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832 total results
Comments (762)
Hi - My HOCM doc is at Johns Hopkins which is a COE. I was tested...
https://connect.mayoclinic.org/comment/1283183/
I was tested for amyloidosis early on ... would have referred me to their "amyloidosis ... treatment is very different for HOCM and amyloidosis
Discussion: Cardiac Amyloidosis
Support Group: Hypertrophic Cardiomyopathy (HCM)
Posted: Apr 16 9:52am
I went to Mayo Clinic in 2012 when my brother had a stem cell transplant for...
https://connect.mayoclinic.org/comment/113903/
brother had a stem cell transplant for amyloidosis ... There is an amyloidosis research consortium ... http://www.amyloidosis.org/amyloidosis-research-consortium
Discussion: Waldenstroms and amyloidosis
Support Group: Blood Cancers & Disorders
Posted: Sep 10, 2016
Do you also have bronchiectasis or MAC? This is a group of patients with lung issues...
https://connect.mayoclinic.org/comment/1023452/
Is your stiff heart from Amyloidosis ... Mayo has an amyloidosis clinic and they ... There are also Facebook amyloidosis ... There are also other amyloidosis clinic
Discussion: Newly dx with stiff heart
Support Group: MAC & Bronchiectasis
Posted: Feb 27, 2024
Hi @joycehocm, Thanks for updating the group about your visit! Have you had a chance to...
https://connect.mayoclinic.org/comment/1176258/
here on Connect regarding Cardiac Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis ... health/conditions-and-diseases/cardiac-amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... your next appointment to rule out amyloidosis
Discussion: Why Camzyos instead of surgery?
Support Group: Hypertrophic Cardiomyopathy (HCM)
Posted: Nov 19, 2024
Hi @raanderson, such a great question (and responses from fellow members). You might also be interested...
https://connect.mayoclinic.org/comment/273515/
living with and caring for some with AL amyloidosis ... - Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what ... / - Waldenstroms and amyloidosis https ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis
Discussion: Protecting patient from getting infections from me & others
Support Group: Caregivers
Posted: Aug 27, 2019
Hi Benjamin Hi and welcome to connect, I myself had one of the general conditions that...
https://connect.mayoclinic.org/comment/873897/
The 2 may be related only that amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... Have you been Diagnosed with Amyloidosis
Discussion: Anyone have input on living with symptoms from cardiomyopathy?
Support Group: Heart & Blood Health
Posted: Jun 6, 2023
@cemeterygal01 Welcome to Mayo Clinic Connect! Having received a new diagnosis can sure be unsettling, definitely....
https://connect.mayoclinic.org/comment/847766/
Multiple myeloma and amyloidosis are ... multiple-myeloma/multiple-myeloma-with-amyloidosis ... /article/138/17/1514/477397/Why-is-amyloidosis-not-multiple-myeloma
Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?
Support Group: Blood Cancers & Disorders
Posted: Apr 22, 2023
Hi @jenrico, Welcome to Connect. We hosted a webinar last June called "Amyloidosis – What Patients...
https://connect.mayoclinic.org/comment/88299/
hosted a webinar last June called "Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis-what-patients-need-to-know ... Kapoor, MD, provided an overview of amyloidosis ... mvpdda and @tmousetis who also have AL amyloidosis
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Mar 13, 2016
@tayleebuzz Hello and welcome to Mayo Clinic Connect. This is a caring community where members share...
https://connect.mayoclinic.org/comment/593973/
sorry your dad is dealing with AL Amyloidosis ... Has your dad’s specific type of Amyloidosis ... the Connect community regarding AL Amyloidosis ... > Diagnosed with AL Amyloidosis. ... ; Mayo Clinic website regarding AL Amyloidosis
Discussion: AL Amyloidosis: Where were you treated?
Support Group: Blood Cancers & Disorders
Posted: Apr 13, 2021
@shorelady Welcome to Mayo Clinic Connect. I see you have been here a few months and...
https://connect.mayoclinic.org/comment/807058/
what Mayo Clinic has to say about amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... symptoms-causes/syc-20353178 What type of amyloidosis
Discussion: Amyloidisis of the mouth and myeloma
Support Group: Blood Cancers & Disorders
Posted: Feb 6, 2023
Welcome @mimi4968, I moved your question about new treatments for AL amyloidosis to this existing discussion:...
https://connect.mayoclinic.org/comment/1067446/
question about new treatments for AL amyloidosis ... discussion: ~ Recently diagnosed with AL Amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis ... search=Amyloidosis AL (primary) amyloidosis
Discussion: Recently diagnosed with AL Amyloidosis: Any advice?
Support Group: Blood Cancers & Disorders
Posted: May 13, 2024
Welcome, @victorino, to help you connect with other members like @vmarra @jan44 @jebcyn and others, I...
https://connect.mayoclinic.org/comment/1066152/
discussion: - Recently diagnosed with AL Amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis ... search=Amyloidosis Congratulations
Discussion: Recently diagnosed with AL Amyloidosis: Any advice?
Support Group: Blood Cancers & Disorders
Posted: May 11, 2024
Hi, @larryl - I'd like to add my welcome to Mayo Clinic Connect. Since you mentioned...
https://connect.mayoclinic.org/comment/92594/
Since you mentioned an interest in amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis
Discussion: Anyone here dealing with peripheral neuropathy?
Support Group: Neuropathy
Posted: Jan 4, 2019
@evaxmas, welcome to Connect. You may notice I combined your discussion with an existing one titled,...
https://connect.mayoclinic.org/comment/88325/
one titled, "diagnosed with AL amyloidosis ... posted about facing the diagnosis of amyloidosis ... the following discussions on both AL amyloidosis ... connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Mar 19, 2019