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826 total results
Comments (757)
How were you diagnosed with MGUS without the BMB? I am new to this. I have...
going down the road to rule out or in amyloidosis ... to diagnose as MGUS or SWM or WM or amyloidosis
Posted: Jun 23 5:07pm
I went to Mayo Clinic in 2012 when my brother had a stem cell transplant for...
brother had a stem cell transplant for amyloidosis ... There is an amyloidosis research consortium ... http://www.amyloidosis.org/amyloidosis-research-consortium
Posted: Sep 10, 2016
Hi @joycehocm, Thanks for updating the group about your visit! Have you had a chance to...
here on Connect regarding Cardiac Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis ... health/conditions-and-diseases/cardiac-amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... your next appointment to rule out amyloidosis
Posted: Nov 19, 2024
Hi @raanderson, such a great question (and responses from fellow members). You might also be interested...
living with and caring for some with AL amyloidosis ... - Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what ... / - Waldenstroms and amyloidosis https ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis
Support Group: Caregivers
Posted: Aug 27, 2019
Do you also have bronchiectasis or MAC? This is a group of patients with lung issues...
Is your stiff heart from Amyloidosis ... Mayo has an amyloidosis clinic and they ... There are also Facebook amyloidosis ... There are also other amyloidosis clinic
Support Group: MAC & Bronchiectasis
Posted: Feb 27, 2024
I had a diagnosis of amyloidosis this year after a bilateral carpal tunnel surgery biopsy done...
I had a diagnosis of amyloidosis this ... I was referred to a amyloidosis specialist ... back positive for Attr “wild type” amyloidosis ... Chang that my amyloidosis was caught
Support Group: Autoimmune Diseases
Posted: Jun 9 1:40pm
Consider getting an abdominal fat pad biopsy (assuming they didn't take that for the carpal tunnel...
I don't have amyloidosis, but was ... my.clevelandclinic.org/health/diseases/23398-amyloidosis ... /139/19/2918/476883/How-I-treat-AL-amyloidosis
Support Group: Autoimmune Diseases
Posted: Jun 9 8:25am
Hi @jenrico, Welcome to Connect. We hosted a webinar last June called "Amyloidosis – What Patients...
hosted a webinar last June called "Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis-what-patients-need-to-know ... Kapoor, MD, provided an overview of amyloidosis ... mvpdda and @tmousetis who also have AL amyloidosis
Posted: Mar 13, 2016
Hi Benjamin Hi and welcome to connect, I myself had one of the general conditions that...
The 2 may be related only that amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... Have you been Diagnosed with Amyloidosis
@cemeterygal01 Welcome to Mayo Clinic Connect! Having received a new diagnosis can sure be unsettling, definitely....
Multiple myeloma and amyloidosis are ... multiple-myeloma/multiple-myeloma-with-amyloidosis ... /article/138/17/1514/477397/Why-is-amyloidosis-not-multiple-myeloma
@tayleebuzz Hello and welcome to Mayo Clinic Connect. This is a caring community where members share...
sorry your dad is dealing with AL Amyloidosis ... Has your dad’s specific type of Amyloidosis ... the Connect community regarding AL Amyloidosis ... > Diagnosed with AL Amyloidosis. ... ; Mayo Clinic website regarding AL Amyloidosis
Posted: Apr 13, 2021
Welcome @mimi4968, I moved your question about new treatments for AL amyloidosis to this existing discussion:...
question about new treatments for AL amyloidosis ... discussion: ~ Recently diagnosed with AL Amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis ... search=Amyloidosis AL (primary) amyloidosis
@shorelady Welcome to Mayo Clinic Connect. I see you have been here a few months and...
what Mayo Clinic has to say about amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... symptoms-causes/syc-20353178 What type of amyloidosis
Posted: Feb 6, 2023
Welcome, @victorino, to help you connect with other members like @vmarra @jan44 @jebcyn and others, I...
discussion: - Recently diagnosed with AL Amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis ... search=Amyloidosis Congratulations