To narrow your search, try adding quotation marks around phrases.
Search tips
- Search by keywords or complete phrases.
- To narrow your search, try adding quotation marks around phrases.
- Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
579 total results
Comments (527)
Hi everyone. I was diagnosed with primary Myleofibrosis , MDS in March 2025. I was also...
https://connect.mayoclinic.org/comment/1487573/
I was diagnosed with primary Myleofibrosis
Hi, I feel for your frustration. I, too, am experiencing some frustration too as my O/H...
https://connect.mayoclinic.org/comment/1250438/
“might be transitioning to Primary Melofibrosis
Has anyone been prescribed a pill DONOZOL to be taken twice per day for Mylofibrosis? If...
https://connect.mayoclinic.org/comment/1131840/
DONOZOL to be taken twice per day for Mylofibrosis
What do you mean they can't do much? That doesn't sound good at all! You need...
https://connect.mayoclinic.org/comment/1102499/
You need to go see a specialist for Mylofibrosis
Bone marrow biopsy is the only way to confirm Mylofibrosis. It diagnoses what level by measuring...
https://connect.mayoclinic.org/comment/929302/
biopsy is the only way to confirm Mylofibrosis
Diagnosed with ET 5 years ago….high platlets led to Bone Marrow Biopsy to confirm and found...
https://connect.mayoclinic.org/comment/890099/
then lung cancer…asked if they had a Mylofibrosis ... to city of hope since they have a Mylofibrosis
My heart goes out to you Posted by mtnlife @mtnlife, 6 days ago. I don't know...
https://connect.mayoclinic.org/comment/802874/
they missed PV and Diagnosed with Myelobrosis
My brother-in-law died from multiple myeloma last year. My sister, her husband struggled with symptoms after...
https://connect.mayoclinic.org/comment/797572/
2020 but 2023 just diagnosed with Myelofribrosis
Wow, I am glad I kept checking till I saw all these reports on mylefibrosis. I...
https://connect.mayoclinic.org/comment/894079/
checking till I saw all these reports on mylefibrosis
What dietary changes did you make to help with myleofibrosis?
https://connect.mayoclinic.org/comment/854017/
changes did you make to help with myleofibrosis
@davi0937 Wondering if you found a group specific to mylofibrosis. I too was diagnosed this June...
https://connect.mayoclinic.org/comment/1431943/
Wondering if you found a group specific to mylofibrosis
My platelets were 1.4 million in June 2025. My new oncologist at Virginia Cancer Institute performed...
https://connect.mayoclinic.org/comment/1422367/
biopsy & diagnosed Prefibrotic Myleofibrosis
with platelets that high your very lucky you didnt have a clot form, TIA or even...
https://connect.mayoclinic.org/comment/1404569/
wear it out as we progress toward mylofibrosis
Are you positive for JK2? I have PV with A positive JAK2 on hydrox for 2...
https://connect.mayoclinic.org/comment/1299114/
for 2 years it can easily move to mylofibrosis
I can relate to blindsided, I was diagnose with Primary myleofibrousis (anemic) in July 2023. I...
https://connect.mayoclinic.org/comment/1275379/
blindsided, I was diagnose with Primary myleofibrousis ... symptoms only related to Jakafi and myleofibrousis
@hklass, here a few different discussions on Connect that were started on different MDS subjects: -...
https://connect.mayoclinic.org/comment/254688/
melodysplastic-syndrome-unspecified-myelofibroisis
Oh thank you so much🙏. Wow 13 biopsies,What a great fierce fighter you are !❤️ Yeah...
https://connect.mayoclinic.org/comment/1022596/
or rule out PV,Myeloproiferative or Myelofiorosis
Thanks for sharing your story I was diagnosed at 39 and was put on HU and...
https://connect.mayoclinic.org/comment/1354755/
term affects of Anagrelide leading to Mylefibrosis
I was very hesitant to begin taking hydroxyurea when I was diagnosed with ET. At my...
https://connect.mayoclinic.org/comment/1277310/
hematologist suspected I had progressed to Myleofibrosis
I am sorry that you are not doing well . I have myelofibtosis and still on...
https://connect.mayoclinic.org/comment/1251826/
I have myelofibtosis and still on JAKAFI
- First
- Previous
- ...
- 22
- 23
- 24
- 25
- 26
- 27
- Next
- Last
Connect