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507 total results
Comments (460)
I’m facing a bone marrow transplant due to myelofibrosis. I have been taking Jakavi for high...
https://connect.mayoclinic.org/comment/1356198/
facing a bone marrow transplant due to myelofibrosis ... transplant due to complications of myelofibrosis ... else had a bone marrow transplant for myelofibrosis
Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy
Posted: Jul 25 1:18pm
I, too, wanted a second opinion. I have Primary Myelofibrosis. My local clinic boasts as being...
https://connect.mayoclinic.org/comment/1420021/
I have Primary Myelofibrosis. ... were, “You are not going to die of Myelofibrosis ... You will eventually die WITH Myelofibrosis
Discussion: Seeking opinion about where to get a second opinion.
Support Group: Blood Cancers & Disorders
Posted: Oct 21 8:05am
Have your doctors checked your platelets to see if they are low? This is from the...
https://connect.mayoclinic.org/comment/1250765/
This is from the Mayo Clinic: "Myelofibrosis ... www.mayoclinic.org/diseases-conditions/myelofibrosis ... symptoms-causes/syc-20355057#:~:text=Myelofibrosis
Discussion: How do you deal with fatigue that accompanies autoimmune disorders?
Support Group: Autoimmune Diseases
Posted: Mar 5 7:40am
I was diagnosed with a myelodysplastic disorder over a year ago. Last fall a bone marrow...
https://connect.mayoclinic.org/comment/1104835/
biopsy revealed that I have primary myelofibrosis ... leading physician specializing in Myelofibrosis ... said that I probably won’t “die OF Myelofibrosis ... but WITH Myelofibrosis.
Discussion: What are treatments for myelofibrosis?
Support Group: Blood Cancers & Disorders
Posted: Jul 13, 2024
Hi nohrt4me, Thank you for posting. I totally agree with you that we have to work...
https://connect.mayoclinic.org/comment/1313253/
Mascarenhas for Myelofibrosis. ... Transplant is the only option for cure for myelofibrosis ... protective to overall survival in overt myelofibrosis ... a 20% misdiagnosis between ET and Myelofibrosis
Discussion: Getting nowhere with current Hematologist
Support Group: Blood Cancers & Disorders
Posted: May 26 10:59am
@ tinak123 I am 70 YO, and was diagnosed with ET when I was 50. I...
https://connect.mayoclinic.org/comment/1399081/
about 10 years before I converted to myelofibrosis ... After I converted to myelofibrosis, ... When I got a second opinion on my myelofibrosis ... the odds are that it will convert to myelofibrosis
Discussion: Living with ET
Support Group: Blood Cancers & Disorders
Posted: Sep 22 5:29pm
Welcome to Connect @rhollis I think a good place to begin this morning is with a...
https://connect.mayoclinic.org/comment/1201587/
is with a little information about Myelofibrosis ... That’s the myelofibrosis element. ... https://www.healthline.com/health/myelofibrosis ... /myelofibrosis-treatment-side-effects ... /myelofibrosis-treatment/# Your
Discussion: What are treatments for myelofibrosis?
Support Group: Blood Cancers & Disorders
Posted: Jan 1 8:46am