lupus – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

2,712 total results

Comments (2,481)

For those of you who have been admitted to Mayo from other states, like CA for...

https://connect.mayoclinic.org/comment/684566/

/ oromandibular dystonia caused by lupus ... Meanwhile recent blood tests shows that lupus

Discussion: Movement disorder

Support Group: Brain & Nervous System

Posted: Feb 25, 2022

@rob54 You have good questions and I am not the one that knows the answer. I...

https://connect.mayoclinic.org/comment/603021/

I have known several ladies with lupus ... My father-in-law had symptoms of lupus

Discussion: How many men have Tumid Lupus? Anyone else?

Support Group: Autoimmune Diseases

Posted: May 19, 2021

I’ve been on the X39 patches for about a year. You can’t get Drs to confirm...

https://connect.mayoclinic.org/comment/1199317/

I have lupus and my numbers have dropped

Discussion: Anyone had Lifewave X39 patch cause high spikes in blood pressure?

Posted: Dec 29, 2024

Thanks for your reply. I have been tested and carry HLA B27 . ANA is low...

https://connect.mayoclinic.org/comment/108489/

low positive , moderate range for lupus

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jul 20, 2016

The dr is probably checking for Lupus. I went through that bloodwork myself and had 1...

https://connect.mayoclinic.org/comment/72800/

The dr is probably checking for Lupus

Discussion: Fatigue, activity intolerance, generalized pain... Please help!

Support Group: Bones, Joints & Muscles

Posted: Mar 20, 2012

I have Tumid Lupus but was told no SLE although it feels like it's more than...

https://connect.mayoclinic.org/comment/1023197/

I have Tumid Lupus but was told no SLE

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Feb 26, 2024

I never had the rash but other things helped diagnosis When Sjogrens started I did not...

https://connect.mayoclinic.org/comment/1232349/

Lupus is in remission, Sjogrens is

Discussion: Axonal peripheral neuropathy: Finally, a diagnosis!

Support Group: Neuropathy

Posted: Feb 8 1:45pm

Hi there..... Thankyou so much for this comment. I am positive for this to which my...

https://connect.mayoclinic.org/comment/937034/

explained is the marker for the Gene for Lupus ... my grandma had lupus, i have every single

Discussion: Positive ANA: What might be the cause?

Support Group: Autoimmune Diseases

Posted: Sep 26, 2023

Hello! I am a 34 year female. I was told I have lupus and antiphospholipid syndrome...

https://connect.mayoclinic.org/comment/802015/

I was told I have lupus and antiphospholipid ... told by my PCP that I do not have lupus

Discussion: I am sure I have lupus...but I don't?

Support Group: Autoimmune Diseases

Posted: Jan 26, 2023

I have many of the same symptoms and problems you have. I have RA and Sjogren’s...

https://connect.mayoclinic.org/comment/1386689/

rheumatologist is also considering lupus

Discussion: Lupus affects the lungs

Support Group: Autoimmune Diseases

Posted: Sep 4 2:20pm

My kidney doctor test me for C3 and C4 which came back high. She said she...

https://connect.mayoclinic.org/comment/1355569/

From what I read on Mayo can be lupus

Discussion: Anyone else have a high complement C3 blood test?

Support Group: Blood Cancers & Disorders

Posted: Jul 24 4:57pm

My daughter was diagnosed with lupus when she was in her 20’s. Over the years she...

https://connect.mayoclinic.org/comment/1338164/

My daughter was diagnosed with lupus

Discussion: ANA test follow up results - anyone else experience this

Support Group: Autoimmune Diseases

Posted: Jun 29 10:39pm

I had ‘fibromyalgia BUT NOT’ for about 8 years, lol. ‘Sort of Lupus BUT NOT’ only...

https://connect.mayoclinic.org/comment/936475/

‘Sort of Lupus BUT NOT’ only 6 months

Discussion: Anemic due to kidney problem: How to increase hemoglobin?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

I had Bright’s disease in kindergarten I wonder if it’s related to Alport's syndrome. I was...

https://connect.mayoclinic.org/comment/687035/

I was diagnosed with Lupus in 2000.

Discussion: Lupus nephritis

Support Group: Autoimmune Diseases

Posted: Mar 6, 2022

Hi, @pollyanne - thanks for the update. When will you see the rheumatologist? I'm assuming from...

https://connect.mayoclinic.org/comment/275002/

determination whether you have discoid lupus

Discussion: Skin and scalp problems and loss of hair

Support Group: Women's Health

Posted: Sep 16, 2019

I don't blame the docs but at some time they give ones who don't need the...

https://connect.mayoclinic.org/comment/98410/

double amputee after 98 surgeries with lupus

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Jun 1, 2019

My dermatologist told me that blood tests for lupus are hard to test +. She said...

https://connect.mayoclinic.org/comment/149841/

dermatologist told me that blood tests for lupus

Discussion: Have a few autoimmune disorders - now have consistent low grade fever

Support Group: Autoimmune Diseases

Posted: May 11, 2017

I too have spent $$$ on treatment that doesn’t work! I have Lupus, RA , sjorgrens,...

https://connect.mayoclinic.org/comment/1266446/

I have Lupus, RA , sjorgrens, raynalds

Discussion: Improving neuropathy without spending a fortune - What actually helps?

Support Group: Neuropathy

Posted: Mar 25 10:42am

Welcome to Mayo Clinic Connect @pamper ! We’re glad you found this site. Hopefully members will...

https://connect.mayoclinic.org/comment/1258143/

you on medications for the RA and lupus

Discussion: I have lupus and ra. my fingers r drawn down,

Support Group: Autoimmune Diseases

Posted: Mar 14 8:11pm

I see a need for complete testing for lupus with a rheumatologist. ANA, Anti DNA, Centromere,...

https://connect.mayoclinic.org/comment/1030922/

see a need for complete testing for lupus

Discussion: Please help!! auto immune illness even w/ normal blood test results?

Support Group: Autoimmune Diseases

Posted: Mar 10, 2024