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927 total results
Comments (883)
Hello @pepsi97, I would like to add my welcome to Connect along with @colleenyoung. I'm have...
training or background but I do have small ... fiber peripheral neuropathy and I let ... and was diagnosed with idiopathic small ... : What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Neuropathy
Posted: Jul 26, 2020
@didi09 @captainanxiety8 I have chronic myofascial pain and some pain sensitization and also occasional twitches (and...
Small pain receptors are unmyelinated ... Small nerve fibers might be more irritated ... The enzymes help me. ... You may never know what is causing the ... However, consider researching neuropathy
Support Group: Brain & Nervous System
Posted: Jul 13, 2020
Good Evening @madsoann8. Welcome to Connect. Have you received a diagnosis of PN or Peripheral Neuropathy?...
connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... / And these ideas might help get ... some ways to reduce the pain of SFN, small ... fiber neuropathy. ... connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy
Support Group: Neuropathy
Posted: Jun 30, 2020
Hello @sprightly, Welcome to Mayo Clinic Connect. I've had idiopathic small fiber peripheral neuropathy for over...
I've had idiopathic small fiber ... Member Neuropathy Journey Stories: What ... Fiber Neuropathy (SFN): https://connect.mayoclinic.org ... /discussion/ideas-for-pain-from-small-fiber-neuropathy ... / In addition to small fiber PN,
Support Group: Neuropathy
Posted: Jun 30, 2020
@leezah Thanks so much for explaning more. I understand uncertainty and fear of the unknown when...
determined that my B12 deficiency caused Small ... Fiber Neuropathy (SFN). ... causes sensory issues of taste, touch, smell ... great platform to learn, and receive help ... make an appointment in Vancouver or what
Support Group: Brain & Nervous System
Posted: Feb 6, 2022
Welcome @mickieva, You are right about it being difficult to determine the cause of neuropathy. Mine...
Mine was diagnosed as idiopathic small ... fiber peripheral neuropathy and then ... neurologist there are no real treatments to help ... Journey Stories: What's Yours? ... little more about your diagnosis and what
Support Group: Neuropathy
Posted: Feb 6, 2022
Welcome @1puttman, I also have idiopathic small fiber PN. It started in my toes in my...
@1puttman, I also have idiopathic small ... fiber PN. ... Neuropathy Journey Stories: What&#39 ... exercise and staying active is part of helping ... treatments or supplements to see if they help
Support Group: Neuropathy
Posted: Jan 25, 2022
Hello @elki0475 - Welcome to Mayo Clinic Connect. I was not able to find an active...
an active IVIG clinical trial for small ... fiber neuropathy with TS-HDS either ... helps them you might find helpful ... : What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Neuropathy
Posted: Apr 8, 2021
@fde11 Hi there. I'm sorry you are experiencing these symptoms and am very happy you're lining...
I have small-fiber polyneuropathy and ... experienced many symptoms, some of what ... My neuropathy was caused by a B12 deficiency ... you luck going forward and hope this helps
Support Group: Brain & Nervous System
Posted: Sep 18, 2020
@mechanicjesus Hi, your original question was "why go thru all tests, trouble and money to identify...
kind of PN they have, small fiber, ... large fiber, autonomic, etc. ... felt she knew immediately that it was neuropathy ... deal with neuropathy, such as benfotiamine ... your neuropathy?
Support Group: Neuropathy
Posted: Oct 13, 2020
You are correct in your analogy of interviewing. My Neuro is a brilliant man but lacks...
This is what I mean. UGH! ... We all continue to help each other through ... For me, due to Small Fiber Poly Neuropathy
Support Group: Neuropathy
Posted: Feb 3, 2020
@phoenix0509 I had an Abbott scs implanted in June 2017. It's a Burst DR, so I...
Lyrica was the first one that was helping ... I didn't say what form of pn I have ... It's small fiber polyneuropathy, ... tongue, tinnitus, decreased sense of smell ... They have been a big help for me.
Support Group: Neuropathy
Posted: Jan 11, 2020
Hi @neuroliz I'm 69, and have idiopathic small fiber polyneuropathy and am in the early stage...
I'm 69, and have idiopathic small ... fiber polyneuropathy and am in the ... pain at between 2 and 6, depending on what ... So, that's what I've been doing ... working with me for several years in, what
Support Group: Neuropathy
Posted: Mar 12, 2020
@pedie you can find the list of the supplements I take in the first link to...
in the first link to my story for what ... helps me. ... fiber PN. ... Small Fiber Neuropathy: Disease Classification ... has some good exercises to help with
Support Group: Neuropathy
Posted: Mar 11, 2020
Hello @wandasophia. First off I'd like to let you know how very sorry I am to...
you know how very sorry I am to hear what ... I experience burning pain from Small ... Fiber Poly Neuropathy. ... What is your diagnosis thus far? ... Keep us posted please - here to help
Support Group: Brain & Nervous System
Posted: Feb 20, 2020
Have you have autonomic testing? I have had a mitral value prolapse for years with tachycardia...
Primary care no help. ... positive skin Biopsy last August for small ... fiber neuropathy. ... Constant battle to know what to eat.
Support Group: Neuropathy
Posted: Feb 19, 2020
Reading this opens the door for me to update everyone on the meeting I had yesterday...
He helped write the SFN book with other ... medical proof or long term studies for neuropathy ... cycle of added pain and has agreed to help ... all may know this stuff or not but, what ... Small Fiber Neuropathy continues to
Support Group: Neuropathy
Posted: Oct 3, 2019
Hello Georgina @444, Welcome to Connect. I don't have autoimmune hepatitis but do have other autoimmune...
rhematica for one and I also have small ... fiber peripheral neuropathy. ... can be confusing trying to figure what ... to help my autoimmune conditions and ... amazing story on how nutritional changes helped
Support Group: Autoimmune Diseases
Posted: Sep 27, 2019
Hi @fde11 since I might be one of the few people here who is not sleeping...
developing the symptoms of peripheral neuropathy ... https://www.healthline.com/health/small-fiber-neuropathy ... If that is what you have, then you may ... could even recede although that is not what ... people who I have found particularly helpful
Support Group: Neuropathy
Posted: Aug 29, 2020
Welcome, @pestevenson, to Connect. We are a community of folks who want you to have the...
and willingly share them to perhaps help ... Guess what......it is just not that ... years ago.....and with a diagnosis of Small ... Fiber Neuropathy(SFN).....complete ... What have you done to give it a &#34