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Comments (918)

The IVIG treatments have helped me tremendously. I get a boost of energy every month, no...

https://connect.mayoclinic.org/comment/156936/

It keeps my CIDP from progressing.

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jan 23, 2019

I’m 74 with CIDP reaching a severe level before diagnosis last August. You have an excellent...

https://connect.mayoclinic.org/comment/1050223/

I’m 74 with CIDP reaching a severe level

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: Apr 13, 2024

yvonne111 These are all prescribed by my neurologist for my CIDP and reviewed yearly by a...

https://connect.mayoclinic.org/comment/1166751/

prescribed by my neurologist for my CIDP

Discussion: CIDP and trying to get on with life

Support Group: Autoimmune Diseases

Posted: Nov 2, 2024

As I remember I did have inflammation but that can point to so many things. I...

https://connect.mayoclinic.org/comment/1045935/

disease that has been misdiagnosed as CIDP

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: Apr 5, 2024

Hi, I am 59 years old female with CIDP, Lupus RA, OA, Sjogrens, Graves, TBI and...

https://connect.mayoclinic.org/comment/1007436/

Hi, I am 59 years old female with CIDP

Discussion: Does medical marijuana work for chronic pain?

Support Group: Chronic Pain

Posted: Jan 31, 2024

I also have CIDP along with a multiple of autoimmune diseases and a TBI in 3/4/22...

https://connect.mayoclinic.org/comment/929336/

I also have CIDP along with a multiple

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Sep 13, 2023

I will join the discussion only in that I have CIDP and am helped a great...

https://connect.mayoclinic.org/comment/1233388/

the discussion only in that I have CIDP ... for me the pain is not part of my CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Feb 10 5:00am

Chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) is a slowly developing autoimmune disorder in which the body's immune...

https://connect.mayoclinic.org/comment/1034347/

demyelinating polyradiculoneuropathy (CIDP ... autoimmune problems so I suspected CIDP

Discussion: Thigh weakness/foot drop after spine surgery

Support Group: Spine Health

Posted: Mar 15, 2024

I have CIDP but mine developed gradually over 10-15 years so I have had plenty of...

https://connect.mayoclinic.org/comment/1238794/

I have CIDP but mine developed gradually ... removing the anti bodies causing the CIDP

Discussion: What are the next steps to take after IVIG has not worked?

Support Group: Autoimmune Diseases

Posted: Feb 17 4:17am

@church5x Welcome to Mayo Clinic Connect. I’m so glad you found us! Some autoimmune diseases are...

https://connect.mayoclinic.org/comment/1065631/

difficult to diagnose than others, CIDP ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: May 10, 2024

@foxauthor good morning. I have been diagnosed with CIDP but not all my doctors agree. Some...

https://connect.mayoclinic.org/comment/799565/

I have been diagnosed with CIDP but ... rural area and no one is familiar with CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jan 21, 2023

I’m on Hizentra SCIG self infusions for the last year and a half after regular hospital...

https://connect.mayoclinic.org/comment/1165836/

The CIDP is like working another full

Discussion: CIDP and trying to get on with life

Support Group: Autoimmune Diseases

Posted: Oct 31, 2024

So sorry this happened to you. I have CIDP and some of the same symptoms you...

https://connect.mayoclinic.org/comment/1273020/

I have CIDP and some of the same symptoms

Discussion: Anyone on VYVGART Hytrulo, a new treatment for CIDP?

Support Group: Autoimmune Diseases

Posted: Apr 3 3:23am

I’m impressed that you got a diagnosis for something so rare in just a year! The...

https://connect.mayoclinic.org/comment/1123539/

just starting Rituxan infusions for CIDP

Discussion: May have undiagnosed autoimmune disease

Support Group: Autoimmune Diseases

Posted: Aug 14, 2024

Thank you very much for your interest. We currently have a N.Y. Presbyterian Hospital-Columbia & Cornell...

https://connect.mayoclinic.org/comment/761973/

only way to tell if my husband has CIDP

Discussion: Need to find out what's wrong with me

Support Group: Autoimmune Diseases

Posted: Oct 16, 2022

What works for me is getting IVIG regularly. My neurologist, who has a splendid reputation and...

https://connect.mayoclinic.org/comment/219635/

splendid reputation and specializes in CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Jan 15, 2020

Your history is quite interesting and a lot of puzzle pieces might fit. I would bet...

https://connect.mayoclinic.org/comment/1152710/

connections and you should inquire about CIDP ... have chronic EBV, lupus, RA, PN and CIDP ... doesn’t put people in wheelchairs but CIDP

Discussion: Illusive Diagnosis, Pain Increasing

Support Group: Bones, Joints & Muscles

Posted: Oct 6, 2024

Hi my name is Julian.Im 75 and been living with CIDP for 10+ yrs, Many chapters...

https://connect.mayoclinic.org/comment/1247666/

Julian.Im 75 and been living with CIDP

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Feb 28 8:59pm

Have to know what you have in order to treat it. I see my Blood Doc...

https://connect.mayoclinic.org/comment/1095414/

Here is another one, CIDP could have

Discussion: Rituxan for ITP

Support Group: Autoimmune Diseases

Posted: Jun 27, 2024

My first spinal tap about 8 yrs ago showed that my protein level was 4x the...

https://connect.mayoclinic.org/comment/1021662/

I’ve been diagnosed with CIDP and tried

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Feb 24, 2024