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861 total results

Comments (821)

Nope, same here, all suggestions regarding meds,I’ve already done with no positive results. Suggestions made for...

https://connect.mayoclinic.org/comment/1027999/

Possibly new med coming out this year for CIDP

Discussion: Demylinating Sensorimotor Neuropathy vs./ or and Polyradiculopathy

Support Group: Autoimmune Diseases

Posted: Mar 5 10:29am

Becky, started LDN 7/2020 for PMR pain and have continued ever since. It helped relieve the...

https://connect.mayoclinic.org/comment/853302/

side effects and progression of GBS/CIDP

Discussion: Success with low dose naltrexone for Autoimmune disorders

Support Group: Autoimmune Diseases

Posted: May 2, 2023

My husband had balance & falling issues. One neurologist said he had CIDP. He got 3...

https://connect.mayoclinic.org/comment/797366/

One neurologist said he had CIDP.

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jan 16, 2023

Hello @mrsfitz, Welcome to Connect. While we wait for those members to share personal experience you...

https://connect.mayoclinic.org/comment/639460/

." --- GBS|CIDP Foundation International ... and Vaccinations: https://www.gbs-cidp.org

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Sep 27, 2021

It's worth the trip to get a competent diagnosis and treatment recommendation. It certainly was in...

https://connect.mayoclinic.org/comment/932389/

in my case, where I finally got a CIDP

Discussion: Air travel to see a Mayo Clinic physician?

Support Group: Neuropathy

Posted: Sep 19, 2023

I also recommend consulting your PCP but unfortunately the days when I can put all my...

https://connect.mayoclinic.org/comment/938820/

disorders (I know far more about GBS/CIDP

Discussion: Risk of vaccine for Autoimmune compromised?

Support Group: Autoimmune Diseases

Posted: Sep 29, 2023

I also wasn’t sure if my bowel and bladder issues were just age related nd female,...

https://connect.mayoclinic.org/comment/1017381/

Is this also part of my CIDP or is it

Discussion: PN: From Anger to Acceptance

Support Group: Neuropathy

Posted: Feb 17 10:52am

@kimegraves good morning. I am being treated for Lyme disease as I have 2 dogs and...

https://connect.mayoclinic.org/comment/799734/

doc ordered IVIG and diagnosed the CIDP ... a wonderful FB Support group for CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jan 21, 2023

My husband also a big drinker had his legs give out. He was also given a...

https://connect.mayoclinic.org/comment/744546/

inflammatory demyelinating polyneuropathy (CIDP

Discussion: Falling for no apparent reason: Any ideas?

Support Group: Brain & Nervous System

Posted: Sep 2, 2022

Jim, I too have CIDP with neuropathy (up to my knees). I have lupus which also...

https://connect.mayoclinic.org/comment/1014897/

Jim, I too have CIDP with neuropathy

Discussion: Cold feet due to neuropathy - need help

Support Group: Neuropathy

Posted: Feb 13 8:25am

Hi, all. I started as a patient at Mayo last year. I see people on here...

https://connect.mayoclinic.org/comment/1035901/

My neuropathy (apparently CIDP and/or

Discussion: Eliminating Foods for Neuropathy pain

Support Group: Neuropathy

Posted: Mar 18 1:25pm

It's so stressful. Doing computer searches helped me find my direction and then I had to...

https://connect.mayoclinic.org/comment/827734/

would still be getting infusions for CIDP

Discussion: Frustrating: Young caregiver of partner with multiple conditions

Support Group: Caregivers

Posted: Mar 17, 2023

I just started reading the understanding B6 toxicity website someone here posted. I was aware of...

https://connect.mayoclinic.org/comment/1137110/

and I eventually was diagnosed with CIDP ... field) told me I didn’t have GBS or CIDP

Discussion: severe peripheral neuropathy and vitamin B6

Support Group: Neuropathy

Posted: Sep 6 7:07am

Hi! Were you diagnosed just on one test EMG/nerve test? My diagnosis of CIDP were based...

https://connect.mayoclinic.org/comment/896960/

My diagnosis of CIDP were based on EMG

Discussion: CIDP Support Group

Support Group: Autoimmune Diseases

Posted: Jul 16, 2023

I am as diagnosed in 2022 with CIDP by one neurologist and then a second opinion...

https://connect.mayoclinic.org/comment/819630/

I am as diagnosed in 2022 with CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Mar 2, 2023

I ended up being diagnosed with fibromyalgia in 2002 secondary to the bacterial spinal meningitis. The...

https://connect.mayoclinic.org/comment/1096585/

cardiac autonomic neuropathy, and CIDP

Discussion: Chronic painful muscle knots, widespread

Support Group: Bones, Joints & Muscles

Posted: Jun 30 12:49am

I have trouble maintaining my body temp as I am always hot, and I sweat doing...

https://connect.mayoclinic.org/comment/973384/

,which I never have done before my CIDP

Discussion: Difficulty regulating body temperature. Does anyone else have this?

Support Group: Autoimmune Diseases

Posted: Dec 1, 2023

My Dr wants to do a spinal tap, too, but I'm too afraid of the pain...

https://connect.mayoclinic.org/comment/81525/

cystitis, Pelvic floor pain, and now the CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jul 1, 2019

Your neuropathy has caused severe problems and I am wondering if a diagnosis of CIDP (chronic...

https://connect.mayoclinic.org/comment/943882/

and I am wondering if a diagnosis of CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Oct 7, 2023

Previgin infusions did not help me. Had 7 mos of infusions every 3 weeks x2 days...

https://connect.mayoclinic.org/comment/979107/

guarantee that it will work for my CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Dec 12, 2023