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Comments (796)
Welcome to Connect @sseats. Since Amyloidosis can affect multiple areas/organs in the body getting the right...
Since Amyloidosis can affect multiple ... Do you know which type of Amyloidosis ... in the forum with members who have Amyloidosis ... a little informative article about amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
Hi @ump2929, Welcome to Mayo Connect. It looks as though your doctor is concerned that you...
is concerned that you may have AL Amyloidosis ... Here is one such discussion on AL Amyloidosis ... : ~Recently diagnosed with AL Amyloidosis ... search=AL+Amyloidosis+ Also, below ... couple of informational links on AL Amyloidosis
Posted: Dec 31, 2025
I went to Mayo Clinic in 2012 when my brother had a stem cell transplant for...
brother had a stem cell transplant for amyloidosis ... There is an amyloidosis research consortium ... http://www.amyloidosis.org/amyloidosis-research-consortium
Posted: Sep 10, 2016
Hi @joycehocm, Thanks for updating the group about your visit! Have you had a chance to...
here on Connect regarding Cardiac Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis ... health/conditions-and-diseases/cardiac-amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... your next appointment to rule out amyloidosis
Posted: Nov 19, 2024
Have you had a bone marrow biopsy done? I have had Primary Amyloidosis for 3 years....
I have had Primary Amyloidosis for 3 ... marrow biopsy and that is where the Amyloidosis ... Please don't let the Amyloidosis
Discussion: Diagnosed: MGUS
Posted: Jul 4, 2025
Hi - My HOCM doc is at Johns Hopkins which is a COE. I was tested...
I was tested for amyloidosis early on ... would have referred me to their "amyloidosis ... treatment is very different for HOCM and amyloidosis
Posted: Apr 16, 2025
@gracie1976 Welcome to Mayo Clinic Connect! I’m so happy you’re heading to Mayo. Do you already...
Connect who have also have MM and amyloidosis ... Diagnosed with both multiple myeloma and amyloidosis ... quite a few conversations with MM/amyloidosis ... search=MM+and+amyloidosis+ How long ... ago were you diagnosed with MM and amyloidosis
Do you also have bronchiectasis or MAC? This is a group of patients with lung issues...
Is your stiff heart from Amyloidosis ... Mayo has an amyloidosis clinic and they ... There are also Facebook amyloidosis ... There are also other amyloidosis clinic
Support Group: MAC & Bronchiectasis
Posted: Feb 27, 2024
Hi Benjamin Hi and welcome to connect, I myself had one of the general conditions that...
The 2 may be related only that amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... Have you been Diagnosed with Amyloidosis
@cemeterygal01 Welcome to Mayo Clinic Connect! Having received a new diagnosis can sure be unsettling, definitely....
Multiple myeloma and amyloidosis are ... multiple-myeloma/multiple-myeloma-with-amyloidosis ... /article/138/17/1514/477397/Why-is-amyloidosis-not-multiple-myeloma
@shorelady Welcome to Mayo Clinic Connect. I see you have been here a few months and...
what Mayo Clinic has to say about amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... symptoms-causes/syc-20353178 What type of amyloidosis
Posted: Feb 6, 2023
Hi @jenrico, Welcome to Connect. We hosted a webinar last June called "Amyloidosis – What Patients...
hosted a webinar last June called "Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis-what-patients-need-to-know ... Kapoor, MD, provided an overview of amyloidosis ... mvpdda and @tmousetis who also have AL amyloidosis
Posted: Mar 13, 2016
Welcome @mimi4968, I moved your question about new treatments for AL amyloidosis to this existing discussion:...
question about new treatments for AL amyloidosis ... discussion: ~ Recently diagnosed with AL Amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis ... search=Amyloidosis AL (primary) amyloidosis