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89 total results
Comments (78)
I was diagnosed with a myelodysplastic disorder over a year ago. Last fall a bone marrow...
marrow biopsy revealed that I have primary ... myelofibrosis. ... leading physician specializing in Myelofibrosis ... said that I probably won’t “die OF Myelofibrosis ... but WITH Myelofibrosis.
Posted: Jul 13, 2024
Hi @cindyem, I’m just double checking your reference to PMDS. Do you possibly mean myelofibrosis (MF)...
Do you possibly mean myelofibrosis ( ... have a JAK2 mutation which can cause myelofibrosis ... https://www.healthline.com/health/myelofibrosis ... /what-is-primary-myelofibrosis ~~~~ ... https://www.healthline.com/health/myelofibrosis
Hi davi0937, Like you, I was diagnosed with primary myelofibrosis but that was one month after...
Like you, I was diagnosed with primary ... myelofibrosis but that was one month ... lowering all cell counts if I truly have myelofibrosis
Posted: Jun 30 10:53am
Welcome to Connect, @dax1million. Myelofibrosis is one of several conditions that is associated with MPNs…myeloproliferative neoplasms....
Myelofibrosis is one of several conditions ... Primary myelofibrosis or MF, is the ... Myelofibrosis is caused by the buildup ... /discussion/myelofibrosis-24a025/ ~ ... ~ What are treatments for myelofibrosis
Posted: Mar 3 8:49am
Hi withhope, I am very sorry you have had such a bad experience with all that....
that, she changed my diagnosis to Myelofibrosis ... My risk analysis for Myelofibrosis done ... given the diagnosis of ET and then Primary ... Myelofibrosis, and CALR1 mutation.
Posted: May 16 11:08am
Thank you to those who shared their story. It is quite evident that I need a...
bone marrow biopsy looks more like primary ... myelofibrosis”. ... be transitioning from prefibrotic myelofibrosis
Hi again @snakebite , Thank you for responding and sharing your situation so fast! Like you,...
pathologist said it looked more like primary ... myelofibrosis and my diagnosis got ... baby aspirin daily as if I truly have myelofibrosis ... types of the newer risk analyses for myelofibrosis
Posted: Jul 10 12:26pm
Hi ideachaser1, Thank you for sharing. My BMB says what you posted about yours. I am...
I did finally see my primary doctor ... relaxed some since now having a decent primary ... she sent me a memo that I might have Primary ... Myelofibrosis.
Posted: Mar 16 2:38pm
Hi @ruthiek519 , Happy belated Birthday despite getting the diagnosis none of us want. I think...
She told me the only cure for myelofibrosis ... I had also researched that Myelofibrosis ... memo that she changed my diagnosis to primary ... Myelofibrosis because my fibrosis was ... Did you have the myelofibrosis risk
Posted: May 25 3:50pm
Hi @1pearl, I’m putting together pieces of your ET puzzle. When we first spoke the other...
scarring of the bone marrow in MF or myelofibrosis ... MPNs or specifically Essential or Primary
Posted: Feb 7 7:25am
Hi jello13577, I really like your approach. I have CALR and not JAK2, but I do...
routine doctor appointment with fill in primary ... changed it one month later to probably myelofibrosis