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Comments (2,395)

Here's a brief recap of my, all bad, experience trying to get help paying for Orgovyx....

https://connect.mayoclinic.org/comment/959280/

experience trying to get help paying for Orgovyx ... a multitude of calls and appeals, Orgovyx ... only for those who have never tried Orgovyx

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Nov 5, 2023

18 - 24 months, have been on Orgovyx 3 1/2 months so far. They told me...

https://connect.mayoclinic.org/comment/1351650/

18 - 24 months, have been on Orgovyx

Discussion: How long does your oncologist have you on ADT?

Support Group: Prostate Cancer

Posted: Jul 19 11:50am

I stopped alcohol during SBRT and all but abstained for the 6 months I was on...

https://connect.mayoclinic.org/comment/1388134/

abstained for the 6 months I was on Orgovyx

Discussion: Alcohol and Radiation Treatment

Support Group: Prostate Cancer

Posted: Sep 6 2:28pm

Thanks again, I will inquire about Nubequa. He originally said there was no alternative but I...

https://connect.mayoclinic.org/comment/1354157/

additional adt therapies, usually Orgovyx

Discussion: Should I be seeking extra treatment?

Support Group: Prostate Cancer

Posted: Jul 22 5:54pm

I'm being treated at Mayo Clinic Arizona. I'm 76. I was diagnosed in 2015 ... no...

https://connect.mayoclinic.org/comment/1200693/

I opted for Orgovyx over Lupron because ... ;s protocol is Lupron = 24 months; Orgovyx ... I had the common side effects on Orgovyx ... ll probably have to go back on the Orgovyx

Discussion: Orgovyx Holiday

Support Group: Prostate Cancer

Posted: Dec 30, 2024

I was PSA 10.5 before SBRT 5-dose radiation April 9-21, 2025. My PSA dropped to 0.36...

https://connect.mayoclinic.org/comment/1386730/

but that's because I was on ADT/Orgovyx

Discussion: Side effects and PSA after photon radiation.

Support Group: Prostate Cancer

Posted: Sep 4 3:04pm

I realized I didn’t answer all of your questions. I did stop Orgovyx For eight months...

https://connect.mayoclinic.org/comment/1332625/

I did stop Orgovyx For eight months ... would be best that I start back on Orgovyx

Discussion: Switching from Orgovyx to Bicalutamide

Support Group: Prostate Cancer

Posted: Jun 22 10:40am

No. Just Nubeqa and Orgovyx. My PSA in February was 32 and testosterone in the 5...

https://connect.mayoclinic.org/comment/1369886/

Just Nubeqa and Orgovyx.

Discussion: Can anyone share their experience with Nubeqa?

Support Group: Prostate Cancer

Posted: Aug 13 1:02pm

Phil, how long did you take Orgovyx before you stopped? Did your doctor tell you how...

https://connect.mayoclinic.org/comment/1277880/

Phil, how long did you take Orgovyx

Discussion: Lifting weights while on ADT: hitting a wall?

Support Group: Prostate Cancer

Posted: Apr 9 12:10pm

I am 72, diagnosed in 2024. Starting radiation in a few week. Orgovyx has affected my...

https://connect.mayoclinic.org/comment/1256902/

Orgovyx has affected my heart rhythm

Discussion: What is the average age of the gentlemen on here?

Support Group: Prostate Cancer

Posted: Mar 13 10:05am

Thank you for the reassurance. Yes, I have orgovyx on my notes to specifically ask about...

https://connect.mayoclinic.org/comment/1234729/

Yes, I have orgovyx on my notes to specifically

Discussion: What if he has high cholesterol before started hormone therapy?

Support Group: Prostate Cancer

Posted: Feb 11 6:10pm

Lot of negative here on this drug. Anyone have a positive comment? I going on ORGOVYX...

https://connect.mayoclinic.org/comment/1139770/

I going on ORGOVYX shortly Hopefully

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Sep 11, 2024

Why Orgovyx Is it better than Xtandi which I am on plus Zolodex injections and now...

https://connect.mayoclinic.org/comment/863137/

Why Orgovyx Is it better than Xtandi

Discussion: Husband, 71, given one year at best...

Support Group: Prostate Cancer

Posted: May 20, 2023

Q: ADT therapy and Vit D & Calcium supplements. Began 4 mos tx Orgovyx 5 day....

https://connect.mayoclinic.org/comment/795209/

Began 4 mos tx Orgovyx 5 day.

Discussion: Prostate Cancer- getting help-questions answered

Support Group: Prostate Cancer

Posted: Jan 11, 2023

Taking Orgovyx daily, since May 2022. Gleason 8, stage 3 prostate cancer. I will continue taking...

https://connect.mayoclinic.org/comment/988283/

Taking Orgovyx daily, since May 2022

Discussion: What is the current position on the length of hormone treatment?

Support Group: Prostate Cancer

Posted: Dec 29, 2023

Why is radiation used in stage 4 patients that are currently on orgovyx/zytiga combo with undetectable...

https://connect.mayoclinic.org/comment/917440/

stage 4 patients that are currently on orgovyx

Discussion: What are common side effects of salvage radiation therapy?

Support Group: Prostate Cancer

Posted: Aug 23, 2023

I will be on MRI-LINAC machine tomorrow with no GEL per my RO recommendation. I will...

https://connect.mayoclinic.org/comment/1046830/

I started Orgovyx 6 days ago.

Discussion: Extracapsular extension of prostate cancer: Anyone have this?

Support Group: Prostate Cancer

Posted: Apr 7, 2024

The qualifier here is favorable vs unfavorable intermediate. I was 4+3 with a Decipher of .84...

https://connect.mayoclinic.org/comment/1013694/

and tripped ADT for 6 months with Orgovyx

Discussion: Questions about radiation for prostate cancer: Can I drive myself?

Support Group: Prostate Cancer

Posted: Feb 11, 2024

Also, it probably won't be for life. Think of Orgovyx as buying you time for a...

https://connect.mayoclinic.org/comment/1224129/

Think of Orgovyx as buying you time

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Jan 28 5:19pm

Yes, I think the insomnia was the most annoying thing, since I am usually a sound...

https://connect.mayoclinic.org/comment/1300286/

All good now 3 months post Orgovyx.

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: May 9 8:23am