https://connect.mayoclinic.org/comment/789855/

697357/ -MGUS associated with Type I Cryoglobulinemia

Discussion: Iron Depletion in Blood related to COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 28, 2022

I've been on the Albuterol inhaler, symbicort inhaler, flovent inhaler, spiriva handihlr, ipratropium bromide (nebulizer) and...

https://connect.mayoclinic.org/comment/1037456/

having this issue after my diagnosis of cryoglobulinemia

Discussion: Is this asthma? Has anyone else had this problem with cold air?

Support Group: Asthma & Allergy

Posted: Mar 20, 2024

@denniscschultz Greetings and welcome to the Mayo Clinic Connect. There are many blood disorders that are...

https://connect.mayoclinic.org/comment/1185543/

below, there are different types of cryoglobulinemia ... www.mayoclinic.org/diseases-conditions/cryoglobulinemia

Discussion: Cryoglobulinemia: Want to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

Good day, I was officially diagnosed with Sjogrens back in 2015. However, looking back all of...

https://connect.mayoclinic.org/comment/759441/

vasculitis, rhuematoid arthritis, and cryoglobulinemia

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 10, 2022

Brooks Ghost double wide are great for me. Prior to this, I was 8 or 8...

https://connect.mayoclinic.org/comment/1366264/

Salt Lake City.,, First diagnosis Cryoglobulinemia

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: Aug 8 9:39am

Hello, Last month I was diagnosed with cryoglobulinemia and am processing what this will mean to...

https://connect.mayoclinic.org/comment/768347/

Hello, Last month I was diagnosed with cryoglobulinemia

Discussion: Cryoglobulinemia: Want to connect

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2022

Hi Alejandro Thanks for replying. Where is Dr. Hare and the wound care center? Would you...

https://connect.mayoclinic.org/comment/52447/

I found my cause of LV was cryoglobulinemia

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2012

Thank you for sharing! Eleven years ago I woke to horrendous pain. Went to ER and...

https://connect.mayoclinic.org/comment/873566/

; tons of tests, I now have type 1 Cryoglobulinemia

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2023

I too have had an issue with my hematologist/oncologist not wanting to do a bone marrow...

https://connect.mayoclinic.org/comment/780298/

I was eventually diagnosed with cryoglobulinemia

Discussion: Need Help - Hematology won't do testing

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2022

Thank you for a thorough explanation. My doctor did tell me, after the follow up labs,...

https://connect.mayoclinic.org/comment/670839/

The cryoglobulinemia was diagnosed 12

Discussion: Vacuolated neutrophils: I'm worried what this means

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2022

@joanng, there area number of issues that can and do cause chest and other pains. I...

https://connect.mayoclinic.org/comment/321185/

scalp because I have the gene for cryoglobulinemia

Discussion: Chest and upper back pain with bronchiectasis and pseudomonas

Support Group: MAC & Bronchiectasis

Posted: Jan 1, 2021

Vacuolated neutrophils are often indicators of an infection such as sepsis or E Coli. So I’m...

https://connect.mayoclinic.org/comment/670642/

How advanced is your cryoglobulinemia

Discussion: Vacuolated neutrophils: I'm worried what this means

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2022

I have sarcoidosis (cardiac w/pacemaker) which is an inflammatory/autoimmune disease. It sometimes goes hand in hand...

https://connect.mayoclinic.org/comment/1215885/

Rheumatoid Arthritis, Amyloidosis and Cryoglobulinemia

Discussion: Lymphocytes on CBC

Support Group: Blood Cancers & Disorders

Posted: Jan 18 3:59pm