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255 total results
Comments (241)
Hello @lrittmiller and welcome to the NETs support group on Mayo Connect. We have many members...
https://connect.mayoclinic.org/comment/1107836/
--Dipnech on lungs - does anyone have ... neuroendocrine tumor cell hyperplasia dipnech ... carcinoid-tumorlets-neuroendocrine-tumorcell-hyperplasia-dipnech
Jan, sorry to hear about all of your health challenges. Sometimes DIPNECH is misdiagnosed as asthma...
https://connect.mayoclinic.org/comment/1222295/
Sometimes DIPNECH is misdiagnosed as ... your issues as much or more than the DIPNECH
Anyone diagnosed with DIPNECH? I’ve had 3 injections of Octreotide so far. I started having GI...
https://connect.mayoclinic.org/comment/1193098/
Anyone diagnosed with DIPNECH?
Hi @jhhaas, I'm tagging fellow members like @mcohan @magnum2 @meryls12 @californiazebra who have experience with DIPNECH...
https://connect.mayoclinic.org/comment/976431/
californiazebra who have experience with DIPNECH ... My understanding is that DIPNECH requires
No I am not. My pathology after my lung surgery was sent to Mayo, and that...
https://connect.mayoclinic.org/comment/1288895/
is how I got my results for NET and DIPNECH
Hi Marcia, I have DIPNECH and currently I only use inhaled steroid (fluticasone/salmatrol) and it has...
https://connect.mayoclinic.org/comment/1173763/
Hi Marcia, I have DIPNECH and currently
@kristin3 -- typical carcinoids are the best kind to have. They are the slow growing kind....
https://connect.mayoclinic.org/comment/849473/
I wonder if you might have DIPNECH also ... DIPNECH can be a precursor to carcinoids ... DIPNECH also usually causes respiratory ... My carcinoids/DIPNECH are treated with
Good plan to see a NETs team. DIPNECH is rare. Latest data I’ve read is 300...
https://connect.mayoclinic.org/comment/1108887/
DIPNECH is rare. ... It is the DIPNECH. ... stage 1 for lung NETs with advanced DIPNECH ... Mostly I consider my DIPNECH to be a
Hello @gprior, I would like to join @colleenyoung and @lls8000 in welcoming you to Mayo Connect...
https://connect.mayoclinic.org/comment/1142376/
the NETs support group to meet other DIPNECH ... - Anyone living long-term with DIPNECH
@gram26 Hello Jane and welcome to the NETs support group on Mayo Connect. I so appreciated...
https://connect.mayoclinic.org/comment/881787/
keep you as healthy as possible with DIPNECH ... several members on Connect who also have DIPNECH ... group that deals specifically with DIPNECH ... connect.mayoclinic.org/discussion/new-dipnech-diagnosis-need-advice-on-doctors
@mlbschuler I am so excited to hear you are seeing Robert Ramirez! He seems the most...
https://connect.mayoclinic.org/comment/1012065/
He seems the most interested in DIPNECH ... like I need a second opinion on my DIPNECH
Slow growing is good! How large is the largest tumor? It makes me wonder if you...
https://connect.mayoclinic.org/comment/1081836/
It makes me wonder if you have DIPNECH ... at Ki-67 2% with 50+ bilateral NETs/DIPNECH
Hi @jan355 I'm so sorry to hear about your oxygen issues and for so many years....
https://connect.mayoclinic.org/comment/1220927/
be some if you were diagnosed with DIPNECH ... 's next, I have read that some DIPNECH ... DIPNECH is typically diagnosed in the ... DIPNECH is rare, only about 30 documented ... Based on my symptoms, I've had DIPNECH
If anyone out there can recommend a Dr. in the Florida area that is very familiar...
https://connect.mayoclinic.org/comment/965239/
that is very familiar with treating Dipnech
I had my middle right lobe and a part of top lobe removed in 2018, pathology...
https://connect.mayoclinic.org/comment/1287231/
adenocarcinoma in top lobe, they also found dipnech ... Dipnech is not a nice condition as it
Had carcinoid tumor removed from lung last year, stage 1 cancer, lymph nodes good. Prior to...
https://connect.mayoclinic.org/comment/844635/
results also say doesn’t look like dipnech ... the difference between carcinoid and dipnech
Hi @breck You’ve been through a lot. Sorry to hear they did not get it all....
https://connect.mayoclinic.org/comment/1169807/
lung NETs (typical carcinoids) and DIPNECH ... People with DIPNECH typically have multiple ... , I wonder if they have considered DIPNECH
@grec, it is scary having a rare disorder, especially when active surveillance is the presecribed treatment....
https://connect.mayoclinic.org/comment/1010744/
pulmonary neuroendocrine cell hyperplasia (DIPNECH
Yes, please get a second opinion from a NETs multidisciplinary team familiar with DIPNECH before your...
https://connect.mayoclinic.org/comment/1208016/
multidisciplinary team familiar with DIPNECH ... I have DIPNECH and lung NETs with 50 ... medical center system had ever heard of DIPNECH ... DIPNECH is very rare. ... Mine is considered advanced DIPNECH
I too appreciate being able to read of people's experiences, I live in Australia and I...
https://connect.mayoclinic.org/comment/1223283/
2018 after which I was diagnosed with dipnech ... medical people haven't even heard of dipnech
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