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Comments (953)
@jimhd Jim, after reading your post and your doctor's statement that "CIDP is an umbrella label...
https://connect.mayoclinic.org/comment/99387/
your doctor's statement that "CIDP ... is an umbrella term that includes CIDP ... From what I am reading, CIDP is auto ... Other types of neuropathy beside CIDP ... So CIDP is just a particular type of
Discussion: Chronic Pain members - Welcome, please introduce yourself
Support Group: Chronic Pain
Posted: Oct 15, 2020
If your neuropathy affects your legs/feet and arms/hands, make sure you are getting a correct diagnosis....
https://connect.mayoclinic.org/comment/324197/
CIDP -- chronic inflammatory demyelinating ... CIDP is rare and often misdiagnosed. ... misdiagnosed and treated only for pain, CIDP ... As a CIDP patient, I urge you to bring ... up the possibility of CIDP with your
Discussion: Now what! Neuropathy in feet and ankles.. Numbness in hands and arms
Support Group: Neuropathy
Posted: Oct 15, 2020
@bearmom, I don't have CIDP and can't imagine how difficult it is to manage the symptoms...
https://connect.mayoclinic.org/comment/1321345/
@bearmom, I don't have CIDP and ... mentioned by other members on Connect for CIDP ... search=CIDP%20symptoms. ... Have you seen the Shining Through CIDP
Discussion: CIDP and feeling like you are wrapped in wires?
Support Group: Autoimmune Diseases
Posted: Jun 6 7:37am
Welcome @kjwalkercidp, I'm hoping @sherlock and other members with CIDP can answer your question. I'm pretty...
https://connect.mayoclinic.org/comment/1033847/
hoping @sherlock and other members with CIDP ... "Since the beginning of my CIDP ... I have CIDP and cold temperatures are ... I ..." --- GBS/CIDP Foundation ... International: https://forum.gbs-cidp.org
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: Mar 15, 2024
CIDP is difficult disease to diagnose. I suffered from tingling and burning sensations, as well as...
https://connect.mayoclinic.org/comment/1395996/
CIDP is difficult disease to diagnose ... with me) ended with a diagnosis of CIDP ... You can also go to the GBS/CIDP Foundations ... www.gbs-cidp.org
Discussion: My neurologist has suggested my symptoms may indicate CIPD
Support Group: Autoimmune Diseases
Posted: Sep 18 12:10pm
Hi @jdoherty2025 I’m so sorry to hear you’re dealing with chronic inflammatory demyelinating polyneuropathy and Guillain-Barre...
https://connect.mayoclinic.org/comment/1338458/
who have similar experiences with CIDP ... ~CIDP diagnosis (Posted by @skyley ... /connect.mayoclinic.org/discussion/cidp-diagnosis ... / ~CIDP-GBS (posted by @bjbates53
Discussion: Your story, in six words
Support Group: Just Want to Talk
Posted: Jun 30 11:06am
@sparshall, thank you for the website reference for the GBS/CIDP Foundation. I thought I would share...
https://connect.mayoclinic.org/comment/219639/
the website reference for the GBS/CIDP ... GBS/CIDP Foundation International - ... https://www.gbs-cidp.org/
Discussion: Has anyone had IVIG Infusions for Neuropathy?
Support Group: Neuropathy
Posted: Jan 16, 2020
Hi everyone! My name is Susan and I have lived with chronic pain for a number...
https://connect.mayoclinic.org/comment/99631/
paralyzed by an autoimmune disorder (CIDP ... CIDP is a rare neuromuscular disorder ... neurologist thinks that I possibly developed CIDP ... Right now I am taking nothing for my CIDP
Discussion: Chronic Pain members - Welcome, please introduce yourself
Support Group: Chronic Pain
Posted: Nov 5, 2020
Yes, I have CIDP. Typically CIDP patients have a lot of peripheral nerve pain but I...
https://connect.mayoclinic.org/comment/1134625/
Yes, I have CIDP. ... Typically CIDP patients have a lot of ... couple of years before I developed the CIDP
Discussion: NYTimes: Gabapentin - The Painkiller Used for Just About Anything
Support Group: Neuropathy
Posted: Sep 1, 2024
There is a new drug approved for CIDP...check out Vvygart Pharma site. Wish I had that...
https://connect.mayoclinic.org/comment/1261826/
There is a new drug approved for CIDP ... Fortunately for CIDP is an injection
Discussion: How much R-ALA to take?
Support Group: Neuropathy
Posted: Mar 19 10:15am
CIDP is a terrible disease. It affects different people in different ways, but it all comes...
https://connect.mayoclinic.org/comment/219633/
CIDP is a terrible disease. ... The GBS/CIDP Foundation has a good site ... out because it’s devoted entirely to CIDP ... neurologists consider a short-term form of CIDP ... physical therapists are unfamiliar with CIDP
Discussion: Has anyone had IVIG Infusions for Neuropathy?
Support Group: Neuropathy
Posted: Jan 15, 2020