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871 total results
Comments (826)
@penn1023 Hi. It turns out that many of my odd twitches, dizzy spells, seizure-like activity, etc...
Since I had a definite diagnosis (idiopathic ... length-dependent small fiber polyneuropathy ... This medication works better for my neuropathy ... now, and I'm back to the usual neuropathy
Support Group: Neuropathy
Posted: Oct 31, 2025
Hi @sheridana, Welcome to Connect. I also have numbness in my feet and legs with my...
numbness in my feet and legs with my idiopathic ... small fiber peripheral neuropathy. ... terrible pain that most folks with neuropathy ... following discussions helpful: -- Neuropathy ... / -- Neuropathy: Numbness only, no
Support Group: Neuropathy
Posted: Sep 16, 2025
Hello @barrymiles, I would like to add my welcome to Connect along with @jankavs and others....
I have idiopathic small fiber peripheral ... neuropathy and shared my story in another ... you might find helpful that mentions neuropathy ... and sciatica: -- Peripheral neuropathy ... condition is the Foundation for Peripheral Neuropathy
Support Group: Neuropathy
Posted: Aug 21, 2025
Hi @allessio77, I've had idiopathic small fiber peripheral neuropathy since my mid forties and I'm 82...
Hi @allessio77, I've had idiopathic ... small fiber peripheral neuropathy since ... pretty sure aren't related to my neuropathy
Support Group: Neuropathy
Posted: Jul 15, 2025
That was probably caused by nerve compression is what it sounds like. Mine first started when...
Neuropathy caused by nerve compression ... Were you ever tested for small fiber ... neuropathy? ... True neuropathy is caused by diabetes ... , autoimmune diseases, idiopathic, toxins
Support Group: Neuropathy
Posted: Jun 25, 2025
There is autoimmune neuropathy which is caused by an autoimmune diseases lupus,, Rheumatoid Arthritis, MS ,...
There is autoimmune neuropathy which ... dysautonomia peripheral polyneuropathy, small ... fiber neuropathy and cardiac autonomic ... neuropathy ( it’s moved into my heart ... Idopathic neuropathy- no cause Diabetic
Support Group: Neuropathy
Posted: Jun 7, 2025
Hi, My name is Mat and I am 70 years old. My experience with PN started...
Some years ago, I was taking a small ... He told me it was idiopathic polyneuropathy ... this I surmise I have both large and small ... fiber neuropathy.
Support Group: Neuropathy
Posted: Mar 3, 2025
Hello @tryingandtesting, I would like to add my welcome along with @celia16 and others. Thanks for...
I shared my neuropathy journey along ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... recommended supplements to help my idiopathic ... small fiber PN and have been taking ... The Foundation for Peripheral Neuropathy
Support Group: Neuropathy
Posted: Feb 25, 2025
Hello @mrmacabre, It's not much comfort but I can say you are not alone living with...
I have idiopathic small fiber peripheral ... neuropathy but don't have pain, ... #39;t helping as much now for your neuropathy ... The Foundation for Peripheral Neuropathy
Support Group: Chronic Pain
Posted: Jan 30, 2025
Thank you for sharing about EBV and small fiber neuropathy. I strongly suspect that EBV re-activation...
Thank you for sharing about EBV and small ... fiber neuropathy. ... may be the underlying cause of my idiopathic ... non-length dependent small fiber neuropathy ... uncertain if there is treatment for viral neuropathy
Support Group: Neuropathy
Posted: Jan 7, 2025
@jeffwneedhelp A neurologist can also test for vitamin deficiencies and toxicities plus to check sugar levels...
fibers. ... fiber neuropathy. ... The small nerve fibers at the head of ... fiber neuropathy asap to stop progression ... they couldn’t find cause (told it was idiopathic
Support Group: Chronic Pain
Posted: Nov 18, 2024
@sassytwo If they can get to the bottom of what is causing small fiber neuropathy/small fiber...
get to the bottom of what is causing small ... fiber neuropathy/small fiber nerve ... If they can’t, it is called idiopathic ... get to the source of what is causing small ... fibers to die, that may be the best
Support Group: Neuropathy
Posted: Nov 3, 2024
Wow! Is it ever an eye opener for me read your story. It's also a good...
I also have idiopathic small fiber peripheral ... neuropathy and noticed that peripheral ... neuropathy is one of the common symptoms
Posted: Oct 26, 2024
Hi @kenhassen, Welcome to Connect. I only have the numbness in my legs and feet but...
diagnosis and it turned out to be idiopathic ... small fiber peripheral neuropathy and ... find helpful for learning more about neuropathy ... them. -- Foundation for Peripheral Neuropathy ... /neuropathy-overview I've tried
Support Group: Neuropathy
Posted: Jul 10, 2024
Welcome @catbeth57, Thanks for sharing what helps with your neuropathy symptoms. I also have neuropathy but...
Thanks for sharing what helps with your neuropathy ... I also have neuropathy but mine is idiopathic ... small fiber PN. ... by learning as much as we can about neuropathy ... /neuropathy-overview You might also
Support Group: Neuropathy
Posted: May 22, 2024
@linuxusr, I'm not a medical expert but just a patient with neuropathy like yourself. I've had...
medical expert but just a patient with neuropathy ... I was diagnosed with idiopathic small ... fiber peripheral neuropathy and am ... I posted my neuropathy journey along ... /neuropathy-overview -- Foundation
Support Group: Neuropathy
Posted: May 5, 2024
Hi, I too have been to many different doctors including pain management centers and have had...
The podiatrist found that it was small ... fiber neuropathy idiopathic by doing ... mentioned the supposed gold standards for neuropathy ... Good luck with your neuropathy mine ... My neuropathy has been with me for over
Support Group: Neuropathy
Posted: Apr 25, 2024
@magnum52, I just saw this clinical trial yesterday and sent an email to see if I...
was diagnosed at Rochester Mayo with idiopathic ... small fiber PN mostly likely hereditary ... Patients with Hereditary Peripheral Neuropathy
Support Group: Neuropathy
Posted: Apr 4, 2024