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89 total results
Comments (78)
I was diagnosed with a myelodysplastic disorder over a year ago. Last fall a bone marrow...
https://connect.mayoclinic.org/comment/1104835/
marrow biopsy revealed that I have primary ... myelofibrosis. ... leading physician specializing in Myelofibrosis ... said that I probably won’t “die OF Myelofibrosis ... but WITH Myelofibrosis.
Hi @cindyem, I’m just double checking your reference to PMDS. Do you possibly mean myelofibrosis (MF)...
https://connect.mayoclinic.org/comment/1043541/
Do you possibly mean myelofibrosis ( ... have a JAK2 mutation which can cause myelofibrosis ... https://www.healthline.com/health/myelofibrosis ... /what-is-primary-myelofibrosis
~~~~ ... https://www.healthline.com/health/myelofibrosis
Good questions. I’m not a medical doctor. My career was at the diagnostic end (lab). Therefore,...
https://connect.mayoclinic.org/comment/981500/
I had Primary myelofibrosis.
Hi davi0937, Like you, I was diagnosed with primary myelofibrosis but that was one month after...
https://connect.mayoclinic.org/comment/1338448/
Like you, I was diagnosed with primary ... myelofibrosis but that was one month ... lowering all cell counts if I truly have myelofibrosis
Hi@nohrt4me, My O/H told me Kaiser does not have MPN specialists so she referred me to...
https://connect.mayoclinic.org/comment/1364165/
the pathologist gives diagnosis as primary ... myelofibrosis which I think you had
Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...
https://connect.mayoclinic.org/comment/969785/
Essential Thrombocythemia (ET) or Primary ... myelofibrosis.
Good morning @ruthiek519 Well, of all the gifts you could have gotten for your 72nd b-day,...
https://connect.mayoclinic.org/comment/1312373/
Primary Myelofibrosis Search
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Your health picture sounds exactly like mine. I’m below normal for hemoglobin and red cells. Platelets...
https://connect.mayoclinic.org/comment/1297988/
The pathologist diagnosed it as primary ... myelofibrosis.
Welcome to Connect, @dax1million. Myelofibrosis is one of several conditions that is associated with MPNs…myeloproliferative neoplasms....
https://connect.mayoclinic.org/comment/1249272/
Myelofibrosis is one of several conditions ... Primary myelofibrosis or MF, is the ... Myelofibrosis is caused by the buildup ... /discussion/myelofibrosis-24a025/
~ ... ~
What are treatments for myelofibrosis
Hi withhope, I am very sorry you have had such a bad experience with all that....
https://connect.mayoclinic.org/comment/1305421/
that, she changed my diagnosis to Myelofibrosis ... My risk analysis for Myelofibrosis done ... given the diagnosis of ET and then Primary ... Myelofibrosis, and CALR1 mutation.
Thank you to those who shared their story. It is quite evident that I need a...
https://connect.mayoclinic.org/comment/1348792/
bone marrow biopsy looks more like primary ... myelofibrosis”. ... be transitioning from prefibrotic myelofibrosis
Hi @cindyem I just read another comment you posted about having PV and anemia. From information...
https://connect.mayoclinic.org/comment/884148/
essential thrombocythemia (ET), and primary ... myelofibrosis (PMF) are all treated
Hi again @snakebite , Thank you for responding and sharing your situation so fast! Like you,...
https://connect.mayoclinic.org/comment/1345194/
pathologist said it looked more like primary ... myelofibrosis and my diagnosis got ... baby aspirin daily as if I truly have myelofibrosis ... types of the newer risk analyses for myelofibrosis
Hi ideachaser1, Thank you for sharing. My BMB says what you posted about yours. I am...
https://connect.mayoclinic.org/comment/1259636/
I did finally see my primary doctor ... relaxed some since now having a decent primary ... she sent me a memo that I might have Primary ... Myelofibrosis.
Hi doreen78, First off, no, I have not been told I am in remission from any...
https://connect.mayoclinic.org/comment/1292137/
from my O/H who said I probably have Primary ... Myelofibrosis instead or ET.
Hi @ruthiek519 , Happy belated Birthday despite getting the diagnosis none of us want. I think...
https://connect.mayoclinic.org/comment/1312721/
She told me the only cure for myelofibrosis ... I had also researched that Myelofibrosis ... memo that she changed my diagnosis to primary ... Myelofibrosis because my fibrosis was ... Did you have the myelofibrosis risk
@dp5wheels25 I am so sorry you had such a bad experience with Mayo. I was blessed...
https://connect.mayoclinic.org/comment/1387945/
have an autoimmune disorder called primary ... autoimmune myelofibrosis, which causes
Hi @panamsandy , I was found to have high platelets on routine lab work after routine...
https://connect.mayoclinic.org/comment/1357204/
Then I was told I had myelofibrosis. ... just about daily each morning per my primary
Hi @1pearl, I’m putting together pieces of your ET puzzle. When we first spoke the other...
https://connect.mayoclinic.org/comment/1231285/
scarring of the bone marrow in MF or myelofibrosis ... MPNs or specifically Essential or Primary
Hi jello13577, I really like your approach. I have CALR and not JAK2, but I do...
https://connect.mayoclinic.org/comment/1294207/
routine doctor appointment with fill in primary ... changed it one month later to probably myelofibrosis
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