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583 total results
Comments (563)
Hi @annelia, I had extreme fatigue before I was diagnosed with an autoimmune disorder, Giant Cell...
https://connect.mayoclinic.org/comment/1262058/
#34;low iron levels" in the PMR/GCA ... fatigue resolved with appropriate treatment
Actemra (tocilizumab) was FDA approved to treat GCA back in 2017. I was started on Actemra...
https://connect.mayoclinic.org/comment/1257180/
tocilizumab) was FDA approved to treat GCA ... close association between PMR and GCA ... prednisone for 12 years and all other treatment
I'm at a similar point in my treatment. I started Actemra injections in August 2024. I'll...
https://connect.mayoclinic.org/comment/1256894/
I'm at a similar point in my treatment ... happening since the start of PMR and GCA
Thank you for your reply. I have read the same kinds of things about skip lesions...
https://connect.mayoclinic.org/comment/1254531/
about skip lesions and prednisone treatment ... saw rheumatologist...she wants the GCA
I agree with jeff97. After spending months with extreme pain and barely able to function let...
https://connect.mayoclinic.org/comment/1248501/
about what the Dr likes to start for treatment ... GCA diagnosis takes double that dosage
Ron, I have GCA and got diagnosed with it when I started losing my vision in...
https://connect.mayoclinic.org/comment/1247358/
Ron, I have GCA and got diagnosed with ... I got treatment in time to save my vision ... for people who have been treated for GCA
I felt like a pioneer 6 years ago when Actemra was tried. Even though biolgics have...
https://connect.mayoclinic.org/comment/1242820/
biolgics have been around longer for the treatment ... there aren't many people with PMR/GCA
Hi , as Jeff says I have non temporal , but extensive GCA & PMR diagnosed...
https://connect.mayoclinic.org/comment/1241768/
have non temporal , but extensive GCA ... )
I feel fortunate to have such treatment
I agree with @jabrown0407 that your dose sounds like it is too low if you are...
https://connect.mayoclinic.org/comment/1239856/
a year before being diagnosed with GCA ... starting to have vision problems from the GCA ... I regret now not getting treatment earlier ... #39;t had any pain from the PMR or GCA ... since I started treatment 8 months
Wow, it's really amazing that you were able to get off of prednisone so quickly. I...
https://connect.mayoclinic.org/comment/1238785/
top .1 percent of people for minimal treatment ... I've been under treatment for almost ... I think the Actemra has the GCA and ... rheumatologist was conservative with my treatment ... significant visual involvement with my GCA
I have GCA and PMR diagnosis Nov 2024 . Immediate start on 50mg pred rapid taper...
https://connect.mayoclinic.org/comment/1238721/
I have GCA and PMR diagnosis Nov 2024 ... and zero symptoms within 2 months of treatment ... Now I’m on Actemera as a mono treatment
It sounds to me like your PMR isn't controlled. I have GCA and PMR, and I...
https://connect.mayoclinic.org/comment/1232927/
I have GCA and PMR, and I haven' ... t had any pain since I started treatment
@spibill, @coloradomama, and all... I will have a brain MRI Thursday, 1/30/25, ordered by my Rheumatologist....
https://connect.mayoclinic.org/comment/1224788/
with daily, vasculitis/PMR/Sarcoid/GCA ... Is there any other treatment available
Hi, So you know, GC’s (prednisone) are the frontline treatment for GCA. MTX is a GC...
https://connect.mayoclinic.org/comment/1210358/
GC’s (prednisone) are the frontline treatment ... for GCA. ... The thing with GCA is losing vision. ... from other issues that can stem from GCA
Thanks for this information. I have an appt this Tuesday with my rheumatologist to discuss adding...
https://connect.mayoclinic.org/comment/1203771/
adding a different medication for my treatment ... 60 mg of pred in late July 2024 for GCA ... I think GCA has reared it's ugly
@curlyqlinda1, There are times when I wished I had a sauna. There have been some members...
https://connect.mayoclinic.org/comment/1193969/
hear you have been diagnosed with GCA ... were always watching for symptoms of GCA ... search=GCA. ... Have you started a treatment for the ... GCA?
Kevzara is now an option for me since it was FDA approved for PMR in February...
https://connect.mayoclinic.org/comment/1171767/
approved for PMR when I was offered treatment ... 2019, Actemra was FDA approved for GCA ... ;as if" I had the diagnosis of GCA ... https://www.actemra.com/gca/considerations ... /gca.html#:~:text=ACTEMRA%20is%20the
I have some gut issues now, and I've had worse ones in the past. I don't...
https://connect.mayoclinic.org/comment/1373331/
#39;t know if they contributed to my GCA ... I never got medical treatment for it ... PMR and GCA are probably due to different
I had PMR for a year before I got diagnosed. I thought it was due to...
https://connect.mayoclinic.org/comment/1371448/
started, I got additional symptoms of GCA ... being treated for PMR is developing GCA ... treated for PMR can still develop GCA ... much, much better after I started treatment ... for PMR and GCA than before.
Hi...I have no experience with Actemra injections, but my infusion program--400 mg every four weeks--has been...
https://connect.mayoclinic.org/comment/1365275/
been wonderfully successful for the treatment ... of my GCA...pain free and simultaneously
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