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961 total results
Comments (915)
Hi everyone! My name is Susan and I have lived with chronic pain for a number...
https://connect.mayoclinic.org/comment/99631/
paralyzed by an autoimmune disorder (CIDP ... CIDP is a rare neuromuscular disorder ... neurologist thinks that I possibly developed CIDP ... Right now I am taking nothing for my CIDP
Discussion: Chronic Pain members - Welcome, please introduce yourself
Support Group: Chronic Pain
Posted: Nov 5, 2020
Yes, I have CIDP. Typically CIDP patients have a lot of peripheral nerve pain but I...
https://connect.mayoclinic.org/comment/1134625/
Yes, I have CIDP. ... Typically CIDP patients have a lot of ... couple of years before I developed the CIDP
Discussion: NYTimes: Gabapentin - The Painkiller Used for Just About Anything
Support Group: Neuropathy
Posted: Sep 1, 2024
There is a new drug approved for CIDP...check out Vvygart Pharma site. Wish I had that...
https://connect.mayoclinic.org/comment/1261826/
There is a new drug approved for CIDP ... Fortunately for CIDP is an injection
Discussion: How much R-ALA to take?
Support Group: Neuropathy
Posted: Mar 19 10:15am
CIDP is a terrible disease. It affects different people in different ways, but it all comes...
https://connect.mayoclinic.org/comment/219633/
CIDP is a terrible disease. ... The GBS/CIDP Foundation has a good site ... out because it’s devoted entirely to CIDP ... neurologists consider a short-term form of CIDP ... physical therapists are unfamiliar with CIDP
Discussion: Has anyone had IVIG Infusions for Neuropathy?
Support Group: Neuropathy
Posted: Jan 15, 2020
Also they confirmed the diagnosis with a spinal tap ( easy no pain at all) and...
https://connect.mayoclinic.org/comment/1225326/
spinal fluid was the confirmation of CIDP ... a neurologist that is INFORMED in CIDP
Discussion: CIDP diagnosis
Support Group: Autoimmune Diseases
Posted: Jan 30 9:32am
Testing for protein in the CSF is key for diagnosing GBS and CIDP. So the spinal...
https://connect.mayoclinic.org/comment/1021035/
CSF is key for diagnosing GBS and CIDP ... years later those tests confirmed CIDP ... find additional help with the GBS CIDP
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: Feb 23, 2024
Hello @toolman53, I would like to add my welcome to Connect along with @celia16 and others....
https://connect.mayoclinic.org/comment/1169889/
answers and help for conditions like CIDP ... you have seen the Shining Through CIDP ... might be helpful to learn more about CIDP ... find it helpful to scan through other CIDP ... search=CIDP.
Discussion: CIDP diagnosis after severe GBS long ago, where do I start?
Support Group: Neuropathy
Posted: Nov 8, 2024
@sherlock, I see that you have met some of the members in the Anyone here dealing...
https://connect.mayoclinic.org/comment/238681/
but have started one specifically on CIDP ... discussion as they have all mentioned CIDP ... syndrome which is closely related to CIDP
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: Jan 6, 2019
Hello @sb4ca, There isn't a separate support group for CIDP or CVID but there are other...
https://connect.mayoclinic.org/comment/889666/
#39;t a separate support group for CIDP ... I searched using CIDP and using CVID ... here are the search results: --- CIDP ... search=CIDP --- CVID: https://connect.mayoclinic.org
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: Jul 3, 2023
Hi, @sdswoboda53 - welcome to Mayo Clinic Connect. I'd be scared, too, if I began having...
https://connect.mayoclinic.org/comment/81513/
inflammatory demyelinating polyneuropathy (CIDP ... may have explained to you about what CIDP ... join in, here are some resources on CIDP ... you may find helpful: - CIDP information ... A Mayo Clinic Proceedings paper on CIDP
Discussion: Anyone been diagnosed with CIDP? It's very rare
Support Group: Autoimmune Diseases
Posted: Jan 29, 2019
Hello @SusanEllen66. I wanted to bring your recent post on CIDP back into one of your...
https://connect.mayoclinic.org/comment/918339/
wanted to bring your recent post on CIDP ... moved your recent post here now: - CIDP ... /connect.mayoclinic.org/discussion/cidp-while-i-am-waiting-for-the-tests-genetic
Discussion: CIDP, While I am waiting for the tests, genetic?
Support Group: Neuropathy
Posted: Aug 24, 2023