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Comments (2,427)

I’ve been on the X39 patches for about a year. You can’t get Drs to confirm...

https://connect.mayoclinic.org/comment/1199317/

I have lupus and my numbers have dropped

Discussion: Anyone had Lifewave X39 patch cause high spikes in blood pressure?

Posted: Dec 29, 2024

I had ‘fibromyalgia BUT NOT’ for about 8 years, lol. ‘Sort of Lupus BUT NOT’ only...

https://connect.mayoclinic.org/comment/936475/

‘Sort of Lupus BUT NOT’ only 6 months

Discussion: Anemic due to kidney problem: How to increase hemoglobin?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

I had Bright’s disease in kindergarten I wonder if it’s related to Alport's syndrome. I was...

https://connect.mayoclinic.org/comment/687035/

I was diagnosed with Lupus in 2000.

Discussion: Lupus nephritis

Support Group: Autoimmune Diseases

Posted: Mar 6, 2022

Hi there..... Thankyou so much for this comment. I am positive for this to which my...

https://connect.mayoclinic.org/comment/937034/

explained is the marker for the Gene for Lupus ... my grandma had lupus, i have every single

Discussion: Positive ANA: What might be the cause?

Support Group: Autoimmune Diseases

Posted: Sep 26, 2023

Hello! I am a 34 year female. I was told I have lupus and antiphospholipid syndrome...

https://connect.mayoclinic.org/comment/802015/

I was told I have lupus and antiphospholipid ... told by my PCP that I do not have lupus

Discussion: I am sure I have lupus...but I don't?

Support Group: Autoimmune Diseases

Posted: Jan 26, 2023

I am two weeks past covid and also have Lupus. It feels like a "flare" of...

https://connect.mayoclinic.org/comment/680158/

two weeks past covid and also have Lupus

Discussion: What helps post COVID shortness of breath?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 12, 2022

Hi, @pollyanne - thanks for the update. When will you see the rheumatologist? I'm assuming from...

https://connect.mayoclinic.org/comment/275002/

determination whether you have discoid lupus

Discussion: Skin and scalp problems and loss of hair

Support Group: Women's Health

Posted: Sep 16, 2019

I don't blame the docs but at some time they give ones who don't need the...

https://connect.mayoclinic.org/comment/98410/

double amputee after 98 surgeries with lupus

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Jun 1, 2019

My dermatologist told me that blood tests for lupus are hard to test +. She said...

https://connect.mayoclinic.org/comment/149841/

dermatologist told me that blood tests for lupus

Discussion: Have a few autoimmune disorders - now have consistent low grade fever

Support Group: Autoimmune Diseases

Posted: May 11, 2017

I too have spent $$$ on treatment that doesn’t work! I have Lupus, RA , sjorgrens,...

https://connect.mayoclinic.org/comment/1266446/

I have Lupus, RA , sjorgrens, raynalds

Discussion: Improving neuropathy without spending a fortune - What actually helps?

Support Group: Neuropathy

Posted: Mar 25 10:42am

Welcome to Mayo Clinic Connect @pamper ! We’re glad you found this site. Hopefully members will...

https://connect.mayoclinic.org/comment/1258143/

you on medications for the RA and lupus

Discussion: I have lupus and ra. my fingers r drawn down,

Support Group: Autoimmune Diseases

Posted: Mar 14 8:11pm

I see a need for complete testing for lupus with a rheumatologist. ANA, Anti DNA, Centromere,...

https://connect.mayoclinic.org/comment/1030922/

see a need for complete testing for lupus

Discussion: Please help!! auto immune illness even w/ normal blood test results?

Support Group: Autoimmune Diseases

Posted: Mar 10, 2024

I have MCTD, an autoimmune with similar symptoms to Lupus. For geographic tongue, sore mouth I...

https://connect.mayoclinic.org/comment/1288572/

autoimmune with similar symptoms to Lupus

Discussion: White spots on tongue, Hair Loss, Inflammation of mouth tissue

Support Group: Just Want to Talk

Posted: Apr 24 12:55am

I have a lot of your symptoms. Did he check for Lupus? After 2 two that's...

https://connect.mayoclinic.org/comment/1055665/

Did he check for Lupus?

Discussion: Early RA or Infectious disease or something else?

Support Group: Autoimmune Diseases

Posted: Apr 23, 2024

With indications of autoimmunity they should be looking harder at your diagnosis. Did they run your...

https://connect.mayoclinic.org/comment/1269541/

you had anti lipoprotein antibodies ,lupus

Discussion: Ana positive

Support Group: Autoimmune Diseases

Posted: Mar 29 4:04pm

@nbrooks, oh that is also a very important factor to consider - other conditions - in...

https://connect.mayoclinic.org/comment/973912/

- other conditions - in your case lupus ... - How might this medication effect lupus

Discussion: I have LCIS, anyone else?

Support Group: Breast Cancer

Posted: Dec 2, 2023

Helllo @tdani75, Welcome to Connect. It sounds like you have a lot of experience dealing with...

https://connect.mayoclinic.org/comment/146271/

lot of experience dealing with Tumid Lupus ... Lupus Foundation of America - Benlysta ... What you need to know -- https://www.lupus.org

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Oct 31, 2019

Prolia caused a lot of my hair to fall out. Since then I have been diagnosed...

https://connect.mayoclinic.org/comment/892897/

Sjögren’s, Lupus and Raynards.

Discussion: Prolia treatment for osteoporosis: What is your experience?

Support Group: Osteoporosis & Bone Health

Posted: Jul 9, 2023

I have exactly the same things going on. But because tumid lupus is so rare I've...

https://connect.mayoclinic.org/comment/146265/

But because tumid lupus is so rare I

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Apr 25, 2019

My itching just started and I have had Idiopathic Progressive Polyneuropathy for a while and Lupus...

https://connect.mayoclinic.org/comment/1287184/

Progressive Polyneuropathy for a while and Lupus

Discussion: Can chronic itching be caused by Neuropathy

Support Group: Neuropathy

Posted: Apr 21 10:15pm