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963 total results

Comments (917)

@jimhd Wow, Jim, I am glad you are getting somewhere with perhaps finally, managing pain. The...

https://connect.mayoclinic.org/comment/99379/

I don't know what CIDP is, at all

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Oct 14, 2020

Thank you for asking. My primary autoimmune disease- CIDP (chronic inflammatory demyelinating polyneuropathy) started during the...

https://connect.mayoclinic.org/comment/852687/

My primary autoimmune disease- CIDP ... Accepting that CIDP is a chronic lifelong ... How has CIDP affected me? ... with life changing illnesses like CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: May 1, 2023

Hi again @txsmo sorry this conversation got side tracked. In reading a little more about CIDP,...

https://connect.mayoclinic.org/comment/238721/

In reading a little more about CIDP, ... the neuropathy or at least not the CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Oct 4, 2020

I have it. I began having balance issues and falling ‘out of the blue ‘ in...

https://connect.mayoclinic.org/comment/81510/

He mumbled something about CIDP as he ... blood tests made her 99.8% sure I had CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jan 28, 2019

I have CIDP and have been on IVIG infusions every 3 weeks for about a year...

https://connect.mayoclinic.org/comment/1205392/

I have CIDP and have been on IVIG infusions

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 6 2:14pm

I was diagnosed - two separate neurologists - with CIDP in 2020. I had 16 IVIG...

https://connect.mayoclinic.org/comment/1050367/

- two separate neurologists - with CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Apr 14, 2024

Well I recommend that you have the EMG repeated. My husband EMG on the first neurologist...

https://connect.mayoclinic.org/comment/835636/

neurologist repeated the EMG and sure enough CIDP

Discussion: Idiopathic Polyneuropathy: My endless journey to a near-diagnosis …

Support Group: Neuropathy

Posted: Apr 1, 2023

I too have started experiencing sharp pains, usually at bedtime, starting after about 2 months into...

https://connect.mayoclinic.org/comment/608152/

months into my IVIG infusions for my CIDP

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Jun 10, 2021

I have a serious case of CIDP, with major nerve damage in my legs, so just...

https://connect.mayoclinic.org/comment/282961/

I have a serious case of CIDP, with ... neurologists have told me will happen with CIDP

Discussion: Neuropathy & Exercise

Support Group: Neuropathy

Posted: Jan 31, 2020

Hello @blessed09, Welcome to Connect. You mentioned having the IVIG infusion treatments after being diagnosed with...

https://connect.mayoclinic.org/comment/1060144/

multiple-sclerosis-ms-please-introduce-yourself/ --- CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: May 1, 2024

Besides having numb feet I now have numbness in my right hand. Started about year ago,gradually...

https://connect.mayoclinic.org/comment/998982/

wondering if this is related to my CIDP

Discussion: Neuropathy of the feet: Any advice on how to eliminate the numbness?

Support Group: Neuropathy

Posted: Jan 17, 2024

Hi. My name is Sara 59 years old with severe pain in my muscles and joints....

https://connect.mayoclinic.org/comment/998145/

My current dx is CIDP, lupus, osteoarthritis

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Jan 16, 2024

Hello Friday Girl78. Since I submitted my post about my syringomyelia I have had some other...

https://connect.mayoclinic.org/comment/1227334/

polyneuropathy developed quite rapidly to CIDP

Discussion: Living with Syringomyelia

Support Group: Spine Health

Posted: Feb 2 12:44am

I think it would be interesting for those that already have a CIDP diagnosis to say...

https://connect.mayoclinic.org/comment/1035363/

interesting for those that already have a CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 17, 2024

Although I don’t suffer from chills, I do have issues with temp control. I am extremely...

https://connect.mayoclinic.org/comment/1034033/

This has been since my CIDP symptoms

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 15, 2024

It sounds like you’ve made a good connection between things. I have read @ Various doctor...

https://connect.mayoclinic.org/comment/643325/

and medical sites that people with CIDP

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Oct 8, 2021

I have. I was getting infusions since 2014 until last year. They stopped working for me....

https://connect.mayoclinic.org/comment/238701/

paralyzed from head to toe twice with CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Sep 29, 2020

How did you all get diagnosed with CIDP? I have been trying to get help for...

https://connect.mayoclinic.org/comment/1112916/

How did you all get diagnosed with CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jul 27, 2024

Hi there. I was diagnosed with CIDP in 2014 and I’ve been receiving IVIG treatments every...

https://connect.mayoclinic.org/comment/893974/

I was diagnosed with CIDP in 2014 and

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jul 11, 2023

Hi Debbie, Thought I would jump in for Chris @artscaping to share some information I found...

https://connect.mayoclinic.org/comment/708363/

amyloidosis, or atypical forms of CIDP

Discussion: Small Fiber Neuropathy

Support Group: Neuropathy

Posted: May 15, 2022