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702 total results
Comments (682)
Methotrexate is commonly used in the USA too. Actemra isn't used so much because it hasn't...
Actemra isn't used so much because ... hasn't been FDA approved to treat PMR ... for me because I was diagnosed with PMR ... Actemra worked for me and I was able ... Kevzara is now FDA approved for PMR.
Posted: Feb 29 2:49pm
I'm amazed at everything that is being tried for PMR/GCA. I was only offered long term...
everything that is being tried for PMR ... leflunomide, not much else was tried until Actemra ... It seems like PMR/GCA was left behind
Posted: Feb 21 9:10am
I'm not sure how many people are interested or how many people who have GCA are...
prednisone for 12 years for refractory PMR ... Actemra is FDA approved for GCA but ... Actemra was a huge step in the right ... Kevzara is FDA approved for PMR and ... Kevzara was FDA approved for PMR a year
Especially tough to balance when I had a flare of uveitis almost as soon as I...
entire time I took Prednisone daily for PMR ... last uveitis flare happened before PMR ... Humira didn't work so well for PMR ... not on prednisone very long so after Actemra ... More frequent Actemra injections prevented
I was diagnosed with PMR late 2015 with prednisone the drug of "choice" . After about...
I was diagnosed with PMR late 2015 with ... on 6mg prednisolone daily and 10mg Actemra ... Actemra seems not to have given me any
Reactive arthritis derives its name from a "reaction to an infection." https://www.mayoclinic.org/diseases-conditions/reactive-arthritis/symptoms-causes/syc-20354838 It used to be...
When I read how many people develop PMR ... have reactive arthritis instead of PMR ... Unlike PMR, when I could never taper ... Prednisone until a biologic called Actemra
Posted: May 24 11:51pm
I have had a tingling and somewhat of a numb feeling in my feet since PMR....
of a numb feeling in my feet since PMR ... The lack of cortisol will mimic the PMR ... Other drugs that help if the PMR is ... acting up Acterma and Kevzara.
Discussion: Foot pain
Posted: May 27 12:00pm
You are a Saint for being a caregiver to your wife. I understand the ravages of...
steroids are promoted as a miracle for PMR ... the "only option." I think PMR ... my rheumatologist suggested I try Actemra ... prednisone as a better option than Actemra ... The other forum collectively of many PMR
Posted: May 26 1:40am
Don't expect an immediate change when starting Kevzara but try to be optimistic. Kevzara doesn't come...
I started Actemra five years ago for ... refractory PMR. ... I wasn't optimistic that Actemra ... different than my experience with Actemra ... I still do a monthly infusion of Actemra
Yes. Its going to be a wild ride. If you can bear the pain then try...
percentage started using them for PMR ... But it doesnt help with PMR. ... Newer biologics like Kevzara and Actemra ... IL-6 has been shown to be active in PMR
Posted: Jun 7 11:22am
I had a mild headache, with pressure behind my eyes, from the time my (extraordinarily severe)...
the time my (extraordinarily severe) PMR ... worries given my extremely painful 24/7 PMR ... I was diagnosed with PMR 3 weeks after ... , and continue weekly injection of Actemra ... and minimal side effects from the Actemra
Discussion: GCA conserns
Posted: Nov 27, 2023
Just be aware of the symptoms of secondary adrenal insufficiency from long term prednisone use. Interestingly,...
rheumatologist seems very reluctant to stop Actemra ... seem to have any side effects from Actemra ... If and when Actemra stops working, my ... prednisone, it is relatively easy to stop Actemra ... as long as PMR stays in remission.
Posted: Dec 5, 2023
Hi ... I really hope Kevzara works for you. Are you doing weekly injections? I'm not...
I assume you have PMR. ... shouldn't compare my experience with Actemra ... I currently have zero copay for Actemra ... I currently do Actemra infusions monthly
Posted: Nov 27, 2023
I had a long history of reactive arthritis with uveitis diagnosed 20 years before PMR was...
uveitis diagnosed 20 years before PMR ... massive amounts of prednisone before PMR ... eventually got off prednisone after Actemra ... Actemra worked well for PMR so I had ... no symptoms of PMR.
Discussion: Autoimmune changes
Posted: Nov 26, 2023
just read your situation and I'm considering Actemra infusion... There are so many risks that are...
situation and I'm considering Actemra ... I've had pmr (after covid vax and ... He suggested Actemra Infusion and taper
Discussion: GCA conserns
Posted: Dec 9, 2023
I would go with the GCA theory. I had PMR and was off prednisone for six...
I had PMR and was off prednisone for ... , and I am still on prednisone and.Actemra
Discussion: GCA conserns
Posted: Dec 10, 2023
Kevzara is FDA approved for PMR. I started a similar biologic called Actemra after 12 years...
Kevzara is FDA approved for PMR. ... started a similar biologic called Actemra ... after 12 years of PMR. ... receptor-antagonists-for-ra-management/ Kevzara is FDA approved for PMR ... Actemra worked for me ...
Posted: Nov 26, 2023
It is sad there aren't more treatment options for PMR/GCA. I was told many times that...
aren't more treatment options for PMR ... prednisone for more than 12 years for PMR ... isn't FDA approved for PMR but ... work for PMR but didn't know if ... Actemra worked for me and I was able
Posted: May 29, 2023